Re: profuse sweating and hyper-ventilating

[Guest guest]

My mom experiences something very similar. We increased her pain meds right

away. She was also put on a low dose of estrogen. I personally think this is a

pain response.

From: Norma

Sent: Thursday, September 15, 2011 8:45 AM

To: LBDcaregivers

Subject: profuse sweating and hyper-ventilating

One of the women in my support has a friend whose husband has LBD. I am

referring her to another doctor and am finding out what meds he is taking, but

wanted to post this to see if anyone else had experienced anything similar.

Thanks:

He is 82 and was diagnosed with Parkinsons four years ago, but he has progressed

so rapidly that he now had dementia as well and I think Lewy body. He can not

walk without aide, dress himself, and sometimes feed himself.The worst part are

the attacks he gets He will break out in a drenching sweat to the point where if

he is on top of a quilt the sheet beneath will be wet.His face will be in a

painful grimace, he will be hyper ventilating his limbs become rigid and be in

spasms. He hears us but does not always respond.These episodes can last from an

hour or more, the longest being 5 1/2 hours The doctors say it is a side effect

of the illness but I have never heard of anyone having this.

[Guest guest]

I had a somewhat similar experience with my wife. She had rolled out of bed,

sweating profusely and flushed. I tried to get her to stand up from a

kneeling position using sturdy folding chairs without success. She denied any

pain, but I was very concerned about the atypical presentation of cardiac events

in women, so I called the paramedics.  Her 12 lead EKG was normal.  Her doc

felt that this was a vasovagal event of some type due to changes in the ANS as

Lewy progresses. 

I know that for me it was a very concerting event. That was several months ago

and luckily there have been no additional events of that nature.  Keeping my

figures crossed.

 

Jeff 

________________________________

To: LBDcaregivers

Sent: Thursday, September 15, 2011 8:45 AM

Subject: profuse sweating and hyper-ventilating

 

One of the women in my support has a friend whose husband has LBD. I am

referring her to another doctor and am finding out what meds he is taking, but

wanted to post this to see if anyone else had experienced anything similar.

Thanks:

He is 82 and was diagnosed with Parkinsons four years ago, but he has progressed

so rapidly that he now had dementia as well and I think Lewy body. He can not

walk without aide, dress himself, and sometimes feed himself.The worst part are

the attacks he gets He will break out in a drenching sweat to the point where if

he is on top of a quilt the sheet beneath will be wet.His face will be in a

painful grimace, he will be hyper ventilating his limbs become rigid and be in

spasms. He hears us but does not always respond.These episodes can last from an

hour or more, the longest being 5 1/2 hours The doctors say it is a side effect

of the illness but I have never heard of anyone having this.

[Guest guest]

The sweating can be due to the disease attacking the portion of the brain that

controls autonomic function like sweating and blood pressure. It is common in

LBD. The rigidity can be connected to rigidity in Parkinson's which is a later

stage issue. It may mean they have been trying to decrease other symptoms such

as hallucination and delusion by decreasing Sinemet. He may have better

movement with smaller more frequent doses of Sinemet. This can be called an

" Off-period " where the Parkinson's drugs are no longer working. Has the doc

explored MSA?

My husband had both excessive sweating and some, but not total rigidity. Both

are common in later stages. I am sorry that your friend has to experience these

things. Nan

>

> One of the women in my support has a friend whose husband has LBD. I am

referring her to another doctor and am finding out what meds he is taking, but

wanted to post this to see if anyone else had experienced anything similar.

Thanks:

>

> He is 82 and was diagnosed with Parkinsons four years ago, but he has

progressed so rapidly that he now had dementia as well and I think Lewy body. He

can not walk without aide, dress himself, and sometimes feed himself.The worst

part are the attacks he gets He will break out in a drenching sweat to the point

where if he is on top of a quilt the sheet beneath will be wet.His face will be

in a painful grimace, he will be hyper ventilating his limbs become rigid and be

in spasms. He hears us but does not always respond.These episodes can last from

an hour or more, the longest being 5 1/2 hours The doctors say it is a side

effect of the illness but I have never heard of anyone having this.

>

[Guest guest]

I've heard of people in our local atypical parkinsonism support group having

these sorts of episodes. (It's not unique to Lewy Body Dementia.) The DLB

diagnostic criteria describes it as " transient, unexplained loss of

consciousness. "

>

> One of the women in my support has a friend whose husband has LBD. I am

referring her to another doctor and am finding out what meds he is taking, but

wanted to post this to see if anyone else had experienced anything similar.

Thanks:

>

> He is 82 and was diagnosed with Parkinsons four years ago, but he has

progressed so rapidly that he now had dementia as well and I think Lewy body. He

can not walk without aide, dress himself, and sometimes feed himself.The worst

part are the attacks he gets He will break out in a drenching sweat to the point

where if he is on top of a quilt the sheet beneath will be wet.His face will be

in a painful grimace, he will be hyper ventilating his limbs become rigid and be

in spasms. He hears us but does not always respond.These episodes can last from

an hour or more, the longest being 5 1/2 hours The doctors say it is a side

effect of the illness but I have never heard of anyone having this.

>

[Guest guest]

Norma: My husband suffered from what we called Panic Attacks. He would rip

anything he had in his hands to shreds, he would tear things apart--as his

watch, or any thing at hand. His blood pressure was elevated dangerously, I

think, he would be panting and breathless and for quite a while there was

nothing we could figure out to help it and the doctor had no solutions. The

longest one he ever had tho, went on for over 3 hours and convinced his

sisters that I needed more help taking care of him. It was so pitiful to

watch. One day when my son had him out for a ride, he started an attack and

Pete said, " here Dad, chew some gum " . Dad took it and chewed it

frantically but calmed right down. We never had a clue why but very often it

would work to calm him down. We all began keeping gum with us constantly. It

didn't always work like the day his sisters were there visiting but what a

blessing it was when it did work. It is worth a try! The doctor could not

explain it either. When we finally placed him in a nursing home, they used

the gum to help him too. Good luck to your friend. I am sorry she finds

herself in our boat.

Leona: Caregiver for husband Ray, age 68, diagnosed 2/04 with Parkinson's

Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill

slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing

Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have

ever done in my life, however. 3/19/09 transferred to Samaritan Keep NH in

Watertown, NY closer to home. He passed peacefully at 5:18 am on April 14,

2009. I am handling it OK.

'Love is not finding someone to live with; it's finding someone you don't

want to live without.'