New Member

[Guest guest]

Happy Birthday Cath!!! Make a Cheesecake for yourself and let the kids

eat all of that " OTHER " cake. Hugs,

Nan (Alias Ms. Magoo)

Please Support Macular Degeneration

And Other Vision Loss Research

http://members.aol.com/danlrob/MDpeople/

www.puppymillrescue.com

[Guest guest]

Don't go there!

There is always an excuse for waiting, another holiday etc etc. Believe me I

know I have used them all. But believe me you'll feel MUCH better about

yourself when you pass on it because your health and figure are more

important than a stupid piece of cake.

Cheryl Ü

<<

(Maybe I should enjoy the birthday cake with my kids then start the

next day.....?)

>>

[Guest guest]

,

After going to many many doctors, I finally found a good one who

took the time to do the testing necessary to separate my problems.

They confirmed the MS with a head MRI and spinal tap, plus many

tests eliminating other things. He took the time to separate the

symptoms I was having from the nerve damage from the rest. He was

the first one who actually listened to me. I take a lot of

supplements; daily vitamin, B-12, B-6, super Bs, lecithin, nician,

omega 3 fish oils, potassium, calcium isolate. I eat a low carb

diet with fish and white meat chicken, lots of veggies and a bit of

fruit. I eat no sugar (I had gastric bypass surgery a while back in

an attempt to help my back). I'm on a lot of meds for pain, which

mask some of my symptoms. My new doctor did the tests when I told

him sugar seem to make my feet hurt worse. My symptoms include

bladder retention, numbness in my feet and lower legs, pins and

needles all over, weakness, dizziness, vision loss, burning in my

feet, extreme fatigue, and I just plain hurt all over. I can still

walk, but not very far and it's not pretty. I walk like a drunk.

I'm glad I was born a tenacious person or I may have given up, every

doctor I saw said they couldn't do anything for me and told me to go

to pain management. I knew it was more than that. I'm a fighter,

but you need to know what you're fighting.

I don't mean to sound stupid, but what's a bowel cleanse? I know I

have a lot of reading to do still, but would appreciate the help.

Thanks,

>

> Hi ,

>

> Welcome to the group. I think the best place for anyone to start

is with

> bowel cleansing. If you have have been on that many drugs then

there is

> lots of cleaning out to do.

[Guest guest]

Hi ,

Once you hang out in this forum long enough you will realize that you

can't really separate out the symptoms. MS is alot of underlying root

causes that seem to all tie together to make the diagnosis. There is

mercury toxicity, candida, leaky gut and other bowel problems, back

problems, lyme disease and other co-infections or virus, and probably

some more I am forgetting. So when it comes time to reversing the

symptoms you have to take a whole body approach and just start peeling

away like you would an onion. I have found that for most the bowels are

really messed up and since that is where toxins accumulate and also get

eliminated its very important. Its also a huge part of the immune system

in the bowel.

A cleanse is when you concentrate on helping the bowels eliminate any

extra accumulated waste. There are many different cleanses available,

some more strong then others. Since you had gastric bypass you

absolutely have to supplement, there is no way you will ever get enough

nutrition from your foods. I also don't know if herbal cleanses are safe

for someone with gastric bypass, it should be but you might want to ask

you doctor. If you want to play it safe just some good enzymes and

pro-biotics to get you started. you are taking several things but really

only covering 2 necessary areas of support for your body. I think you

need a complete mulit, antioxidants, hormonal support, immune

support,and of course the bowel support. The fish oil is good, make sure

its good quality and been molecularly distilled. If you want more

specific info you can always contact me or read back on old posts. Take

care.

kbaumgardner06 wrote:

>,

>After going to many many doctors, I finally found a good one who

>took the time to do the testing necessary to separate my problems.

>They confirmed the MS with a head MRI and spinal tap, plus many

>tests eliminating other things.

