Re: Hyperlexia????

[Guest guest]

Hello

2008/6/11 Angie :

> Need some advice and help.....

> A friend of my husband's approached us(knowing our daughter has

> autism)

> and said their daughter had just been diagnosed with hyperlexia and

> ADHD. The doc didn't want to use the work autism because this little

> girl appears rather normal when you meet her. I don't know what to

> tell them. This is what her mother emailed me as a description. The

> little girl is 6.......

" Appearing (so called) normal " sounds familar. i can " appear (so

called) normal " when people meet me.

>

> Well, let me give the latest on Mya. We went to a CHKD doctor, she was

> diagnosed with Hyperlexia. Have you heard of that? She is on Focalin,

> that is for ADHD. Per her teacher is it working but from what we see

> when she gets home from school, she is still very active. She is not

> comprehending the who, what, why, and how questions. She is very

> intelligent, already reading on a second grade reading level, loves

> math. She is a very happy child, loves to play but most of he time off to

herself.

>

> I have a few thoughts, but I wanted your opinions too. This is a great

> family. I want to help point them in the right direction, but I have

> no idea where to even begin on making suggestions.

> Any thoughts??

i would say use the same treatment in the " children with starving

brains book " . i know ADHD can be exabberated by sleep deprivation so

personally i would sort the sleep out 1st with 5htp. Then i would add

in omega oils, b6, magnesium and calcium. Zinc can be included but has

to be separate from mag/cal (at least 2 hours). Probiotics can also be

helpful.

Some parents have found the gf/cf dye free/aspartame free/msg free

diet has helped thier hyperactive kids.

> thanks,

> Angie

--

is

[Guest guest]

is,

thanks for your help. I will pass this info on to them.

Angie

is wrote:

Hello

2008/6/11 Angie :

> Need some advice and help.....

> A friend of my husband's approached us(knowing our daughter has

> autism)

> and said their daughter had just been diagnosed with hyperlexia and

> ADHD. The doc didn't want to use the work autism because this little

> girl appears rather normal when you meet her. I don't know what to

> tell them. This is what her mother emailed me as a description. The

> little girl is 6.......

" Appearing (so called) normal " sounds familar. i can " appear (so

called) normal " when people meet me.

>

> Well, let me give the latest on Mya. We went to a CHKD doctor, she was

> diagnosed with Hyperlexia. Have you heard of that? She is on Focalin,

> that is for ADHD. Per her teacher is it working but from what we see

> when she gets home from school, she is still very active. She is not

> comprehending the who, what, why, and how questions. She is very

> intelligent, already reading on a second grade reading level, loves

> math. She is a very happy child, loves to play but most of he time off to

herself.

>

> I have a few thoughts, but I wanted your opinions too. This is a great

> family. I want to help point them in the right direction, but I have

> no idea where to even begin on making suggestions.

> Any thoughts??

i would say use the same treatment in the " children with starving

brains book " . i know ADHD can be exabberated by sleep deprivation so

personally i would sort the sleep out 1st with 5htp. Then i would add

in omega oils, b6, magnesium and calcium. Zinc can be included but has

to be separate from mag/cal (at least 2 hours). Probiotics can also be

helpful.

Some parents have found the gf/cf dye free/aspartame free/msg free

diet has helped thier hyperactive kids.

> thanks,

> Angie

--

is

[Guest guest]

hi... my son is hyperlexic.. addicted to letters..numbers.. and logos... he

is 16 and this began..or I noticed it around 2. The criteria is specific and

easy to recognize. and it is mixed iwth the pdd symptoms. this is a language

learning disorder.. read sally bligh and phyllis kupperman... SLP's with 30

years experience research and working with hyperlexic kids. The center for

speech and language in elmhurst, ILL is where you can call for advice. The

book.. reading too soon.. by susan martins miller is a MUST READ. speech and

language development is cruical depending on the written word... hyperlexics

MUST

READ and MUST HAVE ALL questions wriiten out for them and with the answer

provided.. you must put the words in their mouths.. think of a foreign kid

learning the english language except the hyperlexic kid has no native language.

categorize .. make lists and label everything in the house so the hyperlexic may

study it.. and you will see.. they will stare at words. my son would make

letters out of spaghetti. he would carry tons of plastic letters everywhere we

went.. our refridgerator was full of new words he would spell after we came

home. this was a two year old baby. he knew the ABC;s random and in rote..

all self taught. comphrension was low, a major criteria in order to have a dx of

hyperlexia... high decoding and low comprehension. label and written lists

of the days events. l. get up. 2. get dressed. 3. eat breakfast 4. brush

teeth.. ect.. tons of structured lists are crucial for hyperlexics to make

sense

of their world. all teachers and SLP's and OT's must must have everything

written out for them. the speech center has a book store where you may order

videos or dvd's of speech therapy session on how to work with hyperlexics. they

learn differently than other kids on the spectrum. the literature does state a

positive prognosis. good luck.. Lia

**************Vote for your city's best dining and nightlife. City's Best

2008. (http://citysbest.aol.com?ncid=aolacg00050000000102)

[Guest guest]

Thanks for the info. My son is hyperlexic too.

