Guest guest Posted January 7, 2012 Report Share Posted January 7, 2012 Hi Olga, From what I understood in a past post is that your husband has to use stairs to get to the bathroom on another floor. Have you looked into a commode, so you can keep the toilet in his room on the floor where you live, so he doesn't have to use stairs? http://www.walgreens.com/store/c/drive-medical-folding-bedside-commode-s\ eat-with-commode-bucket-and-splash-guard-/ID=prod6041787-product I am not sure where you live and if you can find something like this, but if you could, it would be helpful, so your husband doesn't have to use stairs. It has a bucket under the seat. You would have to clean it, but as one person suggested, use a garbage bag to line the bucket and just dispose of the bag. Of course, if your husband is constantly sleeping, he won't be able to get on the toilet and you will have to use other means for toileting issues. If you have only a few steps, you could look into a portable ramp: http://www.emedramps.com/products/Alumiramp-%252d-Ready-Ramp-.html I rented one at first and then bought it. It was worth its weight in gold to us. When my husband walked, I helped him down the ramp and he used his walker, so he didn't have to use the steps. It is skid free and has traction on it. When he was in a wheelchair, I could get him in and out of the house. I also could take it with me and where there were a few steps, I could get him up the ramp to visit friends. Jan Colello ________________________________ To: LBDcaregivers Sent: Saturday, January 7, 2012 2:28 PM Subject: Re: Re: this list Olga, You have got to call social services or senior services now. The may even be able to convince your landlord to allow modifications like a chair lift for the stairs. A hoist doesn't require any home modification. And you need an aide/attendant to help with the heavy lifting. Get your doctor to help you with justifying the level of help needed. Don't hold back. Tell them everything. Kathy Kate Knapp > ** > > > Dear Vivian, > > Great attitude. Admire your courage and optimism. Myself, I'm not managing > so well. My husband doesn't want to walk... for no reason... out of the > blue. When he wandered off plenty before. The bedroom involves stairs, the > bathroom involves stairs, the bath involves climbing into it. He's no baby, > he's heavy. We live in a rented accommodation. I can perhaps ship him off > to a home (how much? plus his family are stalling for incomprehensible > reasons), in which case I cannot remain in ours (too expensive). I'm now > more or less running out of excuses to send him to hospital. Before I could > say he used to be mobile but it's now over 2 months that by the end of the > week he lies down in the bed and refuses to do anything. And any > disturbance is met with hostility. And I very much doubt he knows who I am. > I'm often " the nasty boy " . It's an unfortunate combination of some unfunny > charade against the background of poor financial planning. So, yes, I'm > mightily discouraged and depressed, but I am trying to find some type of > solution. I actually do not think the way things are, they benefit either > me or (my husband). > I would still insist that prayers are great but practical > advice/experience is better. > And I don't know how mature I am, is the second demented person in my > life, but I certainly dislike being that uncertain (especially on behalf of > another human being), whoever Finley is. > > Olga > > > > > > > > > >> > > > > > > > >> Dear people, > > > > > > > >> > > > > > > > >> I deeply commiserate with all on the list who lost their loved > ones, but > > > > > > > >> where are the messages about trying to improve? Or do you feel this > is > > > all > > > > > > > >> about deterioration and praying much (I'm an atheist). > > > > > > > >> > > > > > > > >> Olga > > > > > > > >> > > > > > > > >> > > > > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2012 Report Share Posted January 7, 2012 There is this kind of portable ramp to get over steps also: http://www.emedramps.com/modular-xp-ramps-with-free-handrails/ Of course, if the stairs are many and steep, you will have to look into other ways suggested here. ________________________________ To: " LBDcaregivers " <LBDcaregivers > Sent: Saturday, January 7, 2012 8:37 PM Subject: Re: Re: this list/Olga Hi Olga, From what I understood in a past post is that your husband has to use stairs to get to the bathroom on another floor. Have you looked into a commode, so you can keep the toilet in his room on the floor where you live, so he doesn't have to use stairs? http://www.walgreens.com/store/c/drive-medical-folding-bedside-commode-s\ eat-with-commode-bucket-and-splash-guard-/ID=prod6041787-product