>

>

>

[Guest guest]

hi i have ms and have found a good web site

http://www.ldnresearchtrust.org/index.htm

harj

--- kbaumgardner06 wrote:

> ,

> After going to many many doctors, I finally found a

> good one who

> took the time to do the testing necessary to

> separate my problems.

> They confirmed the MS with a head MRI and spinal

> tap, plus many

> tests eliminating other things. He took the time to

> separate the

> symptoms I was having from the nerve damage from the

> rest. He was

> the first one who actually listened to me. I take a

> lot of

> supplements; daily vitamin, B-12, B-6, super Bs,

> lecithin, nician,

> omega 3 fish oils, potassium, calcium isolate. I

> eat a low carb

> diet with fish and white meat chicken, lots of

> veggies and a bit of

> fruit. I eat no sugar (I had gastric bypass surgery

> a while back in

> an attempt to help my back). I'm on a lot of meds

> for pain, which

> mask some of my symptoms. My new doctor did the

> tests when I told

> him sugar seem to make my feet hurt worse. My

> symptoms include

> bladder retention, numbness in my feet and lower

> legs, pins and

> needles all over, weakness, dizziness, vision loss,

> burning in my

> feet, extreme fatigue, and I just plain hurt all

> over. I can still

> walk, but not very far and it's not pretty. I walk

> like a drunk.

> I'm glad I was born a tenacious person or I may have

> given up, every

> doctor I saw said they couldn't do anything for me

> and told me to go

> to pain management. I knew it was more than that.

> I'm a fighter,

> but you need to know what you're fighting.

>

> I don't mean to sound stupid, but what's a bowel

> cleanse? I know I

> have a lot of reading to do still, but would

> appreciate the help.

>

> Thanks,

>

>

>

> >

> > Hi ,

> >

> > Welcome to the group. I think the best place for

> anyone to start

> is with

> > bowel cleansing. If you have have been on that

> many drugs then

> there is

> > lots of cleaning out to do.

>

Visit: www.lottofuture.co.uk

___________________________________________________________

Yahoo! Mail is the world's favourite email. Don't settle for less, sign up for

your free account today

http://uk.rd.yahoo.com/evt=44106/*http://uk.docs.yahoo.com/mail/winter07.html

[Guest guest]

Hi ,

It is really overwhelming to try to digest this info. I became

symptomatic with MS only about 9 months ago. I follow this board

closely, but also sometimes I feel some of the posts go over my head.

A basic way to start, if you decide to treat your MS alternatively,

is to make sure your diet has plenty of veggies and fruits, organic

if possible. Eliminate processed foods, sugar, aspartame (nurtrasweet

such as in diet soda), caffeine, soda, nicotine, etc. Look into the

Best Bet Diet (do an on line search) which suggests that eliminating

dairy and gluten/wheat are also important.

As mentioned by another member, you may want to look into a medicine

called Low Dose Naltrexone (LDN). Again, an internet search will tell

you about it. Many people have found that their symptoms stopped

progresing after taking this. I personally am on it and was doing

well but had a recent setback.

There are so many different supplements people are doing and everyone

seems to have their favorites, as you will see on these posts. That's

something you will have to decide by talking with different people

and trial and error.

Feel free to ask lots of questions. I do consstantly.

>

> Hi, my name is and I was just diagnosed with MS several weeks

> ago. I've had the symptoms, which have gotten steadily worse, for

> at least 4 years. I believe I've had this for much longer, but in

a

> milder form. Just before this started getting bad I had a string

of

> bad health that lead to 7 surgeries in a little over a year. Three

> of those were back surgeries, the last one being a fusion surgery

of

> my lower back. I do have nerve damage at my L5 nerve root on the

> right side, but tried for years to get someone to explain to me why

> I had pins & needles, burning, numbness, etc., in both feet. I

also

> had weird headaches and pins and needles throughout my whole body.

