Guest guest Posted June 25, 2011 Report Share Posted June 25, 2011 I have Very bad GERD (Also Known As ACID Reflux or heartburn. channing > > > > > > Hi guys, > > > > > > Please let me know if we are alone. > > > > > > Both me and my husband have been comfirmed as having Celiac Disease. > > > This has happened in the last two years. The problem is the gluten > > > free diet that they prescribed for us never worked. In order to > > > regain health we have to eat much more restricted. > > > > > > All my life I have suffered from GI issues. Often being called > > > hyperchondriac eventhough my pain was real. I have also had mental > > > illness that they now contribute to the Celiac Disease and > > > malabsorption. As a baby, it started as Colic, turned to > > > Colitis...then IBS (Iritable Bowl Disorder), then GERD, malabs > > > (reflux and heart burn)...as I grew older everyone began to ignore > > > me...they could helpme...so they ignored me. The pain was > > > debilitating. I learned to use my autism to my advantage and escape > > > my body. It was no longer a safe place to reside. > > > > > > Sadly to say...when I married my AS husband, plus being on the > > > spectrum myself....we had ASD kids...with gut troubles too! The > > > books " Breaking The Vicious Cycle Intestinal Health Through Diet " By > > > Elaine Gottschal...and " Gut and Psychology Snydrome " By Dr. Natacha > > > Cambell-Mc Bride....have been a God send to my family. These two > > > women explain why! It made sense to us. Not saying that this would > > > help every one on the spectrum...but certainly our family. > > > > > > We now eat differently. NOT A CURE FOR AUTISM...but helping our Gi > > > pain, depression, anxiety and ADD...and more. But...we are still very > > > ASD....so this is good with me! > > > > > > At times the pain has been so bad, I would have prefered to have been > > > shot by a riffle. This way of eating has taken most of our suffering > > > away. I know for a doubt the connection that some of us on the > > > spectrum have with gut issues. Yet nobody (doctors and research) > > > know what to do about us, nor do they care, nor do they agree with > > > the above two books taht I just mentioned! They claim that these > > > books are all antidotal evidence...........they go on...... > > > blah...blah...blah...blah....blah....n To me it's like the teacher > > > on Charlie Brown! > > > > > > NOW why don't they figure out what is going on in the guts of ASD > > > people and stop trying to cure the autism out of us!...if they did > > > this they may get some where! It is a known fact that Celiac Disease > > > and other related Malbasortpion syndromes cause some of the symptoms > > > that we suffer from.....it is about time they got with it! > > > > > > Being autistic is not the problem with us....it is the physical > > > suffering that goes with it! Our daughter has suffered the most! > > > This makes me one angry mother lion! > > > > > > Would love to hear your two cents and your pain and suffering. > > > > > > Ant and Aliens > > > > > > > > > > > > > -- > My private email address: susie4uk2006@... > > > My group email: susannah2005uk@... > > My Website at: http://susie4uk2005.tripod.com/ > > > Quote Link to comment Share on other sites More sharing options...
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