Re: HBOT and regression

[Guest guest]

Sure, more info would probably be good. E is strict SCD, has been for 2 1/2

years with great results. DAN for the same time.. and the ususal suspects for

suppilemtns have been tried.. some with sucess, many with usualy not positive

side effects. She responds diffrently than most. She has the MFTHER677T gene

mutation for what that's worth.

WE have successfully been doing FAR infrared sauna since april, 30 min/ day

She is 500mg ampho-b 4x a day.... really helps. Did the A/F parade and this was

our " beauty Qyeen, and it really seems to be.

Taking probiotics, upped the antioxidents while in the HBOT.

Used the Neubrander protocol 2 1 1/2 hr sessions/ day with 6 hours between for

30 days.

While DOING HBOT has very few symptoms.. we were both just cranky and out of

sorts from the schedule.. I thing we all might go through that.. it's more

intense than it seeems on paper. Espeically when you are doing sauna too. Not

even a lot of die off type poops or anything.

then we stopped and things have just gotten worse and worse.

I am suspecting bacteria dn now yeast as well, since we had to stop all

suppliments because of testing ( oats, ion, RBC elements) So Iguess I will know

more when the results are back.

The two things we really havent looked into are virals and parasites.. I am

thinking about these, but first I am having hypercoagulation panels done to see

if she has this as she is displaying typical symptoms of this.

I trying think what else would be helpful.

Oh metals.. yeah she is lead toxic. tried IV chelation with prominent DAN,

didn't work long story, but he said to stop. Thus the sauna .

Am running UTM to see if this might all be from detoxing too much too fast (

could we be so lucky?!)

Thanks for everyone's responses. It's much appriciated.

[Guest guest]

I would suspect secretory IgA deficiency and breakdown of the mucosal immune

barrier.  I personally never use Amphotericin-B nor Nystatin anymore; the yeasts

are smarter than these topicals which do nothing for the colonization deep into

the mucosal lining that occurs in most of our kids, not to mention having to

give something 4 X a day being very difficult for most families.  A combination

of diflucan or nizoral and metronidazole might be very helpful, not unusual to

be needed after an intense HBOT series.  Dr. JM

Subject: Re: HBOT and regression

To: csb-autism-rx

Date: Wednesday, December 17, 2008, 2:51 AM

Sure, more info would probably be good. E is strict SCD, has been for 2 1/2

years with great results. DAN for the same time.. and the ususal suspects for

suppilemtns have been tried.. some with sucess, many with usualy not positive

side effects. She responds diffrently than most. She has the MFTHER677T gene

mutation for what that's worth.

WE have successfully been doing FAR infrared sauna since april, 30 min/ day

She is 500mg ampho-b 4x a day.... really helps. Did the A/F parade and this was

our " beauty Qyeen, and it really seems to be.

Taking probiotics, upped the antioxidents while in the HBOT.

Used the Neubrander protocol 2 1 1/2 hr sessions/ day with 6 hours between for

30 days.

While DOING HBOT has very few symptoms.. we were both just cranky and out of

sorts from the schedule.. I thing we all might go through that.. it's more

intense than it seeems on paper. Espeically when you are doing sauna too. Not

even a lot of die off type poops or anything.

then we stopped and things have just gotten worse and worse.

I am suspecting bacteria dn now yeast as well, since we had to stop all

suppliments because of testing ( oats, ion, RBC elements) So Iguess I will know

more when the results are back.

The two things we really havent looked into are virals and parasites.. I am

thinking about these, but first I am having hypercoagulation panels done to see

if she has this as she is displaying typical symptoms of this.

I trying think what else would be helpful.

Oh metals.. yeah she is lead toxic. tried IV chelation with prominent DAN,

didn't work long story, but he said to stop. Thus the sauna .

Am running UTM to see if this might all be from detoxing too much too fast (

could we be so lucky?!)

Thanks for everyone's responses. It's much appriciated.

[Guest guest]

Thnaks you to everyone for their responses. What is metronidazole? I havenever

heard of that, is there another name that is goes by? What is the typical

dosing for a 43 lb. child? What form does it come in? Capsules or tablets I

hope? E is a pill swallower.. thank goodness. I should be getting our oats

tests and ion back, and should be able to see what we are dealing with. I am

pretty sure it's yeast and bacteria now that I have lots of responses. I will

try to keep you posted. Thnaks again for your responses. It is very helpful.

Ellen

[Guest guest]

Ellen,

Based on everything you have said, my opinion (not a doctor) would be that

the two sessions per day are too much in your child's case. Oxygen is indeed

a drug, although most people do not consider it as such. The real HBOT

techies actually calculate dosages for each session. Anyhow, I have been on

many HBOT/mHBOT boards and there are typically two primary reasons reported

for regression (although regressions are rare from what I have seen posted).