> I am 50 years old and have more than one problem. Up until 5 years

> ago, my only health concern was allergies. I never got sick, no

> colds, no flu. I never got any infections of any kind either. It

> didn't take long for me to discover that doctors don't want you to

> get well. Everytime I presented with a new symptom, they

prescribed

> a new medication until I was on a toxic soup. I've been reading

the

> posts on this board for a little over a week and to be honest,

don't

> understand most of what you're talking about. I'm sure I will in

> time, but I'm anxious to get started on the road to wellness. So,

> could someone explain to me exactly what I should be doing first to

> get started on my quest for wellness. Your help would be greatly

> appreciated.

>

> Thanks,

>

>

[Guest guest]

One more thing....

The search function on the Yahoo message boards is extremely powerful.

With the search function it is possible to mine all of the messages

that have been posted to the group. That is why I submit my reports

to Yahoo message groups. I don't want my work to be lost in a sea of

non-searchable messages.

Columbo

>

>

> Hi ,

>

> Welcome to the group!

>

> This site has some good advice for people with MS:

>

> http://tinyurl.com/grpm9

>

> Check it out!

>

> With best wishes,

>

> Dudley Delany

>

>

> http://profiles.yahoo.com/dudley_delany

>

[Guest guest]

I want to thank everyone who responded to my post. You have made me

feel most welcome here and given me a lot of good information, which I

really needed. As I go through it, I'm sure I will have lots of

questions, but I now feel more at ease knowing there are good people

out there willing to share what they know and have learned. God Bless

you all ! ! ! ! !

Thanks Again,

[Guest guest]

You're very welcome, . We're glad to be of service!

All the best,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

> I think you'll find that the _long-term_ rates for impotence after

> external-beam radiation therapy (EBRT) are closer to 100% than to 50%.

> It's really tough to fry the prostate without frying the erectile

> nerves. Ask your radiation oncologist, and find out what he

means.

This is one of the most outrageous statements I have read here. It

seems to me that one of the biggest reasons men go with some form of

radiation is to avoid surgical side effect of impotence. Yes, some men

who have radiation become impotent. A neighbor of ours for one. He had

Brachy and EBRT about 7 years ago. He reports that he is impotent and

Viagra does not work. Just wondering what you base your statement on?

Dr. Lange has co-written a long article about his own prostate

removal. It is a must read for any man and his partner, particularly if

surgery is being considered. In it he says that no man is as continent

post surgery as he was before. http://www.evms.edu/vpc/docs/prostate-

cancer-perspective.pdf. You can read the article at the posted site. If

you have trouble getting to it, let me know.

Laurel

[Guest guest]

I had my surgery in Sept., 2006. I would say that I am 98 percet continent as before. There may be an extremely rare instance of stress incontinence that results in a drop or two. The two side effects experience is urinary urgency every hour and half to two hours or so with output of 3, 4, 7 or 8 oz, and morning rectal urgency ocassionally. ED function return is at 40 percent or so and improving. I would rather be on an improving curve than a degrading curve.

Louis. . .

Re: New Member

> I think you'll find that the _long-term_ rates for impotence after> external-beam radiation therapy (EBRT) are closer to 100% than to 50%.> It's really tough to fry the prostate without frying the erectile> nerves. Ask your radiation oncologist, and find out what he means. This is one of the most outrageous statements I have read here. It seems to me that one of the biggest reasons men go with some form of radiation is to avoid surgical side effect of impotence. Yes, some men who have radiation become impotent. A neighbor of ours for one. He had Brachy and EBRT about 7 years ago. He reports that he is impotent and Viagra does not work. Just wondering what you base your statement on? Dr. Lange has co-written a long article about his own prostate removal. It is a must read for any man and his partner, particularly if surgery is being considered. In it he says that no

man is as continent post surgery as he was before. http://www.evms. edu/vpc/docs/ prostate-cancer-perspective. pdf. You can read the article at the posted site. If you have trouble getting to it, let me know. Laurel

[Guest guest]

Hi Bob,

I'm just one person but I am 3 weeks post robotic RP. While dealing

with impotence, I have had no problems with incontinence. In fact,

urination is actually better than before.

the one thing that scared me about External Beam radiation is the

problems that come after a year or so.

