new member

[Guest guest]

I'm so glad you made it over here to MSersLife! I was dxed with Transverse Myelitis in 1997 and then with MS in 1998. You were hit much harder than I was though. What kind of pain are you having and where is it? I have been through a tough year of nocturnal leg pain. I started Cymbalta in June and that took the pain down by 50%. Then two months ago I started on LDN and that, incredibly,took the pain down to 10% of what it was a year ago. What a miracle for me.I also take Neurontin, Baclofen, and clonazapam to manage the spasms and spasticity. The Neurontin helps with the Trigeminal Neuralgia I have, too. Thanks for joining us!hugs)))Sharon If the government is big enough to give you everything you want, it is big enough to take away everything you have. - Gerald Ford New Member I was diagnosed with Transverse Myelitis in Feb 2002. The diagnosis is now MS. Actually, the neurologists cannot make up thier minds so...I began taking copaxone a few weeks ago. I still take Neurontin for the pain. I guess I'm still trying to figure it all out. I'm so sick and tired of doctors and treatments and medications and pain and more pain. But I know the best thing I can do for myself is to get in touch with a group that understands MS and learn as much

as I can about it. I use a walker to get around as I was initially paralyzed from the waist down. I just hit the big 60, I have four children ages 24-34 and I have an incredibly supportive husband. I am a born "Irish Catholic" and truly my faith has kept me going thru it all. Thanks to "Sharon" for sending me this link.

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Welcome Aboard!!!!!!!

I'm sorry that you have need to join a group like ours, however I'm not

sorry that you found this group. The people here are a super fantastic

group of caring and knowledgeable peoples and are always willing to lend

a shoulder to lean on, or an ear to listen when you feel the need to

rant....

Believe me when I say that I understand your being " sick and tired of

being sick and tired " , as I think most of us do from one time or another.

Just know that we are here, for any questions you might have, and none

of them are too insignificant to ask.. Someone will be sure to answer them.

Once again, welcome aboard

|)onna

ogsmother wrote:

>

> I was diagnosed with Transverse Myelitis in Feb 2002. The diagnosis is

> now MS. Actually, the neurologists cannot make up thier minds so...I

> began taking copaxone a few weeks ago. I still take Neurontin for the

> pain. I guess I'm still trying to figure it all out. I'm so sick and

> tired of doctors and treatments and medications and pain and more pain.

> But I know the best thing I can do for myself is to get in touch with a

> group that understands MS and learn as much as I can about it. I use a

> walker to get around as I was initially paralyzed from the waist down.

> I just hit the big 60, I have four children ages 24-34 and I have an

> incredibly supportive husband. I am a born " Irish Catholic " and truly

> my faith has kept me going thru it all.

> Thanks to " Sharon " for sending me this link.

[Guest guest]

The pain is from the waist down...Horrible numbness, tingling and burning sensations. At times I feel as if my hips and butt were one big cement block... I also have "bands" as if someone has a tourniquet and has wrapped my legs too tightly. I take 1800mg of Neurontin. I was on 2400mg. but it was definitely affecting my memory. Tried Lyrica did not work, tried Cymbalta did not work... So I would love to try LDN but ny neuro said no... I will see him in February. He put me on Copaxone in Dec. I really don't feel any different since starting the drug.. Not sure what I am supposed to "feel"? Will Copaxone help with the pain???I was told this would lessen the severity of any MS exacerbation.

Thank you again for the warm welcome!!

TrudyWorrying does not empty tomorrow of its troubles; It empties today of its strengths.

New Member

I was diagnosed with Transverse Myelitis in Feb 2002. The diagnosis is now MS. Actually, the neurologists cannot make up thier minds so...I began taking copaxone a few weeks ago. I still take Neurontin for the pain. I guess I'm still trying to figure it all out. I'm so sick and tired of doctors and treatments and medications and pain and more pain.But I know the best thing I can do for myself is to get in touch with a group that understands MS and learn as much as I can about it. I use a walker to get around as I was initially paralyzed from the waist down. I just hit the big 60, I have four children ages 24-34 and I have an incredibly supportive husband. I am a born "Irish Catholic" and truly my faith has kept me going thru it all. Thanks to "Sharon" for sending me this link.

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[Guest guest]

Thanaks Donna for the welcome!! I've already learned a great deal just reading these messages.

Trudy

Worrying does not empty tomorrow of its troubles; It empties today of its strengths.

