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Re: Day programs ?/Judy

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Hi Judy,

Yes, when my husband lived at home I had him in a Day Program for a few years.

They allowed him at first to attend half a day three days a week, because he

didn't have the stamina to go a full five day week for a full day. As he

adjusted to the hours and days, we added on more time for him to be there. He

liked the staff and most of the activities they did. They had a bus that would

pick him up and bring him home, but he knew the way from our house to the Day

Program and when the bus turned off the road to pick up other people, it gave my

husband anxiety and he panicked that he was being kidnapped and he refused to

get on the bus anymore, so I drove him each time to the program and picked him

up. There were some days he would refuse to leave the house, I had to play a

game with him to get him out. He liked to go for rides, so I told him we were

going for a ride and then he would get in the car and I would take him to the

program. Once he was there

he was fine and liked it.

Other than the episode with the bus, he liked it. It kept him stimulated instead

of in front of a TV at home, which he could no longer process what was going on,

he just liked to watch the action. He no longer was really into Movies or TV

since he could not process what was happening. He also could not watch things

like Westerns or Military movies, because he would act the part and think he was

being shot or if there was a fire in the movie, he thought there was fire around

him and would panic. Movies became reality, so I told the Day Program he can

only watch family style videos at the Day Program, but no Westerns or Military

Classic Movies, and if they showed those movies, they kept him busy in another

room with another activity that he liked.  I also liked the program, because

they accepted my husband. He could not toilet himself and other programs would

not accept that. They served lunches at the program, but my husband was a picky

eater and

had his favorites that he liked. They gave me the menu for the week and if I

saw something I knew he would not eat, I packed his lunch for that day.

The Day Program had guest speakers on some evenings that were very helpful with

things pertaining to dementia and all the other ailments that people had. I

attended the ones that pertained to my experiences and my needs. They also had a

support group for dementia in the day. While my husband attended, I went to that

a few days a week. They still send me fliers on guest speakers and chairity fund

raisers several years later. They are having a Crab Feed Frund Raiser in a few

weeks.

I hope your mother likes the program as well as my husband liked his, and the

the social activities. It was very good stimulation for him instead of sleeping

all day in front of a TV or in bed.

Jan Colello, San Francisco Bay Area, East Bay

Husband, Jim, dx w/LBD 2003

Deceased, January 2011

 

________________________________

To: LBDcaregivers

Sent: Sunday, January 8, 2012 1:27 PM

Subject: Day programs ?

Hello friends,

I was thinking of enrolling my mother in a recreation program at a local nursing

home in moms neighborhood.

Although she is in the late stages of LBD - She spends most of the day in the

wheel chair watching tv -

I am taking on more work now and long to see mom more socially involved with

other people.....

Has anyone enrolled a loved one in this kind of a program??

All advice or input will be appreciated.

Thank you,

Judy

Judy R Strauss, LMSW, PhD

Area Chair | College of Social Sciences

University of Phoenix

Jersey City Campus  |  100 Town Square Place  |  Suite 305 

Jersey City, NJ 07310

Cell:   

Email: Jrstr@...

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