Good luck on your choice.

>

> Hello everyone, I am new to this support group and would like to

introduce

> myself. My name is Bob Kusak and I am from Michigan. I am 44 years

old and

> was diagnosed in October of this year with a low grade form of prostate

> cancer. My PSA had ranged from 1.5/1.7 over the last four years.

This year

> it had jumped to 2.7 and I had the PSA tested again 1 month later

with the

> same result. I began my PSA screening at age 40 because my father was

> diagnosed with prostate cancer about ten years ago at age 63. He

had the

> prostate removed along with treatment on his lymph nodes. He also

had the

> artificial pump implanted. He has had trouble with leakage ever

since and

> the pump is now worn out. So much for the golden years! He has

undergone

> 21 medical procedures over the last 15-18 years for various conditions.

> Unfortunately, I don't think his body can handle another procedure

as he is

> now recovering from hip replacement. So I don't know if he will

have the

> pump replaced.

>

> Anyway, I have read several postings over the last few days and have

found

> the discussions interesting. I am still not sure what will be the best

> course of treatment for me. There really is too much information to

wade

> through and there is no one course of treatment as a cure all. I have

> waffled between surgery and radiation. I have gone for several

> consultations with top doctors (surgeons and radiologists) from

University

> of Michigan, Beaumont Hospital, and a doctor who was with the

> Karmanos Cancer Center but is now in private practice. All have

stated that

> I would be a good candidate for either choice and should have a 95%

success

> rate with incontinence and impotency. For my age and situation I

have been

> leaning towards external beam radiation as opposed to surgery. At

this time

> I do not feel comfortable with the seeds. I have read several stories

> related to surgery. There have been a few success stories but most have

> stated they have had urinary problems after surgery. This has been

my main

> reason for leaning towards radiation. Yes, I do know there are

> complications with radiation but I feel at this point this process

would be

> the least invasive and provides options later down the road should the

> prostate or another part of my body becomes active with cancer

again. Sorry

> for the lengthy email.

>

> Interested in your thoughts!

> Bob

>

[Guest guest]

Chuck,

I appreciate your comment.

Regardless of how you may have taken my comments, I honestly don't

have any " disdain " for the people that post here or for the support

groups. That was not what I was saying. My point is that most of

the people that make a post are simple other people that are in the

same boat as the rest of us, and they are making comments as to what

their opinion is. Their comments need to be seen as " their

opinions " , just like my comments. We all have our own opinions,

which I think is great. This group would not be much help if we all

had the same opinion as to what the best treatment is. ly, I

have learned a lot from all the posts here and on other support

groups.

My concern is that anyone would take the posts form this support

group, or any other support group, as the primary reasoning that they

would use for making a decision on what type of treatment they should

do. We are not the experts, and everyone that reads these posts need

to take them with a grain of salt, versus using them as their primary

reason for basing their decisions on.

Some posts espouse only one type of treatment as the " holy grail " of

treatments, and anyone that does not take that option is " doomed " .

In my opinion, people that make these types of posts are at least too

narrowly focused. I also have read some posts that are very balanced

in providing good information, regardless of the treatment option

that they are espousing. Other posts tell you that you don't need to

take prostate cancer seriously, because it is so slow growing that

you can take years before reacting. I have also read some posts that

discourage people from listening to the expert advice of their Dr's

and other medical professionals, and to place their fate in the hands

chance. In my opinion, people that make those posts are simply

ignorant.

All this being said, again this is my opinion, and I think that I

should have the opportunity to state my opinion just as much as the

next person, even if I totally disagree with their opinion.

Thanks again,

Ted G.

> > >

> > > Hello everyone, I am new to this support group and would like

to

> > introduce

> > > myself. My name is Bob Kusak and I am from Michigan. I am 44

> years

> > old and

> > > was diagnosed in October of this year with a low grade form of

> > prostate

> > > cancer. My PSA had ranged from 1.5/1.7 over the last four

> years.

