Re: anxiety/

[Guest guest]

Hi ,

Our LOs can have a reaction to just about anything. And yes, you are right, list

it as an allergy when they do have a reaction to it.

My husband was one that did fine on Seroquel, but had a horrible reaction to

Klonopin and I almost lost him at that time. I was like you, but suggested

not to use Klonopin, because of my fear and experience from it.

In my opinion, it is just a lot of trial and errors to find what medications

they will respond to positively.

Jan Colello, San Francisco Bay Area, East Bay

Husband, Jim, dx w/LBD 2003

Deceased, January, 2011

 

________________________________

To: LBDcaregivers

Sent: Saturday, January 7, 2012 10:16 AM

Subject: Re: anxiety

My husband Bob, had a very bad paranoid delusional reaction that got worse

as they increased his Seroquel dose to try to help with the

hallucinations.  It was so bad that he had to be hospitalized in a locked

psych ward for 3 weeks, and then went to rehab for 21 days.  Now he has

Seroquel listed as an allergy on his chart to make sure no one ever gives

it to him again.  YES Seroquel can increase anxiety and delusions and cause

physical ailments in LBD patients.  I would recommend stopping it and using

Klonopin at bedtime instead.  Please read the attached article about LBD

treatment by Dr. Boeve of Mayo Clinic.

Best Wishes,

Pat M.

> **

>

>

> I have been listening to this list for about three years now and post

> infrequently. I have learned so much from all of you.

>

> My Mom was diagnosed about four years ago with LBD and since then I moved

> both her and my Dad to an assisted living facility nearby. Dad does not

> have dementia so he lives in regular assisted living. Mom is in a locked

> " memory " unit. She has had a lot of trouble understanding why she and Dad

> cannot live in the same room, despite nuemerous conversations. This week,

> after Dad saw his doctor (which is the same doctor Mom sees) he reduced the

> number of visits to Mom in order to protect his own health per doctor's

> order(he has too many problems to go into--suffice it to say he has

> congestive heart failure). Now when Dad does not visit, she has a full

> blown anxiety attack and calls him all upset and is inconsolable. It takes

> a CNA to calm her down. Of course, this just upsets Dad more.

>

> Mom's hallucinations were getting worse so about two weeks ago we gently

> increased her Seroquel. Based on your collective experience, could the

> increase in Seroquel lead to increased anxiety? I know everyone with LBD

> reacts differently, but I could use a bit of guidance. In addition to

> Seroquel Mom is on Exelon, Effexor and Sinimet.

>

> My heart goes out to everyone who recently lost a loved one, or is in the

> final process. I love my Mom, but I wish she could go quickly.

>

> Barbara

> daughter of Betsy, aged 80

>

> 

>