Re: Re: The part of autism I hate

[Guest guest]

Channing - I think and hope you got all of my responses through P.T. on the

other group about your related allergy post too.

As long as I'm here on this string: I don't like the labels, assumptions, or

how inaccurate they often are, and how completely mis-understood auditory

and/or word retrieval issues are, or how shocked people can get when you

share any of your " developmental " past with them, lol, any of which can

sometimes cause a little anxiety over social meeting...and did I mention all

the inaccurate assumptions...

On Sat, Jun 25, 2011 at 5:09 PM, channingashbaugh@... <

channing28270@...> wrote:

> I have Very bad GERD (Also Known As ACID Reflux or heartburn.

>

>

>

channing

>

> > > >

> > > > Hi guys,

> > > >

> > > > Please let me know if we are alone.

> > > >

> > > > Both me and my husband have been comfirmed as having Celiac Disease.

> > > > This has happened in the last two years. The problem is the gluten

> > > > free diet that they prescribed for us never worked. In order to

> > > > regain health we have to eat much more restricted.

> > > >

> > > > All my life I have suffered from GI issues. Often being called

> > > > hyperchondriac eventhough my pain was real. I have also had mental

> > > > illness that they now contribute to the Celiac Disease and

> > > > malabsorption. As a baby, it started as Colic, turned to

> > > > Colitis...then IBS (Iritable Bowl Disorder), then GERD, malabs

> > > > (reflux and heart burn)...as I grew older everyone began to ignore

> > > > me...they could helpme...so they ignored me. The pain was

> > > > debilitating. I learned to use my autism to my advantage and escape

> > > > my body. It was no longer a safe place to reside.

> > > >

> > > > Sadly to say...when I married my AS husband, plus being on the

> > > > spectrum myself....we had ASD kids...with gut troubles too! The

> > > > books " Breaking The Vicious Cycle Intestinal Health Through Diet " By

> > > > Elaine Gottschal...and " Gut and Psychology Snydrome " By Dr. Natacha

> > > > Cambell-Mc Bride....have been a God send to my family. These two

> > > > women explain why! It made sense to us. Not saying that this would

> > > > help every one on the spectrum...but certainly our family.

> > > >

> > > > We now eat differently. NOT A CURE FOR AUTISM...but helping our Gi

> > > > pain, depression, anxiety and ADD...and more. But...we are still very

> > > > ASD....so this is good with me!

> > > >

> > > > At times the pain has been so bad, I would have prefered to have been

> > > > shot by a riffle. This way of eating has taken most of our suffering

> > > > away. I know for a doubt the connection that some of us on the

> > > > spectrum have with gut issues. Yet nobody (doctors and research)

> > > > know what to do about us, nor do they care, nor do they agree with

> > > > the above two books taht I just mentioned! They claim that these

> > > > books are all antidotal evidence...........they go on......

> > > > blah...blah...blah...blah....blah....n To me it's like the teacher

> > > > on Charlie Brown!

> > > >

> > > > NOW why don't they figure out what is going on in the guts of ASD

> > > > people and stop trying to cure the autism out of us!...if they did

> > > > this they may get some where! It is a known fact that Celiac Disease

> > > > and other related Malbasortpion syndromes cause some of the symptoms

> > > > that we suffer from.....it is about time they got with it!

> > > >

> > > > Being autistic is not the problem with us....it is the physical

> > > > suffering that goes with it! Our daughter has suffered the most!

> > > > This makes me one angry mother lion!

> > > >

> > > > Would love to hear your two cents and your pain and suffering.

> > > >

> > > > Ant and Aliens

> > > >

> > >

> > >

> > >

> >

> >

> >

> > --

> > My private email address: susie4uk2006@...

> >

> >

> > My group email: susannah2005uk@...

> >

> > My Website at: http://susie4uk2005.tripod.com/

> >

> >

> >