> > This year

> > > it had jumped to 2.7 and I had the PSA tested again 1 month

later

> > with the

> > > same result. I began my PSA screening at age 40 because my

> father

> > was

> > > diagnosed with prostate cancer about ten years ago at age 63.

He

> > had the

> > > prostate removed along with treatment on his lymph nodes. He

> also

> > had the

> > > artificial pump implanted. He has had trouble with leakage

ever

> > since and

> > > the pump is now worn out. So much for the golden years! He

has

> > undergone

> > > 21 medical procedures over the last 15-18 years for various

> > conditions.

> > > Unfortunately, I don't think his body can handle another

> procedure

> > as he is

> > > now recovering from hip replacement. So I don't know if he

will

> > have the

> > > pump replaced.

> > >

> > > Anyway, I have read several postings over the last few days and

> > have found

> > > the discussions interesting. I am still not sure what will be

> the

> > best

> > > course of treatment for me. There really is too much

information

> > to wade

> > > through and there is no one course of treatment as a cure all.

I

> > have

> > > waffled between surgery and radiation. I have gone for several

> > > consultations with top doctors (surgeons and radiologists) from

> > University

> > > of Michigan, Beaumont Hospital, and a doctor who was

with

> > the

> > > Karmanos Cancer Center but is now in private practice. All

have

> > stated that

> > > I would be a good candidate for either choice and should have a

> 95%

> > success

> > > rate with incontinence and impotency. For my age and situation

I

> > have been

> > > leaning towards external beam radiation as opposed to surgery.

> At

> > this time

> > > I do not feel comfortable with the seeds. I have read several

> > stories

> > > related to surgery. There have been a few success stories but

> most

> > have

> > > stated they have had urinary problems after surgery. This has

> been

> > my main

> > > reason for leaning towards radiation. Yes, I do know there are

> > > complications with radiation but I feel at this point this

> process

> > would be

> > > the least invasive and provides options later down the road

> should

> > the

> > > prostate or another part of my body becomes active with cancer

> > again. Sorry

> > > for the lengthy email.

> > >

> > > Interested in your thoughts!

> > > Bob

> > >

> >

>

[Guest guest]

Laurel --

OOPS!!!

I apologize for my error. Thanks for picking it up.

Here's what two sources have to say:

Scardino, " Scardino's Prostate Book " , p. 313:

" After radiation therapy, 40-50 percent of patients experience

erectile dysfunction. The risk is higher for older men, those who

receive hormone therapy along with radiation, and for those whose

erections were somewhat impaired before treatment. Seventy-five

percent of patients with postradiation erectile loss find medications

such as sildenafil helpful. [Reference : Zelefsky et al, _Cancer_ 85

no. 11, 1999, p. 2460-2468]

From a Cornell University Medical College website:

http://www.cornellurology.com/sexualmedicine/ed/radiation.shtml

" On review of the recent external beam radiation therapy literature,

the incidence of post-treatment erectile dysfunction ranges from

38-62%; however, most of these analyses have used questionnaire or

telephone interviews to collect information and these are notoriously

inaccurate. Furthermore, the period of follow-up has generally been

less than three years and it is accepted that the longer a patient

lives after his radiation the more likely he is to develop ED.

Radiation therapy can cause ED in three ways. Firstly, arterial

blockage can occur due to the development of a condition called

endarteritis obliterans, plus other more subtle changes can occur

including direct damage to the lining of the blood vessels. Secondly,

radiation-induced nerve damage may occur. It has been shown that there

is a reduction in the number of erection-inducing nerves in the penis

following exposure to low doses of radiation. Thirdly, direct erection

tissue damage may occur and this can lead to leakage of blood from the

erectile bodies (venous leak). "

According to those, the ED rate after EBRT is somewhere around 50%,

_not_ 100%.

Again -- I apologize for my error.