Re: New Member

Welcome Aboard!!!!!! !I'm sorry that you have need to join a group like ours, however I'm not sorry that you found this group. The people here are a super fantastic group of caring and knowledgeable peoples and are always willing to lend a shoulder to lean on, or an ear to listen when you feel the need to rant....Believe me when I say that I understand your being "sick and tired of being sick and tired", as I think most of us do from one time or another.Just know that we are here, for any questions you might have, and none of them are too insignificant to ask.. Someone will be sure to answer them.Once again, welcome aboard|)onnaogsmother wrote:> > I was diagnosed with Transverse Myelitis in Feb 2002. The diagnosis is> now MS. Actually, the neurologists cannot make up thier minds so...I> began taking copaxone a few weeks ago. I still take Neurontin for the> pain. I

guess I'm still trying to figure it all out. I'm so sick and> tired of doctors and treatments and medications and pain and more pain.> But I know the best thing I can do for myself is to get in touch with a> group that understands MS and learn as much as I can about it. I use a> walker to get around as I was initially paralyzed from the waist down.> I just hit the big 60, I have four children ages 24-34 and I have an> incredibly supportive husband. I am a born "Irish Catholic" and truly> my faith has kept me going thru it all.> Thanks to "Sharon" for sending me this link.

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[Guest guest]

None of the MS treatment drugs (including Copaxone) treat any pre-existing neuro-damage. There is the possibility that as time passes the severity of the pain will lessen as you experience fewer relapses and fewer new lesions.

The treatment drugs (Avonex, Betaseron, Rebif, Copaxone) are intended to slow down the progression of the disease, not to fix or repair things already damaged. This is something explained very poorly by most neurologists. And, it was something I had to come to grips with as I came to understand more about the disease and existing treatments.

In my experience, I didn't seem to have any benefits from taking Copaxone until completing the first year. And, even the people who make Copaxone will tell you to expect six months to see results. Good luck with the Copaxone. I do think it is the best choice of treatments: few side effects, efficacy. However, do not be afraid to push your neuro on LDN. Why did he/she tell you "no" on LDN?

--Mr. Dana F. Utz utzdana@... http://home.comcast.net/~utzdana/

[Guest guest]

I tried rebif, and then copaxone, with copaxone I had

incontinence problems (I normally do not) and as soon

as I went back off it my continence returned to

normal. That and severe injection site reactions are

why I now only take LDN.

I could not talk my country-bumpkin Dr's into it, so I

went out on my own and bought the pills overseas and

make my own liquid. S far that has worked for me, and

the liquid makes it easier for me to adjust the

dosage. So far I have found 3.5 is where I am best. I

finally 'fessed up to the Dr's about it, got their

blessing but still no script...oh well. it is working

and how I get it or how I take it is moot.

Akiba

--- utzdana@... wrote:

> None of the MS treatment drugs (including Copaxone)

> treat any pre-existing neuro-damage. There is the

> possibility that as time passes the severity of the

> pain will lessen as you experience fewer relapses

> and fewer new lesions.

>

> The treatment drugs (Avonex, Betaseron, Rebif,

> Copaxone) are intended to slow down the progression

> of the disease, not to fix or repair things already

> damaged. This is something explained very poorly by

> most neurologists. And, it was something I had to

> come to grips with as I came to understand more

> about the disease and existing treatments.

>

> In my experience, I didn't seem to have any benefits

> from taking Copaxone until completing the first

> year. And, even the people who make Copaxone will

> tell you to expect six months to see results. Good

> luck with the Copaxone. I do think it is the best

> choice of treatments: few side effects, efficacy.

> However, do not be afraid to push your neuro on LDN.

> Why did he/she tell you " no " on LDN?

>

> --

> Mr. Dana F. Utz

> utzdana@...

>

> http://home.comcast.net/~utzdana/

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

& Eternal Optimist!

http://yodamamma.blogspot.com/

http://www.solay-twinflames.com

________________________________________________________________________________\

____

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[Guest guest]

Trudy,

As true with all the CRAB therapies, they are supposed to lessen the

number of exacerbations and possibly the duration of them.. don't know

that they actually reduce the severity though..

I was on Avonex for 4 years, didn't have any " major " exacerbations, just

slight worsening of existing symptoms, I was off all drugs for 3 years,

didn't have any " major " exacerbations in that time either, just a slight

worsening of existing symptoms. I had a few bouts with light shows

behind my eyes, that at the time my neuro said wasn't an exacerbation

cause they didn't last long enough.. Believe me I thought they did..

