Guest guest Posted January 5, 2012 Report Share Posted January 5, 2012 Hi , This journey is so hard. My concern is why isn't the hospital on top of her pain and hallucinations? When my mom is hospitalized they continually ask her where her pain is on a scale of 1 to 10. Depending on her answer they will prescribe what it needed. It seems that a broken hip would require more than ibuprofen. Intense pain can trigger all sorts of behavioral problems. I think the neurologist's suggestion on Seroquel is a good one. Mom has been treated for depression and anxiety with a lot of meds and at the present time the atypical anti-psychotic is what is working. But of course it took years to get to this place, having tried very many anti-depressants and anti-anxiety medications. Really for some reason it seems this category of drugs works for LBD - one of the bonuses (if you can call it that) of having a diagnosis. Of course everyone is unique and will react differently. I so hear your frustration - I have boxes of my mom's medical files - hospitals, doctors, rehabs, psych ward, and now the dementia unit. You just wonder when is it going to end? This journey has taught me one huge lesson. We can't change or fix our lo's - all we can do is be there by their side making the best decisions we know how. Hang in there and take care of yourself. Marcie B _____ From: LBDcaregivers [mailto:LBDcaregivers ] On Behalf Of choir39@... Sent: Thursday, January 05, 2012 7:01 AM To: LBDcaregivers Subject: Broken hip Hi everyone, My mother Barbie was diagnosed 2 years ago with LBD. Since then we have moved her what now will be for the fourth time. This last time is due to a broken hip. She is still in the hospital and the hallucinations are incredible.The only pain med she is getting is ibuprfin. Before the break her dpression was unbbearable.The nuerologist working with her is going to try seroquel low and slow. Does anyone have any thoughts about pain meds and meds for depression. I am not sure after this fall that she will ever be the same. she for sure was ready for a wheel chair before this.I am so sad and at my witts end on what to do. She is headed for a rehab facility and a place she can stay until the end of her life now that will except medicade.All suggestions are welcome . Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2012 Report Share Posted January 5, 2012 My husband has done extremely well with Seroquel and Effexor. The Seroquel has his hallucinations almost stopped totally (he only sees things now if he wakes up in the middle of the night) and the Effexor has his depression very well controlled. I can't help you as far as the pain meds are concerned, but I can't think ibuprofin would be enough for a broken hip.  Good luck c  ________________________________ To: LBDcaregivers Sent: Thursday, January 5, 2012 7:00 AM Subject: Broken hip  Hi everyone, My mother Barbie was diagnosed 2 years ago with LBD. Since then we have moved her what now will be for the fourth time. This last time is due to a broken hip. She is still in the hospital and the hallucinations are incredible.The only pain med she is getting is ibuprfin. Before the break her dpression was unbbearable.The nuerologist working with her is going to try seroquel low and slow. Does anyone have any thoughts about pain meds and meds for depression. I am not sure after this fall that she will ever be the same. she for sure was ready for a wheel chair before this.I am so sad and at my witts end on what to do. She is headed for a rehab facility and a place she can stay until the end of her life now that will except medicade.All suggestions are welcome . Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2012 Report Share Posted January 7, 2012 , is she on palliative care or are you considering is? I think a broken hip is one of the conditions in which you have the opportunity to let your mom go and just manage her pain. It sounds awful but I wish we had taken two opportunities to let my mom go. Now she is in a nursing home looking forward to the next opportunity. You have to be ready to let her go just as much as she needs to be ready to go. If you aren't ready and the doctor thinks she can have some quality of life after a broken hip, I suggest you wait until you are. And hope for an equally good opportunity when you can handle it. I've beaten myself up over not letting my mom go on the two previous opportunities but not letting her go at those times ended up letting her hold her first great grandchild. It wasn't necessary to have her here to do that, but it was an amazing sight. But YOU have to be ready and so do your siblings. The crisis might make you ready, but don't force it. Don't leave yourself open to guilty second guessing. Make decisions about this gently - for yourself, your mom and your family. There's a lady at my mom's nursing home with a broken foot that never healed well and sticks out strangely. She just turned 100. She may have dementia, but she is also a blessing to everyone who meets her. Dementia doesn't diminish someone's value. It just makes us make decisions about how much value she finds in life for herself. Best wishes. Kathy Kate Knapp > ** > > > Hi everyone, My mother Barbie was diagnosed 2 years ago with LBD. Since > then we have moved her what now will be for the fourth time. This last time > is due to a broken hip. She is still in the hospital and the hallucinations > are incredible.The only pain med she is getting is ibuprfin. Before the > break her dpression was unbbearable.The nuerologist working with her is > going to try seroquel low and slow. Does anyone have any thoughts about > pain meds and meds for depression. I am not sure after this fall that she > will ever be the same. she for sure was ready for a wheel chair before > this.I am so sad and at my witts end on what to do. She is