Hannifin (Adam's Mom - age 3)

Subject: Re: Hyperlexia????

To: csb-autism-rx

Date: Thursday, June 12, 2008, 2:13 AM

hi... my son is hyperlexic.. addicted to letters..numbers. . and

logos... he

is 16 and this began..or I noticed it around 2. The criteria is specific and

easy to recognize. and it is mixed iwth the pdd symptoms. this is a language

learning disorder.. read sally bligh and phyllis kupperman... SLP's with 30

years experience research and working with hyperlexic kids. The center for

speech and language in elmhurst, ILL is where you can call for advice. The

book.. reading too soon.. by susan martins miller is a MUST READ. speech and

language development is cruical depending on the written word... hyperlexics

MUST

READ and MUST HAVE ALL questions wriiten out for them and with the answer

provided.. you must put the words in their mouths.. think of a foreign kid

learning the english language except the hyperlexic kid has no native language.

categorize .. make lists and label everything in the house so the hyperlexic may

study it.. and you will see.. they will stare at words. my son would make

letters out of spaghetti. he would carry tons of plastic letters everywhere we

went.. our refridgerator was full of new words he would spell after we came

home. this was a two year old baby. he knew the ABC;s random and in rote..

all self taught. comphrension was low, a major criteria in order to have a dx of

hyperlexia.. . high decoding and low comprehension. label and written lists

of the days events. l. get up. 2. get dressed. 3. eat breakfast 4. brush

teeth.. ect.. tons of structured lists are crucial for hyperlexics to make

sense

of their world. all teachers and SLP's and OT's must must have everything

written out for them. the speech center has a book store where you may order

videos or dvd's of speech therapy session on how to work with hyperlexics. they

learn differently than other kids on the spectrum. the literature does state a

positive prognosis. good luck.. Lia

************ **Vote for your city's best dining and nightlife. City's Best

2008. (http://citysbest. aol.com?ncid= aolacg0005000000 0102)

[Guest guest]

Lia and ,

I am interested in this discussion on hyperlexia because I have some

friends whose 25 year old daughter was diagnosed with hyperlexia years

ago. How is this connected to autism? They have pursued many therapies

over the years, but nothing biomedical, to my knowledge. Are there some

commonalities between autism and hyperlexia in terms of the effect on

the body? If you have any references or resources to direct me to, I

will forward to them. Their daughter graduated from college, with a lot

of assistance, and now works in an office as an administrative

assistant. She is extremely organized and detail oriented, but

struggles with social cues and anything to do with math.

Thanks for your help-

Yerly

Austin, TX

[Guest guest]

hi..check out the american hyperlexia association... read the articles

there.... the center for speech and language is located in elmhurst , ILL...

phyllis kupperman is a vetran SLP working with hyperlexic kids.. there is great

debate if hyperlexia is part of the spectrum? can be dually dx with both? read

and see for yourself... hyperlexic kids look and act differently than kids

with autism. at least my son did.. and many AS teachers always said.. " I never

had a kid like him " .... Lia

**************Vote for your city's best dining and nightlife. City's Best

2008. (http://citysbest.aol.com?ncid=aolacg00050000000102)

[Guest guest]

As a reading specialist, I would recommend the following book to help

teach reading comprehension. The activities are hands-on and very

visual. They helped my son.

McGregor, Tanny. (2007). Comprehension connections: Bridges to

strategic reading. Portsmouth, NH: Heinemann.

> is,

> thanks for your help. I will pass this info on to them.

>

> Angie

>

> is wrote:

> Hello

>

> 2008/6/11 Angie :

> > Need some advice and help.....

> > A friend of my husband's approached us(knowing our daughter has

> > autism)

> > and said their daughter had just been diagnosed with hyperlexia and

> > ADHD. The doc didn't want to use the work autism because this little

> > girl appears rather normal when you meet her. I don't know what to

> > tell them. This is what her mother emailed me as a description. The

> > little girl is 6.......

>

> " Appearing (so called) normal " sounds familar. i can " appear (so

> called) normal " when people meet me.

> >

> > Well, let me give the latest on Mya. We went to a CHKD doctor, she

> was

> > diagnosed with Hyperlexia. Have you heard of that? She is on

> Focalin,

> > that is for ADHD. Per her teacher is it working but from what we see

> > when she gets home from school, she is still very active. She is not

> > comprehending the who, what, why, and how questions. She is very

> > intelligent, already reading on a second grade reading level, loves

> > math. She is a very happy child, loves to play but most of he time

> off to herself.