LOL.. I don't know that I wouldn't have lost my mind if they had lasted

longer than a few hours.. Throughout that 3 year period of no drugs, I

also had bouts of extra numbness (in my feet & hands that was like to

drive me more bonkers than I already am.. and if they'd have lasted more

than an hour or so.. I know I'd have lost it completely)...

I started on Copaxone 3 months ago.. Now my experience with it so far,

is not really all that typical of most people's experience with it.. I

don't know why I noticed it the very first night, but I did. Might have

been because I noticed the effect on one of my midnight excursions to

the bathroom, where I have to be awake enough to know whether I'm about

to step on the dog when I put my feet on the floor, or as I wobble my

way around furniture and things in the dark to get to the bathroom.. But

for some reason, and I really did think it was my imagination, I

noticed that my legs just didn't feel as wobbly on my way to the

bathroom.. My balance still wasn't there, but my legs didn't feel like

they could come out from under me at any second... When I spoke to the

nurse from Shared Solutions, I mentioned this to her.. She told me that

it wasn't the first time that she'd heard this from people on Copaxone,

but usually it wasn't right after the first injection, it was farther

into the therapy. I asked why it wasn't part of the " hype " (for lack of

a better word) promoting the use of Copaxone.. She told me that they

couldn't use this information in that manner because it wasn't part of

the study, therefore no scientific type evidence .. go figure.. I

know that I noticed a difference almost immediately, and I notice a

difference almost immediately if I miss an injection as well... But like

I said, I don't think I'm " typical " in this area... Things I've read are

more along the order of weeks to months in noticing a difference.. and

those difference may be coming so gradually that you don't really notice

them until you realize something like " Hey.. the vacuum sweeper isn't as

hard to push anymore! " or some such like thing..

The downside??? my legs are stronger, and I got to show off for the

neurologist yesterday when he asked me to walk without my cane for him..

and I've shown off around various friends and relatives showing that I

could actually " do the twist, the ha-cha-cha " without falling on my

butt.. (can't do that if I miss a dose though).. but here I am 3 months

into the therapy, with the most severe case of optic neuritis that I've

ever had... (I only had the pain before, now I've lost some visual

acuity with it, and some color saturation problems, and I think there's

a cloudy dot in the center of my vision.... I just hope that the oral

prednisone works quickly)..

I think that you will see a difference at some point in the near

future.. how much of a difference, I wouldn't even give a guess, but I

think you will notice a difference. Avonex was difficult to continue

for 4 years, because I never felt different, or better or anything else,

but I did still get the flu-like symptoms every week for 24 to 48

hours.. The only thing that kept me putting myself through that, was the

knowledge that in the first 4 months of injecting 4 lesions resolved

themselves. That was shown on an MRI taken 4 months after starting the

Avonex.. So I had some logical proof that it was doing it's job, even if

I didn't " feel " that proof..

I don't remember feeling the " banding " sensation, unless you could

consider my " banding " as running vertically down my leg from hip to knee

instead of horizontally around my stomach or chest or some location.. I

described what I felt as a rubber band (elastic band, gum band) being

stretched to the max, just before it would break and snap your fingers

hard.. Haven't had that sensation in awhile.. wasn't really as much

painful as annoying..

Well, I think I've been blowhard enough for a bit..

Take Care

|)onna

Trudy Ogilvie wrote:

>

> The pain is from the waist down...Horrible numbness, tingling and

> burning sensations. At times I feel as if my hips and butt were one big

> cement block... I also have " bands " as if someone has a tourniquet and

> has wrapped my legs too tightly. I take 1800mg of Neurontin. I was on

> 2400mg. but it was definitely affecting my memory. Tried Lyrica did not

> work, tried Cymbalta did not work... So I would love to try LDN but ny

> neuro said no... I will see him in February. He put me on Copaxone in

> Dec. I really don't feel any different since starting the drug.. Not

> sure what I am supposed to " feel " ? Will Copaxone help with the pain???I

> was told this would lessen the severity of any MS exacerbation.

> Thank you again for the warm welcome!!