headed for a > rehab facility and a place she can stay until the end of her life now that > will except medicade.All suggestions are welcome . Thank you > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2012 Report Share Posted January 7, 2012 And Seroquel low and slow has really helped my mom. Kate Knapp > , is she on palliative care or are you considering is? I think a > broken hip is one of the conditions in which you have the opportunity to > let your mom go and just manage her pain. It sounds awful but I wish we > had taken two opportunities to let my mom go. Now she is in a nursing home > looking forward to the next opportunity. > > You have to be ready to let her go just as much as she needs to be ready > to go. If you aren't ready and the doctor thinks she can have some quality > of life after a broken hip, I suggest you wait until you are. And hope for > an equally good opportunity when you can handle it. I've beaten myself up > over not letting my mom go on the two previous opportunities but not > letting her go at those times ended up letting her hold her first great > grandchild. It wasn't necessary to have her here to do that, but it was an > amazing sight. > > But YOU have to be ready and so do your siblings. The crisis might make > you ready, but don't force it. Don't leave yourself open to guilty second > guessing. > > Make decisions about this gently - for yourself, your mom and your family. > > There's a lady at my mom's nursing home with a broken foot that never > healed well and sticks out strangely. She just turned 100. She may have > dementia, but she is also a blessing to everyone who meets her. Dementia > doesn't diminish someone's value. It just makes us make decisions about > how much value she finds in life for herself. > > Best wishes. > > Kathy > > Kate Knapp > > >> ** >> >> >> Hi everyone, My mother Barbie was diagnosed 2 years ago with LBD. Since >> then we have moved her what now will be for the fourth time. This last time >> is due to a broken hip. She is still in the hospital and the hallucinations >> are incredible.The only pain med she is getting is ibuprfin. Before the >> break her dpression was unbbearable.The nuerologist working with her is >> going to try seroquel low and slow. Does anyone have any thoughts about >> pain meds and meds for depression. I am not sure after this fall that she >> will ever be the same. she for sure was ready for a wheel chair before >> this.I am so sad and at my witts end on what to do. She is headed for a >> rehab facility and a place she can stay until the end of her life now that >> will except medicade.All suggestions are welcome . Thank you >> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2012 Report Share Posted January 7, 2012 Dear Kathy, Thank-you for all your insights. I was watching the residents at dinner the other night at the dementia ward my mom lives in and just observed all the different personalities. Some are so sweet with wonderful smiles, others are totally quiet, some are mean, and some are a combination. There is a couple there who fell in love a few months back. They are wonderful to behold. Their love and tenderness for one another is so beautiful. Your comment " dementia doesn't diminish someone's value " is so true. The woman had been a very difficult person to be around and she is a changed woman now. The phrase " life is a mystery " takes on a whole new meaning with Lewy Body added to it. Marcie Re: Broken hip , is she on palliative care or are you considering is? I think a broken hip is one of the conditions in which you have the opportunity to let your mom go and just manage her pain. It sounds awful but I wish we had taken two opportunities to let my mom go. Now she is in a nursing home looking forward to the next opportunity. You have to be ready to let her go just as much as she needs to be ready to go. If you aren't ready and the doctor thinks she can have some quality of life after a broken hip, I suggest you wait until you are. And hope for an equally good opportunity when you can handle it. I've beaten myself up over not letting my mom go on the two previous opportunities but not letting her go at those times ended up letting her hold her first great grandchild. It wasn't necessary to have her here to do that, but it was an amazing sight. But YOU have to be ready and so do your siblings. The crisis might make you ready, but don't force it. Don't leave yourself open to guilty second guessing. Make decisions about this gently - for yourself, your mom and your family. There's a lady at my mom's nursing home with a broken foot that never healed well and sticks out strangely. She just turned 100. She may have dementia, but she is also a blessing to everyone who meets her. Dementia doesn't diminish someone's value. It just makes us make decisions about how much value she finds in life for herself. Best wishes. Kathy Kate Knapp > ** > > > Hi everyone, My mother Barbie was diagnosed 2 years ago with LBD. Since > then we have moved her what now will be for the fourth time. This last time > is due to a broken hip. She is still in the hospital and the hallucinations > are incredible.The only pain med she is getting is ibuprfin. Before the > break her dpression was unbbearable.The nuerologist working with her is > going to try seroquel low and slow. Does anyone have any thoughts about > pain meds and meds for depression. I am not sure after this fall that she > will ever be the same. she for sure was ready for a wheel chair before > this.I am so sad and at my witts end on what to do. She is headed for a > rehab facility and a place she can stay until the end of her life now that > will except medicade.All suggestions are welcome . Thank you > > > Quote Link to comment Share on other sites More sharing options...
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