Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Anne: If it is OK with you I will forward this to my friend and colleague Dr. Jim Neubrander and his brother Rick who manages his HBOT systems and see if they can give you some info re specifications. It would help if you would find out what kind of chamber it is, so they can give specific helpful info. Dr. JM --- nimur62 wrote: > In our local hospital there is an hyper baric oxygen > chamber which I believe is not being > used(for anything) it was intended to be used for > ulcers and various wounds etcera I know in > Dr McCandless's book she advises using a particular > chamber (hard/soft)and spoke about > pressures etc.I have given the teachers at school a > loan of my book is it possible to get > Dr.McCandless's specificiations regarding the HBOT > for autism as I am thinking of > approaching the hospital for use of their equipment. > > > Thanks in advance > Regards > Anne McCarthy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Anne.. not to be discouraging since I hope it can work out but the hospitals I work with all have one too and they do use them but are not willing to do off label use due to malpractice and liability insurance. I am aware of one physician whom they let bring their own child (done " quietly " ) in one location but it was after years of having experience with his credibility and only if done after hours. Some of the hospitals I have staffed have told me that it is just not possible to the public due to their liability and if they are not covered and it is off label use I can see that it is definitely a risk that they would not take. I'd love to hear if you have success and what you needed to do in order to get them comfortable with it. Best wishes! > > > In our local hospital there is an hyper baric oxygen > > chamber which I believe is not being > > used(for anything) it was intended to be used for > > ulcers and various wounds etcera I know in > > Dr McCandless's book she advises using a particular > > chamber (hard/soft)and spoke about > > pressures etc.I have given the teachers at school a > > loan of my book is it possible to get > > Dr.McCandless's specificiations regarding the HBOT > > for autism as I am thinking of > > approaching the hospital for use of their equipment. > > > > > > Thanks in advance > > Regards > > Anne McCarthy > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2008 Report Share Posted August 3, 2008 Hello everyone, Can anyone confirm this? Is it the case that if you dive longer at 1.3 or 1.5 ATA (say, for two hours) then the impact is equivalent to diving for less time (say, for one hour) at 1.75. Is that right? We dive at 1.75 but I want to get a home chamber and it won't go deeper than 1.5. If the above is true then we could continue at 1.75 just by staying in the chamber for longer. If it's not true than rest assured I'm not planning to " hotrod " a home chamber to go deeper. We'll just have to keep trekking to the chamber we currently use at an MS treatment centre, working around our hayfever as best we can (it's a killer). Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 the difference between soft and hard chamber hbot is a matter of quite a bit of controversy! All I can tell you is my personal experience with my 3 yr old son. He has done 400 mild hbot dives in our home chamber over the last 1.5 years, with very little improvement in his degree of autism. Now, to be clear, he certainly has improved during that time, but most of the gains were very clearly linked to other protocols (such as IV chelation) that we were doing concurrently. If all that hbot was helping much, it was just playing a supportive role at best. My son is better than he was, but is still considered low functioning. After 300 mild dives, we did a set of 10 hard chamber dives (1.5 ATA, 100% O2) in one week. After about 3 dives, my son improved virtually overnight, especially his expressive language and verbal imitation ability and inclination. So for my son, there is a big difference between mild and hard. With regard to how they equate, my son went through a growth spurt a few months ago during a one week period. During that time, all he wanted to do every afternoon was get in the chamber and nap for 2 or 3 hours each day. At the end of his third day of doing this, (about 8 hours total over 3 days, 1.3 ATA with compressed O2 piped in) he got out of the chamber and started doing this particular stimming that he usually only does after hard chamber dives, and we actually saw some mild verbal improvements in him as well. A couple months later this happened again, because he was not sleeping well at night and was napping in hbot during the day. The same pattern repeated itself after about 9 hours total. Now this is a very unscientific form of comparison, but for my son it seems clear that it takes quite a few hours of mild hbot to equal even one hour of higher pressure hard chamber hbot. Personally, if I had the money, time, and access, I would choose hard chamber over soft in a heartbeat. But of course, every child is different, and I believe this to be true with regard to hbot responses as well. Also keep in mind that my son is a bit of tough nut, so he is simply harder to " reach " than many other kids. IMHO mild hbot is a great intervention for many kids, and we have certainly benefited from having a chamber at home in several ways. It is good at preventing Clostridia overgrowth (not so good at killing an existing infestation though), it has improved some of my son's sensory problems, and I believe it has played a big role in why his very high oxidative stress (though not his inflammation) is now normal. But it did not significantly improve his terrible gut or his severe autism despite his young age and intensity of treatment, so that has been a bit disappointing. For my son, hard hbot seems more promising at this point. > > > > Hello everyone, > > Can anyone confirm this? Is it the case that if you dive longer at 1.3 or > 1.5 ATA (say, for two hours) then the impact is equivalent to diving for > less time (say, for one hour) at 1.75. Is that right? We dive at 1.75 but > I want to get a home chamber and it won't go deeper than 1.5. If the above > is true then we could continue at 1.75 just by staying in the chamber for > longer. If it's not true than rest assured I'm not