Hi There!

[Guest guest]

Hi Bonnie,

My name is Chip, I'm 21 years old, and I also have Charge too! Patty typed

me a letter before. I made friends with teenagers/young adults with Charge!

Yay! Now, I'm not alone anymore with CHARGE.

This will be my 2nd year at college, Mt. Sac (San College) in

Walnut, LA, California. I get some special help too! Interpreters, sitting

in the front, Access Service Taxi (for old and specially challanged people),

ramps, and so on... I'm majoring to be a dog groomer/dog trainer.

I also have a girlfriend name Annette, who I met from Mt. Sac 2 years ago,

she graduated last December of '99. She have Syndrome, kind of

similiar to Charge but sort of different.

Oh Well, I will let you girls go now. Please type back soon! (either you,

Patty, or both).

Keep in touch! Talk to you later!

Chipper

>

>Reply-To: CHARGEegroups

>To: <CHARGEegroups>

>Subject: Re: New to list

>Date: Wed, 09 Aug 2000 21:38:14 -0700

>

>on 8/8/00 3:35 AM, Turk22082@... at Turk22082@... wrote:

>

> > Reesa,

> >

> > You're in the Boston area? We are in Connecticut. Our daughter Patty

>who is

> > now 15, soon going to be 16, has CHARGE. She was diagnosed with CHARGE

> > around 3 years ago. Through the diagnosis we found many things we never

>knew

> > of before. One of these is Perkins School, right near Boston! They did

>a

> > complete educational evaluation on her. This includes PT, OT, hearing,

> > visual....I felt they were wonderful. They also have many students with

> > CHARGE. If you can get in touch with them I'm sure they will help you.

>It is

> > the deaf/blind program who you should contact. I know you probably have

>many

> > specialists already who say they know what they are doing, so did we,

>but

> > they actually do and are up on the latest information. Give it a try.

>If

> > you need any help or names, I can get them for you.

> >

> > Bonnie, Mom to Kris 17, Patty CHARGE 15, and wife to

> >

> >

> >

> > For information about the CHARGE Syndrome

> > Foundation or to become a member please

> > contact marion@... or visit

> > the CHARGE Syndrome Foundation web page

> > at http://www.chargesyndrome.org

> >

> >

>I full agree about Perkins. They did 's initial evaluation

>approximately 11 years ago and another in 1996. When we realized 2 years

>ago that could not stay in her local school, we again turned to

>Perkins and its Deafblind program. She's been there since then. It's been

>great - lots of really good people, people who talk openly about problems,

>work with parents, etc. Call Zatta or Martha Majors. I'll find the

>phone numbers for you and send then later (if I forget, just remind me).

>Martha

>

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