The #1 reason is yeast overgrowth, which is something that Dr. McCandless

mentioned. There are some parents that do not know to give A/F during HBOT.

It sounds like you had that covered. The other reason, which is not cited as

much is too much HBOT, too fast. The regressions I have seen reported along

these lines seem to be worse. I would speculate that you may be in this

area. Some children (not most, but there are always subsets out there)

cannot handle an overload of sessions. This was reported by a lot of parents

a few years ago when two sessions per day were common. The reason they were

common was so that families could minimize the time away from home. So, 2

sessions per day times 20 days gets you 40 sessions. This worked well for

most people. But, there were reports of sensitivities leading some

researchers to believe that too much HBOT (ie. multi-sessions/day or over

one hour per session) can potentially cause issues for some people. Many of

the HBOT clinics recommend one session per day at one hour to keep things in

check if they see sensitivity (or they back down the pressure). There is a

great book that I have mentioned here before called the Textbook of

Hyperbaric Medicine by KK Jain. This is the gold standard book for HBOT.

There is a nice chapter on Oxygen Toxicity in there with a full list of

symptoms. Most people would never guess oxygen can be toxic, but over

exposure to anything (including oxygen) can be problematic. It was believed

that oxygen toxicity could not occur at pressures below 2 ATA, but some of

the experts have seen symptoms at lower levels with " sensitive populations "

like TBI, stroke, and other CNS impairments (some of our asd kids may be

hypersensitive to too much HBOT also). So, although I am not a doctor, when

I read your post, I could not help but think of other similar posts and so I

wanted to mention the possibility to you. I should also say that if you

decide to try HBOT again, you may want to consider one session per day at no

longer than one hour and give 2-3 days break per week. It could also be a

combination of yeast overgrowth, or HBOT hitting a viral pocket (this is

what happens when they treat Lyme). These are just my opinions as a fellow

parent trying to help another parent. You might want to discuss this with an

HBOT clinic doctor. I hope things get better for you soon. L

From: csb-autism-rx [mailto:csb-autism-rx ]

On Behalf Of Ellen Stanley

Sent: Wednesday, December 17, 2008 7:52 AM

To: csb-autism-rx

Subject: Re: HBOT and regression

Sure, more info would probably be good. E is strict SCD, has been for 2 1/2

years with great results. DAN for the same time.. and the ususal suspects

for suppilemtns have been tried.. some with sucess, many with usualy not

positive side effects. She responds diffrently than most. She has the

MFTHER677T gene mutation for what that's worth.

WE have successfully been doing FAR infrared sauna since april, 30 min/ day

She is 500mg ampho-b 4x a day.... really helps. Did the A/F parade and this

was our " beauty Qyeen, and it really seems to be.

Taking probiotics, upped the antioxidents while in the HBOT.

Used the Neubrander protocol 2 1 1/2 hr sessions/ day with 6 hours between

for 30 days.

While DOING HBOT has very few symptoms.. we were both just cranky and out of

sorts from the schedule.. I thing we all might go through that.. it's more

intense than it seeems on paper. Espeically when you are doing sauna too.

Not even a lot of die off type poops or anything.

then we stopped and things have just gotten worse and worse.

I am suspecting bacteria dn now yeast as well, since we had to stop all

suppliments because of testing ( oats, ion, RBC elements) So Iguess I will

know more when the results are back.

The two things we really havent looked into are virals and parasites.. I am

thinking about these, but first I am having hypercoagulation panels done to

see if she has this as she is displaying typical symptoms of this.

I trying think what else would be helpful.

Oh metals.. yeah she is lead toxic. tried IV chelation with prominent DAN,

didn't work long story, but he said to stop. Thus the sauna .

Am running UTM to see if this might all be from detoxing too much too fast (

could we be so lucky?!)

Thanks for everyone's responses. It's much appriciated.

[Guest guest]

We are about to start HBOT at home with a rental unit and our doc has

been having Moms do a clay bath before and one afterward with good

results. We experienced a horrible regression after one hard sided

HBOT session, too, and we had to do a lot of natural yeast killers,

some laxatives, and clay baths. We are having an upswing in speech and

cognition months later, so who knows what happened. Were more heavy

metals and pesticide excreted in the weeks after than in the last

couple of years? Were neurons awakened? We don't know. It was hard

work, I'll say that, and I'm expecting the soft sided HBOT to be more

of the same.

[Guest guest]

Thanks you for your post. I have had some time to think and I do think that the

Nuebrnder protocol might be too much for my girl. She just reacts diffrently to

just baout everything, she is super sensitive. I also believe yeast/ bacteria

flared ad well. We

ll get this all striaghtened out and when we start again, we will take it a bit

slower. I guess it's good I own my chamber.

Have a great holiday eveyone.

Ellen