> >

> > I have a few thoughts, but I wanted your opinions too. This is a

> great

> > family. I want to help point them in the right direction, but I have

> > no idea where to even begin on making suggestions.

> > Any thoughts??

>

> i would say use the same treatment in the " children with starving

> brains book " . i know ADHD can be exabberated by sleep deprivation so

> personally i would sort the sleep out 1st with 5htp. Then i would add

> in omega oils, b6, magnesium and calcium. Zinc can be included but has

> to be separate from mag/cal (at least 2 hours). Probiotics can also be

> helpful.

>

> Some parents have found the gf/cf dye free/aspartame free/msg free

> diet has helped thier hyperactive kids.

>

> > thanks,

> > Angie

>

> --

> is

>

>

[Guest guest]

>

> Need some advice and help.....

> A friend of my husband's approached us(knowing our daughter has

> autism)

> and said their daughter had just been diagnosed with hyperlexia and

> ADHD. The doc didn't want to use the work autism because this

little

> girl appears rather normal when you meet her. I don't know what to

> tell them. This is what her mother emailed me as a description. The

> little girl is 6.......

>

> Well, let me give the latest on Mya. We went to a CHKD doctor, she

was

> diagnosed with Hyperlexia. Have you heard of that? She is on

Focalin,

> that is for ADHD. Per her teacher is it working but from what we see

> when she gets home from school, she is still very active. She is not

> comprehending the who, what, why, and how questions. She is very

> intelligent, already reading on a second grade reading level, loves

> math. She is a very happy child, loves to play but most of he time

off

> to herself.

>

> I have a few thoughts, but I wanted your opinions too. This is a

great

> family. I want to help point them in the right direction, but I

have

> no idea where to even begin on making suggestions.

> Any thoughts??

> thanks,

> Angie

>

Angie,

My personal advice is to give her a book of CSB and ask her to begin

GFCFSF immediately and find a Dan doctor to continue the treatment.

My son went from moderate to severe autism (non verbal) to almost

fully recovered in less than three years, following extrictly Dan

protocol. My son is a happy boy, also loves letters and numbers and

went throught the stage of not understanding anything. Diet,

suplements, chelation, Mb12 and now LDN, brought him back. When he

was in that stage I trained him to answer the How are you? question

with: I'm happy! Now, he thinks before he answers and will express

his feelings on his own, he's just turned four and he reads third

grade level and understands what he reads and already mastered

adition, substraction, multiplication and division are almost done

too.

I don't believe that any behavioral therapy can be truly succesful if

the child is not feeling good. That's just my own personal opinion,

hope it helps.

[Guest guest]

great advice....I will pass that on. Thanks for the response

From: raven_drums & lt;manefuto@... & gt;

Subject: Re: Hyperlexia????

To: csb-autism-rx

Date: Sunday, June 15, 2008, 3:14 AM

& gt;

& gt; Need some advice and help.....

& gt; A friend of my husband's approached us(knowing our daughter has

& gt; autism)

& gt; and said their daughter had just been diagnosed with hyperlexia and

& gt; ADHD. The doc didn't want to use the work autism because this

little

& gt; girl appears rather normal when you meet her. I don't know what to

& gt; tell them. This is what her mother emailed me as a description. The

& gt; little girl is 6.......

& gt;

& gt; Well, let me give the latest on Mya. We went to a CHKD doctor, she

was

& gt; diagnosed with Hyperlexia. Have you heard of that? She is on

Focalin,

& gt; that is for ADHD. Per her teacher is it working but from what we see

& gt; when she gets home from school, she is still very active. She is not

& gt; comprehending the who, what, why, and how questions. She is very

& gt; intelligent, already reading on a second grade reading level, loves

& gt; math. She is a very happy child, loves to play but most of he time

off

& gt; to herself.

& gt;

& gt; I have a few thoughts, but I wanted your opinions too. This is a

great

& gt; family. I want to help point them in the right direction, but I

have

& gt; no idea where to even begin on making suggestions.

& gt; Any thoughts??

& gt; thanks,

& gt; Angie

& gt;

Angie,

My personal advice is to give her a book of CSB and ask her to begin

GFCFSF immediately and find a Dan doctor to continue the treatment.

My son went from moderate to severe autism (non verbal) to almost

fully recovered in less than three years, following extrictly Dan

protocol. My son is a happy boy, also loves letters and numbers and

went throught the stage of not understanding anything. Diet,

suplements, chelation, Mb12 and now LDN, brought him back. When he

was in that stage I trained him to answer the How are you? question

with: I'm happy! Now, he thinks before he answers and will express

his feelings on his own, he's just turned four and he reads third

grade level and understands what he reads and already mastered

adition, substraction, multiplication and division are almost done

too.

I don't believe that any behavioral therapy can be truly succesful if

the child is not feeling good. That's just my own personal opinion,

hope it helps.