I am not sure where you live and if you can find something like this, but if you could, it would be helpful, so your husband doesn't have to use stairs. It has a bucket under the seat. You would have to clean it, but as one person suggested, use a garbage bag to line the bucket and just dispose of the bag. Of course, if your husband is constantly sleeping, he won't be able to get on the toilet and you will have to use other means for toileting issues. If you have only a few steps, you could look into a portable ramp: http://www.emedramps.com/products/Alumiramp-%252d-Ready-Ramp-.html I rented one at first and then bought it. It was worth its weight in gold to us. When my husband walked, I helped him down the ramp and he used his walker, so he didn't have to use the steps. It is skid free and has traction on it. When he was in a wheelchair, I could get him in and out of the house. I also could take it with me and where there were a few steps, I could get him up the ramp to visit friends. Jan Colello ________________________________ To: LBDcaregivers Sent: Saturday, January 7, 2012 2:28 PM Subject: Re: Re: this list Olga, You have got to call social services or senior services now. The may even be able to convince your landlord to allow modifications like a chair lift for the stairs. A hoist doesn't require any home modification. And you need an aide/attendant to help with the heavy lifting. Get your doctor to help you with justifying the level of help needed. Don't hold back. Tell them everything. Kathy Kate Knapp > ** > > > Dear Vivian, > > Great attitude. Admire your courage and optimism. Myself, I'm not managing > so well. My husband doesn't want to walk... for no reason... out of the > blue. When he wandered off plenty before. The bedroom involves stairs, the > bathroom involves stairs, the bath involves climbing into it. He's no baby, > he's heavy. We live in a rented accommodation. I can perhaps ship him off > to a home (how much? plus his family are stalling for incomprehensible > reasons), in which case I cannot remain in ours (too expensive). I'm now > more or less running out of excuses to send him to hospital. Before I could > say he used to be mobile but it's now over 2 months that by the end of the > week he lies down in the bed and refuses to do anything. And any > disturbance is met with hostility. And I very much doubt he knows who I am. > I'm often " the nasty boy " . It's an unfortunate combination of some unfunny > charade against the background of poor financial planning. So, yes, I'm > mightily discouraged and depressed, but I am trying to find some type of > solution. I actually do not think the way things are, they benefit either > me or (my husband). > I would still insist that prayers are great but practical > advice/experience is better. > And I don't know how mature I am, is the second demented person in my > life, but I certainly dislike being that uncertain (especially on behalf of > another human being), whoever Finley is. > > Olga > > > > > > > > > >> > > > > > > > >> Dear people, > > > > > > > >> > > > > > > > >> I deeply commiserate with all on the list who lost their loved > ones, but > > > > > > > >> where are the messages about trying to improve? Or do you feel this > is > > > all > > > > > > > >> about deterioration and praying much (I'm an atheist). > > > > > > > >> > > > > > > > >> Olga > > > > > > > >> > > > > > > > >> > > > > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2012 Report Share Posted January 9, 2012 Olga, I'm not sure if you live in Europe, but if you do, you might check this site out: http://www.lewybody.co.uk/ I believe they also have a support group online for LBD and may have more things available in common for you. Or maybe you knew about this site already if you live in Europe. Jan Colello ________________________________ To: LBDcaregivers Sent: Monday, January 9, 2012 3:17 AM Subject: Re: this list Janet - you're referring to the Lewy Body Society in the UK -- their website is this: http://www.lewybody.co.uk/ > > >> > > > > > >> > > >> > > >> > > > > > >> > > >> Dear people, > > >> > > > > > >> > > >> > > >> > > > > > >> > > >> I deeply commiserate with all on the list who lost their loved > > >> ones, but > > >> > > > > > >> > > >> where are the messages about trying to improve? Or do you feel > > this > > >> is > > >> > > all > > >> > > > > > >> > > >> about deterioration and praying much (I'm an atheist). > > >> > > > > > >> > > >> > > >> > > > > > >> > > >> Olga > > >> > > > > > >> > > >> > > >> > > > > > >> > > >> > > >> > > > > > >> > > >> Quote Link to comment Share on other sites More sharing options...
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