> Trudy

[Guest guest]

I had a major reaction to Lyrica. It made everything worse and I could barely walk, with painful pins/needles, etc. The neuro wanted to put me in the hospital but instead I stopped the Lyrica and got better with each missed dose. Thank goodness Cymbalta has worked for me. I would be lost without it. I used to take 3200 mg. of Neurontin but now I'm down to 2000 mg. a day. Is your pain worse at night or is it the same all the time? I have had the banding, too, but it comes and goes.It's a stupid disease, isn't it? Sharon New Member

I was diagnosed with Transverse Myelitis in Feb 2002. The diagnosis is now MS. Actually, the neurologists cannot make up thier minds so...I began taking copaxone a few weeks ago. I still take Neurontin for the pain. I guess I'm still trying to figure it all out. I'm so sick and tired of doctors and treatments and medications and pain and more pain.But I know the best thing I can do for myself is to get in touch with a group that understands MS and learn as much as I can about it. I use a walker to get around as I was initially paralyzed from the waist down. I just hit the big 60, I have four children ages 24-34 and I have an incredibly supportive husband. I am a born "Irish Catholic" and truly my faith has kept me going thru it all. Thanks to "Sharon" for sending me this link.

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[Guest guest]

I am a new member to the LBDcaregivers group. I don't have any messages to

post right now. I would rather listen in for awhile.

pjaj

[Guest guest]