planning to " hotrod " a > home chamber to go deeper. We'll just have to keep trekking to the chamber > we currently use at an MS treatment centre, working around our hayfever as > best we can (it's a killer). > > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2008 Report Share Posted August 8, 2008 , Thank you so much for sharing your experience. We recently purchased a soft chamber and have done 32 hours at 1.3 ATA with compressed O2 piped in. Not surprisingly, we havn't seen any improvements (from the HBOT) yet, but I've been contemplating what our next move will be regarding hard dives, for instance after 40 or 50 hours. After spending so much money on an in-home chamber, it's difficult to think about spending $75 a session to go to a clinic for the hard dives (and it's over an hour away). Your story is inspiring and, since Dr. Neubrander's protocol seems to call for both hard and soft chamber dives, perhaps I need to start planning our clinic visits. Our other option - I actually purchased the valves to convert our soft chamber to 1.5 ATA. Everyone seems to be saying that's not a good idea, so I'm really hesitant to go that route. I may see if I can return the adaption. However, I'd be curious to hear if anyone else has converted their soft chambers to 1.5 with or without problems. Also, my son is 7 1/2 and relatively high functioning. All the HBOT stories I've heard or read about seem to involve relatively low functioning children. Has anyone seen improvements in higher functioning children as well? Thanks again for sharing. > > > > > > > > Hello everyone, > > > > Can anyone confirm this? Is it the case that if you dive longer at > 1.3 or > > 1.5 ATA (say, for two hours) then the impact is equivalent to diving > for > > less time (say, for one hour) at 1.75. Is that right? We dive at > 1.75 but > > I want to get a home chamber and it won't go deeper than 1.5. If the > above > > is true then we could continue at 1.75 just by staying in the > chamber for > > longer. If it's not true than rest assured I'm not planning to > " hotrod " a > > home chamber to go deeper. We'll just have to keep trekking to the > chamber > > we currently use at an MS treatment centre, working around our > hayfever as > > best we can (it's a killer). > > > > Thanks > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 Hello All, Last year we did hard chamber, 100% at 1.5 40 dives in 4 week period with minimal gains. Just finished Dr. Ns soft chamber diagnostic protocol- 90hrs in 30 day period and saw good gains in the first 2 weeks, but saw the biggest gains- huge- meaning motor, verbal, 4 weeks AFTER the month was done. Our daughter is 4yo with no diagnosis- seemed like a mix of CP and autism, but it seems as if her primary issue is dyspraxia. We did hard chamber first since we were leaning toward CP type symptoms (could not walk at the time). So we were skeptical of the soft chamber. Once we started Dr. N's B12 protocol then added soft chamber, that is when we saw the gains. Kathy and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 Hi Kathy and - Thank you for the update. We just started the hard chamber but we're doing the 40 dives in 2 months. My son sounds similar to your daughter, CP was the first diagnosis and Autism was the second. So, thank you for your input. I will be sure to post if I see gains. The only thing that I've noticed so far after 6 dives (noticed after the 3rd) he is more aware - looking towards everyone as they speak. Not typical for him. Next, we'll probably get a soft chamber. Laureen Quoting Kolackovsky : > Hello All, > > Last year we did hard chamber, 100% at 1.5 40 dives in 4 week period > with minimal gains. > > Just finished Dr. Ns soft chamber diagnostic protocol- 90hrs in 30 > day period and saw good gains in the first 2 weeks, but saw the > biggest gains- huge- meaning motor, verbal, 4 weeks AFTER the month > was done. > > Our daughter is 4yo with no diagnosis- seemed like a mix of CP and > autism, but it seems as if her primary issue is dyspraxia. We did > hard chamber first since we were leaning toward CP type symptoms > (could not walk at the time). So we were skeptical of the soft > chamber. Once we started Dr. N's B12 protocol then added soft > chamber, that is when we saw the gains. > Kathy and > > > > > > > ------------------------------------ > > Many frequently asked questions and answers can be found at > <http://forums.autism-rxguidebook.com/default.aspx> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 that sounds like a response! Look at Dr. Neubrander's web site. He has a PDRP- I think it is parent directed report form. On that form, you will see a list of symptoms, changes to observe for. Kathy and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 Kathy and - Thanks for pointing that out to me. I forgot he had one of those on his site. I'm going to track progress with it. Thanks for sharing! Laureen Quoting Kolackovsky : > that sounds like a response! Look at Dr. Neubrander's web site. He > has a PDRP- I think it is parent directed report form. On that form, > you will see a list of symptoms, changes to observe for. > > Kathy and > > > > > ------------------------------------ > > Many frequently asked questions and answers can be found at > <http://forums.autism-rxguidebook.com/default.aspx> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 Dr. McCandless does not have a website with all the CSB info posted on it. The book will be the best (only) resource. Moderator > > Hi, does anyone know where I can find the protocols > for HBOT on the starvingbrains website as per page 199 > in the latest CWSB book... ( diagnostic and repeat use) > thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 Those protocols are mentioned in Dr. Neubrander's chapter on HBOT and are listed in his website, not mine. www.drneubrander.com Dr. JM Subject: Re: hbot To: csb-autism-rx Date: Friday, September 18, 2009, 12:27 AM Dr. McCandless does not have a website with all the CSB info posted on it. The book will be the best (only) resource. Moderator > > Hi, does anyone know where I can find the protocols > for HBOT on the starvingbrains website as per page 199 > in the latest CWSB book... ( diagnostic and repeat use) > thanks > Quote Link to comment Share on other sites More sharing options...
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