Re: Endoscopy/ Colonoscopy - Result eosinophiclic enteritis - ?????

[Guest guest]

They will probably recommend elemental formula by mouth before tube

feeding. If you can maintain a few foods orally in order to maintain

the ability to eat normally, it is worth doing so. If your son loses

foods easily (that's what's driving the increase in eosinophils), it

would be a good idea to do the following:

- eliminate totally ALL foods he's allergic/reactive to

- rotate the remaining foods on at least a 3 days on/3 days off

schedule to minimize the chance he'll develop an allergy to them

- start supplementing with an elemental formula like Neocate to calm

his gut and minimize further inflammation

We did this and have been able to maintain an oral diet that

eventually expanded. My son, for what it's worth, is one of those

rare kids who cannot tolerate the elemental formulas, he's sensitive

to the food base (corn syrup). So we didn't have much choice except

to get really strict about diet. It's worked. Calming the

inflammation with spironolactone has also helped, my son's

inflammation markers have normalized in 6 months.

I'm not on list much so feel free to email me if you have questions.

Suzanne

>

> Hi

>

> My little boy had an Endos/ Colonoscopy 6 weeks ago and I have just

> received the report of the biopsy. It suggests he has eosinophiclic

> enteritis.

> They didn't find much wrong anywhere else apart from the caecum and

> transverse colon, here is the part that it is really worrying me:

>

> " Sections from the ileum and rectum were within normal limits.

> Sections from the caecum and transverse colon showed mild nom

> specific inflammation with infiltrate containing a prominent number

> of eosinophils, which raises the possibility of the diagnosis of

> eosinophiclic enteritis. " The Gastroenterologist sent me the report

> with a return appointment for August. I just can't believe it!

>

> When I put that condition in the search in googles, it did not look

> good. My little one fits in (but it also fits many of our

children?).

> I am not sure on what to think. My little boy has been getting more

> and more limited with what is is allowed to eat. At the moment he

can

> just have around 10 different foods. So, the prognosis is that he

may

> get to a point where is is tub fed???? Has anyone in the group had

> any experience like that? I try to reassure me that doctor don't

> know much about autism and what comes with it. I always have

> associated

> his problems yeast related but apparently children with this

problem

> can't get rid of intestinal infection.

>

> Any suggestions? I know there are people in this group very

> knowledgeable,

>

> Thanks

>

>

> Vilma

>