Hi Sharee,Welcome to our group, we have a lot of information to share and a lot compassion for anyone deaingwith these diseases... Many of us have also been mis-diagnosed (dxd) for years, it is such a common theme the group membersall have and it is common almost everywhere.. Abx is often what brings so many members to this group, they were prescribed different ones, they failed to help,and these folks worsened over time... Abx helps in the acute phase of the diseases, but not so much in the chronic phase, of which just about all of us are here.. So, you do have plenty of company here, we understandwhat you are going through... And don't feel too badly there is only one Lyme doc there, we have more herein the US, but the outcomes are really not that impressive..You should think of yourself as the CEO of your own health care... You, not your doctors should decide whatis right for you, what isn't... I was told this by a good friend and family doctor 20 years ago and it has servedme well.. Now I only accept from a doctor what I feel comfy using.. You need to make your own determinationabout abx, just know there are natural alternative treatments that many are using often with better results.. The Essiac tea you mention is an excellent detox tea, it has a 90 year history in the Canadian medical communityas detoxer, used initially for those with stage 4 cancers who were sent home to die, they were given one dose of this tea daily and many continued to live... Later it was used as a good general detoxer for both healthy folksand those of us with chronic disease... One more thing it does is prevents cancer in us from spreading... If youshould ever have a cancerous tumor start to grow in you, Essiac encapsulates the tumor and prevents the cancerfrom spreading.. Lyme is in every country, on every continent, borders do NOT prevent birds from carrying Lyme infested ticksto every corner of the world.. Any time you are not sure about something, post a question and someone will answer.. I am usually a day ortwo behind on my posts, but I assure you I will respond to you.. I copied all the Essiac info below includinga link to buy from Mountain Rose Herbs... They have very fresh herbs, I trust them to properly blend theEssiac Blend, so a good company to buy from... Note, that one pound of Essiac Blend will last one person20 months, so it goes a long way and making it a very inexpensive protocol.. This is my list of Doug Coil builders... You should hear back from at least one of these builders, I know they ship out of the US...'s website:http://coilmachines.com/ Stolar web sites:http://coilmachines4less.googlepages.com/coilmachines4lessBuild your own machine plans... Open this link, click on POWERPOINTPRESENTATION.http://dougcoilmachine.com/Doug's website:http://www.coilmachinesbydoug.com/'s website:http://www.actioncoilmachines.com/Terry's website:http://www.dougcoilmachines4u.com/ M's websitehttp://www.coilmachinesnw.com/Here is the full info about Essiac tea:Essiac TeaThis is the correct info about Essiac tea.... The link to buy and the recipe to make is at the top of this email, please be sure to check out the links I have researched below this as these truly are the only trusted links I will use for this tea... Most Essiac info on the "net is not correct, it has been changed by resellers to make you think they are selling their herbs for less... The original Essiac tea discovered by Nurse Caisse was made from 4 herbs, many resellers lead you to believe she changed this to 8 herbs. What they have done is add in 4 inexpensive herbs and since they sell the herbs (blended) by the pound, it actually costs them less per pound because of the added inexpensive herbs. All the links here have been researched by me and they are good links you can trust... WHERE TO BUY ESSIAC HERBSThere is a much better way of buying these herbs from Mountain Rose Herbs, their herbs are organic and very fresh... They use the correct 4 herbs in the correct amount and sell an Essiac Blend. This means you do not have to buy the individual herbs and weigh out the correct amount, they've done it for you! Cost is $29.00 for one pound plus shipping, this should last one person about 20 months. I suggest making 1 1/2 pints (24 ounces) as we use 1 oz of the tea concentrate per day, so this will last about 24 days... The tea should be consumed daily for 3 weeks, and not consumed for one week each month (basically 3 weeks on the tea, 1 week off). I don't drink the tea for the first 7 days of month and then I drink it every day for the rest of the month, thus the 1 1/2 pint recipe is exact! Mountain Rose does sell the individual herbs (links listed below), I don't believe there is any cost advantage to this and it is more work as you have to measure and blend the herbs yourself. The Blend you buy from Mountain Rose should be put into a covered glass container and stored in a dark kitchen cabinet or better in the fridge. I keep my jar in a brown paper bag to keep the light off of it.. If you buy the ESSIAC BLEND (highly suggested)This is the link: Buy the top item "1lb Essiac Blend organic............ $29.00http://www.mountainroseherbs.com/search/search.php?refine=y & keywords=essiac+blend & x=10 & y=9How to Make Essiac Tea ConcentrateDo not use any aluminum utensils as aluminum can react with Essiac tea. Supplies Needed: Enameled or stainless steel pot or Corning casserole dish (8 - 12 quart size). Covered glass jug (for the liquid tea concentrate) that will be placed in the fridge..Strainer, funnel and a glass measuring cup (Pyrex) wood stirring spoon. You also going to need a small scale that weighs in ounces. If you need to buy a scale, just be sure it measures in ounces, getting one that also measures grams (.01) is good for measuring powdered supplements..Dry Measure Equivalents 3 teaspoons 1 tablespoon 1/2 ounce 14.3 grams 2 tablespoons1/8 cup 1 ounce 28.3 gramsGram scales on eBay, most also measure ounces, just be sure it does, this is optional if you wish to weigh the monthly blend:http://www.ebay.com/sch/i.html?