Guest guest Posted January 3, 2012 Report Share Posted January 3, 2012 Dear Olga, Please can you say what your husband's diagnosis is? - Dorothy from cell phone > Dear all, > > I know find that my husband often is unable or refuses to walk. His > legs just appear not to hold him up/ Does anyone have this experience > and/or knows what that's about? > > Many thanks in advance, > Olga > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2012 Report Share Posted January 4, 2012 My father did that with his Parkinson's disease, but not until the later stages. Does have PD as well as Lewy?   ________________________________ To: LBDcaregivers Sent: Tuesday, January 3, 2012 10:32 PM Subject: not walking  Dear all, I know find that my husband often is unable or refuses to walk. His legs just appear not to hold him up/ Does anyone have this experience and/or knows what that's about? Many thanks in advance, Olga Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2012 Report Share Posted January 4, 2012 my mother hasnt walked for the month of dec. this morning they (hospice) brought her a walker, now there trying to get her up and walking. To: LBDcaregivers Sent: Tuesday, January 3, 2012 10:32 PM Subject: not walking  Dear all, I know find that my husband often is unable or refuses to walk. His legs just appear not to hold him up/ Does anyone have this experience and/or knows what that's about? Many thanks in advance, Olga Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2012 Report Share Posted January 4, 2012 If progresses as my husband did, he will have some days when he is much weaker than others. One day he might not be able to walk much and the next day he will be walking (although unsteadily) around the house. It is the nature of the disease. Also, he might complain of leg or foot pain that comes and goes. I put a potty chair right by my husband's side of the bed so all he had to do was stand up to urinate. During the day he would sometimes go to the nearby bathroom and other days he was too unsteady on his feet to do so. Here is a tip for potty chairs: I lined his with the small (4 gallon) garbage bags and put some kitty litter in the bottom--not a lot of litter, but enough to absorb some urine and to help keep it from splashing too much and to help with any odor. I cleaned his chair generally once a day and if there was a lot of urine, I poured the excess into the toilet and then used one of the ties that come with the bags and threw the rest into the garbage. This makes quick work of cleaning a potty chair. Cassie To: LBDcaregivers From: olga.shaumyan@... Date: Wed, 4 Jan 2012 03:32:19 +0000 Subject: not walking Dear all, I know find that my husband often is unable or refuses to walk. His legs just appear not to hold him up/ Does anyone have this experience and/or knows what that's about? Many thanks in advance, Olga Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2012 Report Share Posted January 4, 2012 Dear Olga My experience with Jim was that it was the Parkinson's symptoms which affected his walking ability. The muscles stiffen at unpredictable times. Sometimes he couldn't walk and sometimes his feet would 'freeze' to the ground but his body would keep going so he would fall over. Sinemet did help to relieve these symptoms, but as with most medications with LBD, it is hard to get a balance of the correct dose. I know the feeling that you think he is 'refusing' to walk, but in reality, it is really the disease which is preventing him from walking. Is taking Sinemet? What has your doctor said to these symptoms? Perhaps he needs to have another assessment made of his situation? It must make it very hard for you, as I remember you saying previously that you live in a two storey apartment/house with the bathroom half way up the stairs. We had a 'walker' with wheels and a seat which was a great help, especially when Jim couldn't walk. I would then use the 'walker' like a wheelchair to get him around the house ... though thankfully our house is on one level. I used to find it helped me to write down everything that happened in a small exercise book with dates and details of symptoms etc so that when we would go to the doctor, I had things in black and white. I would also write down all the questions I had to ask the doctor, with two copies - one for the doctor and one for me, and would make sure all my questions were answered before I left the surgery. If I didn't do this, I would forget what I wanted to ask because my attention would be distracted by the need to care for Jim in the different environments outside the home. All the best Elaine Elaine from Sydney Australia Carer for four years for husband Jim who died peacefully in hospital on 12th February 2011. Brain analysis, as a result of brain donation, has now confirmed the diagnosis of Diffuse LBD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2012 Report Share Posted January 4, 2012 " My experience with Jim was that it was the Parkinson's symptoms which affected his walking ability. The muscles stiffen at unpredictable times. Sometimes he couldn't walk and sometimes his feet would 'freeze' to the ground but his body would keep going so he would fall over. Sinemet did help to relieve these symptoms, but as with most medications with LBD, it is hard to get a balance of the correct dose. " I had the same experience with my husband as Elaine stated above. Jan ________________________________ Dear Olga My experience with Jim was that it was the Parkinson's symptoms which affected his walking ability. The muscles stiffen at unpredictable times. Sometimes he couldn't walk and sometimes his feet would 'freeze' to the ground but his body would keep going so he would fall over. Sinemet did help to relieve these symptoms, but as with most medications with LBD, it is hard to get a balance of the correct dose. I know the feeling that you think he is 'refusing' to walk, but in reality, it is really the disease which is preventing him from walking. Is taking Sinemet? What has your doctor said to these symptoms? Perhaps he needs to have another assessment made of his situation? It must make it very hard for you, as I remember you saying previously that you live in a two storey apartment/house with the bathroom half way up the stairs. We had a 'walker' with wheels and a seat which was a great help, especially when Jim couldn't walk. I would then use the 'walker' like a wheelchair to get him around the house ... though thankfully our house is on one level. I used to find it helped me to write down everything that happened in a small exercise book with dates and details of symptoms etc so that when we would go to the doctor, I had things in black and white. I would also write down all the questions I had to ask the doctor, with two copies - one for the doctor and one for me, and would make sure all my questions were answered before I left the surgery. If I didn't do this, I would forget what I wanted to ask because my attention would be distracted by the need to care for Jim in the different environments outside the home. All the best Elaine Elaine from Sydney Australia Carer for four years for husband Jim who died peacefully in hospital on 12th February 2011. Brain analysis, as a result of brain donation, has now confirmed the diagnosis of Diffuse LBD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2012 Report Share Posted January 5, 2012 Thank you all for sharing your experiences. The situation is not great ('s in hospital now; they are very patient and want to resolve). We'll see. Olga. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2012 Report Share Posted January 7, 2012 Olga, What meds is your husband taking? From: Olga Shaumyan Sent: Friday, January 06, 2012 12:16 AM To: LBDcaregivers Subject: not walking Thank you all for sharing your experiences. The situation is not great ('s in hospital now; they are very patient and want to resolve). We'll see. Olga. Quote Link to comment Share on other sites More sharing options...
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