_from=R40 & _trksid=p5197.m570.l1313 & _nkw=gram+scale+.01 & _sacat=See-All-CategoriesThis one does measure in ounces and grams...http://www.ebay.com/itm/New-300g-x-0-01g-Mini-Digital-Jewelry-Pocket-Gram-Scale-/200466694887?pt=UK_BOI_Electrical_Test_Measurement_Equipment_ET & hash=item2eacbf02e7#ht_3568wt_1398You will use 1/2 ounce of the dry herbs (Essiac Blend) to make a pint, or 3/4 oz to make 1 1/2 pints or 1 ounce to make a quart of liquid concentrate... Since we drink this tea for 3 weeks (21 days) on, 1 week off, I feel it is best to make 1 1/2 pints (24 ounces) of the tea concentrate if this is used for one person. The daily use of the tea concentrate is 1 ounce, so for 3 weeks you will use 21 ounces, thus the 1 1/2 pint size works best. I make this tea concentrate just before going to bed so it can steep while I sleep. Always store the tea concentrate on the bottom shelf of the fridge as it is coldest there and the tea will last longer.Here's how you make the tea concentrate.1 1/2 Pint recipe: use 24 ounces (make 26 ounces as some may dissipate) of distilled water, add to a large glass, ceramic or stainless steel pot (8 to 12 quart size), add in 3/4 ounce of the Essiac Blend dry herbs and hard boil for 10 minutes (lid on the pot), then place on very low heat (just enough to keep the tea warm) for 12 hours (lights off, light affects the tea). In a warm climate, no heat is necessary.After the 12 hours is up, reheat the pot to steaming, but not boiling, turn off heat and allow tea concentrate to sit for several minutes, then pour the tea through a plastic or stainless steel strainer into your glass jug and refrigerate (I actually stain into a bowl first, then pour into my glass jug, easier. The stuff in the strainer is also very healthy, I actually give it to my dogs in their food.. I personally won't eat it as this can mean too much detox since we are drinking the tea.1 Pint recipe: Use 16 ounces (make that 17 ounces) of distilled water and 1/2 ounce of the Essiac dry herbs (follow above instructions).1 Quart recipe: Use 32 ounces (make that 35 ounces) of distilled water and 1 ounce of the Essiac dry herbs (follow above instructionsIf you do not own a water distiller, you can buy distilled water at the supermarket by the gallon for about $2.How to make your daily cup of teaRene Caisse used 1 oz. of Essiac tea concentrate (cold) in at least 2 oz of hot water once daily for cancer patients. CLICK HERE for more info on dosage. Do not microwave the tea. Drink Essiac tea on an empty stomach. Take the time to sip your Essiac tea slowly; don't gulp it down. Essiac tea is detoxifying so it is very important to drink plenty of pure water during the day and to have regular bowel movements. Discard Essiac tea if it tastes sour or when white mold appears floating on the surface. Essiac herbs and tea are light and heat sensitive so it is important to store in a cool, dark place. I also drink the sediment on the bottom of the cup.. Be sure to drink at least 1 hour before or 2 hours after food... "It is our experience that the body seems to resist Essiac at higher doses. Rene Caisse considered high doses a complete waste of the remedy and risked the possibility of stimulating over-detoxification crises."Buying the individual herbsIf you wish to buy the individual herbs (not recommended) and blend the dry herbs yourself, the amount of the 4 herbs below is the recipe for making about 1 quart of the dry herbs, this is the correct amount of dry herbs necessary to make one forth of Nurse Caisse's recipe. She made a very large amount, we need far less for just one or two people. Once you get your herbs, you will need to blend them according to this recipe and store in a covered glass container in a dark kitchen cabinet. 1 5/8 cups of burdock root (cut)*4 ounces of sheep sorrel herb powdered1 ounce of slippery elm bark powdered1/4 ounce of Turkish rhubarb root powderedNow, be sure when you order your organic herbs from MountainRoseHerbs.com (or other herb supplier) that you order exactly the kind of herb and whether it is cut or powdered... Notice only the BURDOCK ROOT is cut... The others are all powdered (but you must specify powdered when you order).... You will need to order at least the amount below, or you may order more if you wish..1 5/8 cups of burdock root (cut) on the website it does not say "cut" but the description of "BURDOCK ROOT" organic is the cut... Since this is measured in cups and Mountain Rose sells by ounces or pounds, buy 1 Pound and you will have enough for one batch and some left over... http://www.mountainroseherbs.com/search/search.php?refine=y & keywords=burdock+root & x=0 & y=04 ounces of sheep sorrel herb powderedhttp://www.mountainroseherbs.com/search/search.php?refine=y & keywords=sheep+sorrel & x=0 & y=01 ounce of slippery elm bark powderedhttp://www.mountainroseherbs.com/search/search.php?refine=y & keywords=slippery+elm+bark & x=0 & y=01/4 ounce of Turkish rhubarb root powderedhttp://www.mountainroseherbs.com/search/search.php?refine=y & keywords=turkish+rhubarb & x=19 & y=13Below are some important links about Essiac tea... I've also written a bit of information to help you understand the much false information on the Internet aboutSeptember, 2011, I was reading one of Jim Humble's (he discovered MMS) newsletters and he was talking about a current day healer he was impressed with.. I started to research this healer (sorry, forgot his name) and he was mentioning a detox tea that had a good success rate with cancer. I started researching this tea, Essiac tea, a Canadian nurse, Rene Caisse discovered. The more I researched this tea, the more I was impressed at what it could do for those with cancer, including stage 4 patients. And since this tea and nurse Rene Caisse was well known in the Canadian medical community and government, this was the real deal! The only problem, all I could find was it was helpful for cancer, nothing about Lyme... But it sounded so interesting, I decided to try it anyway... Later I found it is good for detoxing the body period! So good for those with chronic diseases (Lyme) and also for healthy people too.There is a tremendous amount of false info on the Internet about this tea, so best to stick with the links I have posted as they are links that are authorized and approved as the original Essiac tea... This 4 herb tea recipe was discovered by Nurse Rene Caisse... If you spell her last name backwards, it is Essiac, the name of the tea! This is a 4 HERB recipe and it is the only one you should use... Others on the Internet say she changed this to an 8 herb recipe, this is FALSE. (She started with an 8 herb tea, but later whittled this down to 4 herbs, it was more effective). What these sellers did was add 4 lower cost herbs to this recipe, and since they sell all 8 herbs mixed together and sell it by the pound, it makes their product much less expensive by adding in some less expensive herbs, lower the amount of the more expensive herbs, but it also dilutes the original recipe.. I almost fell for this until I realized it was a weakened tea. I would never use the 8 herb mix... The real 4 herb tea costs more per pound because it has more of the expensive herbs in it... You can and should buy your own organic herbs from Mountain Rose Herbs (or another good herb supplier) at WAY lower prices and you know you are getting top shelf herbs from them that you know are fresh.. I did find Mountain Rose had the best price on the Sheep Sorrel herb, about $11.00 per pound, many other herb sellers were getting over $30. They also have the freshest herbs!! I highly suggest buying the Essiac Blend for $29.00 Mountain Rose sells, this is really the best way to buy these herbs as they are properly weighed and blended already. I bought my own herbs and mixed them myself, but later found that Mountain Rose sells a "Essiac Blend" the herbs already blended. You can buy the individual herbs from any good herb reseller,however I would only trust Mountain Rose to properly weigh and blend an Essiac Blend. There are other suppliers, but how do you know if they properly blend the herbs? Also, DO NOT buy the capsules, tea bags or tinctures being sold, this tea must be brewed from fresh herbs, boiled and steeped for 12 hours for this tea to be effective. The capsules and tinctures while named Essiac tea ARE NOT Essiac tea.Here are some very good safe sites about the 4 herb tea... Are Essiac capsules and tinctures as effective as Essiac Tea?http://www.healthfreedom.info/Cancer%20Essiac.htm>>>>>The preparation of Essiac is as important as the formula itself. Essiac is a decoction, not an infusion. An infusion is what people make when they put a tea bag in a cup of hot water. Generally speaking, an infusion tends to extract vitamins and volatile oils from leaves and flowers. A decoction is used to extract minerals, bitter components, etc. from hard materials such as roots, bark or seeds by boiling for a few minutes and then allowing the herbs to steep for several hours. Entrepreneurs often sell Essiac imitations in tincture form (herbs in alcohol) or in gelatin capsules; neither form is Essiac because Essiac is a tea and, more specifically, a decoction that must be made in a certain way in order to achieve the kind of results that Nurse Caisse was demonstrating. <<<<<<<ESSIAC INFOhttp://www.healthfreedom.info/essiac_info.htm>>>There is an incredible amount of disinformation about Essiac on the internet. Therefore, if you have arrived here feeling confused from reading the many contradictory claims made by websites that sell Essiac<<<This tells what Essiac tea is.. http://www.healthfreedom.info/what_is_essiac.htmThis is how it was discovered...http://www.healthfreedom.info/Cancer%20Essiac.htmThis proves the original authentic recipehttp://www.healthfreedom.info/Essiac%20formula.htmThis is an affiadavit written by McPherson who helped Nurse Rene Caisse make the tea... NO other recipe should be used!http://www.healthfreedom.info/McPherson%20Affidavit.htmHow does Essiac tea work on cancerhttp://www.healthfreedom.info/Essiac%20tea%20 & %20cancerous%20tumors.htmI Was Canada's Cancer Nursehttp://www.healthfreedom.info/Essiac%20Effective%20Against%20Cancer.htmhttp://www.healthfreedom.info/Essiac%20Tea%20Instructions.htmBest way to store Essiac tea herbs?http://www.healthfreedom.info/Essiac%20storage.htmDosing......http://www.healthfreedom.info/Essiac%20daily%20dosage.htmWhat is Sheep Sorrel Solution?http://www.healthfreedom.info/Sheep%20Sorrel%20Solution.htmWhat types of cancers were successfully treated by Rene M. Caisse?http://www.healthfreedom.info/Rene%20Caisse's%20Essiac%20Successes.htmWill Essiac Tea alone cure cancer?http://www.healthfreedom.info/Essiac%20Cure%20Cancer.htmWhat other conditions did Rene Caisse successfully treat?http://www.healthfreedom.info/Other%20Conditions%20Treated%20by%20Essiac.htmThe Truth About Essiachttp://www.healthfreedom.info/Cancer%20Essiac.htmAffidavitshttp://www.essiacamerica.com/affidavits.aspCancer remissions/testamonieshttp://www.inspire.com/groups/ovarian-cancer-national-alliance/discussion/essiac-tea-and-experiences/http://reneshealthytea.com/essiac-testimonials/http://www.affordable-essiac-tea.com/essiac-testimonials-customers.htmlhttp://healingwithessiactea.com/testimonials.htmhttp://www.essiac-herbal.com/testimonials.asp>> Hi all,> > I have just recently been diagnosed with Lyme disease, after 20 years of symptoms and been misdiagnosed with motor neuron disease (like ALS) for 10 years. Sadly and luckily there is only one doctor in Western Australia where I live that will treat people with chronic Lyme. He has just given me abx for babesia which scares me because I don't know how he diagnosed me with it, he doesn't explain thing very well and it probably didn't help that I had a emotional breakdown in his office. I have never had abx for lyme or babesia before and after doing research and reading lots of post here I'm really worried about starting them and potentially making everything thing worse. > > > The problem is that after reading the posts of this group I am not sure how to get hold of some of the things you guys talk about. Like essiac tea does anyone know where I can get it from, I don't think mountain rose herbs sends to Australia. > > Also trying to get a rife machine, I've sent some email inquiries about doug coils but haven't had responses as yet. I'm not sure if I can get one sent her. Does anyone know who is the best person to contact about one.> > it is really hard getting advice or help in australia because lyme is not well known about and 95% of health practitioners and doctors either don't know about or deny it exists here. But I definitely got bitten in western australia however I don't remember, what I do remember is that my life completely changed at 15 and I just thought it was puberty.> > So any help or advice for me as I start the treatment for Lyme would be appreciated > > > Thx so much > > > Sharee>

[Guest guest]

Hi Sue,

The group uses our own set of frequencies (frx) for Lyme and the coinfections...

432 is used for Lyme and many respond to it...

When you are ready to purchase a machine, I will post my machine list for you...

Just post and let me know or look for it when others post and ask..

The builders will help you get started on your new rife machine, then the group

has support also..

Take care,

Jim

>

> Hi Sylvia

> Apparently in order to use a rife machine effectively, you first have to know

the frequency effective for each of the buglets that you want to kill off. Each

has its own frequency.

> So the treatment seems to be absolutely specific to the disease elements, as

long as you are properly informed of the frequencies, and know which bugs you

actually have.

> I have not yet got a rife machine and am waiting for someone to test which

frequency kills Borrelia, which I hope he will get round to doing this summer.

Then I am planning to buy one, or if possible, hire one. Then of course you need

someone to show you how to use it, and how to know how long and how frequently

you should use it.

> Sue

>

>

> ________________________________

>

> To: Lyme_and_Rife

> Sent: Tuesday, August 7, 2012 2:52 PM

> Subject: New member

>

>

>  

> pparentlyciding which one since I don't really understand the differences of

all the various types even though Ive read up on them.  It's just too

complicated!

> I need something that will be easy to use and understand! That treats lyme and

bartonella and other possible  co-infections.

> Any help is much appreciated!

> Ricci

>

[Guest guest]

I wouldl start lyme not barbesia I tryed barbesia too early and had a relapse of paralysis .

MMS will adress it somewhat and we ramp up very slwoly.

Marie

To: "Lyme_and_Rife " <Lyme_and_Rife > Sent: Sunday, August 12, 2012 9:53 AMSubject: Re: new member

Hi Sharee,

I come form where you are went out of the weel chair and grave I will post today for you what i did to get outof past progressing paralysis that were first diagnosed as MS then as ALS . I did all the reatement of the hearth before I fond the right combination fo rme and it was not antibiotics

Talk to you later to day I am in a hurry now

Kinldy marie

To: "Lyme_and_Rife " <Lyme_and_Rife > Sent: Friday, August 10, 2012 11:51 PMSubject: new member

Hi all,

I have just recently been diagnosed with Lyme disease, after 20 years of symptoms and been misdiagnosed with motor neuron disease (like ALS) for 10 years. Sadly and luckily there is only one doctor in Western Australia where I live that will treat people with chronic Lyme. He has just given me abx for babesia which scares me because I don't know how he diagnosed me with it, he doesn't explain thing very well and it probably didn't help that I had a emotional breakdown in his office. I have never had abx for lyme or babesia before and after doing research and reading lots of post here I'm really worried about starting them and potentially making everything thing worse.

The problem is that after reading the posts of this group I am not sure how to get hold of some of the things you guys talk about. Like essiac tea does anyone know where I can get it from, I don't think mountain rose herbs sends to Australia.

Also trying to get a rife machine, I've sent some email inquiries about doug coils but haven't had responses as yet. I'm not sure if I can get one sent her. Does anyone know who is the best person to contact about one.

it is really hard getting advice or help in australia because lyme is not well known about and 95% of health practitioners and doctors either don't know about or deny it exists here. But I definitely got bitten in western australia however I don't remember, what I do remember is that my life completely changed at 15 and I just thought it was puberty.

So any help or advice for me as I start the treatment for Lyme would be appreciated

Thx so much

Sharee