>

> > I think you'll find that the _long-term_ rates for impotence after

> > external-beam radiation therapy (EBRT) are closer to 100% than to 50%.

> > It's really tough to fry the prostate without frying the erectile

> > nerves. Ask your radiation oncologist, and find out what he

> means.

>

> This is one of the most outrageous statements I have read here. It

> seems to me that one of the biggest reasons men go with some form of

> radiation is to avoid surgical side effect of impotence. Yes, some men

> who have radiation become impotent. A neighbor of ours for one. He had

> Brachy and EBRT about 7 years ago. He reports that he is impotent and

> Viagra does not work. Just wondering what you base your statement on?

>

> Dr. Lange has co-written a long article about his own prostate

> removal. It is a must read for any man and his partner, particularly if

> surgery is being considered. In it he says that no man is as continent

> post surgery as he was before. http://www.evms.edu/vpc/docs/prostate-

> cancer-perspective.pdf. You can read the article at the posted site. If

> you have trouble getting to it, let me know.

>

> Laurel

>

[Guest guest]

> Hello from a new, but returning, member. I am a mwm, 60, who just

> moved to Arizona as a retirement gift to myself.

Good judgment. But Havasu is too hot for me. (I'm in Phoenix with a

good AC)

> I was diagnosed in 2003 with a psa of 34.5 and treated with IMRT,

> brachytherapy, chemo and hormone replacement, etc. My psa was a .01

> in July 2006!

>

> It is now going back up and is 7.7, even though a bone scan and ct

> scan show no hot spots.

That is a very fast PSA velocity. Not a pretty picture. And CT and

bone scans are notoriously insensitive.

> My new doctor. a VA referral, wants me to go on hormones

> immediately, but I refuse.

What is the specialty of that doctor? A urologist or a genuine cancer

specialist, an oncologist? This is vital. Uros are surgeons and few of

them are qualified to engage in endocrine therapy of PCa.

Why refuse " hormones? " Horror stories about side effects (SEs)? BTW,

proper terminology is Androgen Deprivation Therapy (ADT).

I recommend reference to the authoritative and encyclopedic site of

the Prostate Cancer Research Institute (PCRI) at

http://prostate-cancer.org/index.html

Reliable and objective information about ADT is to be found there.

As well as a listing of some of the experts in the field of PCa. See

http://prostate-cancer.org/resource/find-a-physician.html

In addition, information on how to alleviate any SEs will be found by

searching on Androgen Deprivation Syndrome (ADS). Any patient might

experience some, none, or all of them; there is no way to be sure. But

it can be stopped if necessary -- and the risk is acceptable to the

patient.

> I hope to hear from others in this group with experience in rising

> psa after treatments, and the methods used to combat it.

So far as I, a layman, know, there are three ways of dealing with it:

1. ADT + such other txs as are appropriate such as radiation

2. Chemotherapy

3. Do nothing and accept the consequences.

Oh and I suppose there's a fourth: Enrich one of the scumbag quacks

that infest the internet. Excuse the rant; I hate them.

Regards,

Steve J

" I believe it is a mistake for many urologists to be involved in the

endocrine therapy of prostate cancer. Let me state why. Urologists

are surgeons and many times surgeons rush to a treatment without

really understanding what they are doing. "

-- B. Strum, MD

Medical Oncologist

[Guest guest]

Hello Bob,

Post radiation PSA nadir of 0.01 in only two years is extremely

unusual, perhaps the ADT pushed it so low. There are many things

going on, do you want to assume recurrent cancer that has nowhere to

go except to hormone refractory metastatic disease? Have you

assessed PSA-spike, ADT rebound, or a locally recurrent tumor?

Consider approaching this as having to start over again but with a

lower risk cancer. You might end up repeating ADT and have focal rad

or cryo to achieve long term remission.

I would like to know more about your chemo protocol because I

thought chemo was only used for hromone refractory disease. Can you

email me directly?

Albert

>

> > Hello from a new, but returning, member. I am a mwm, 60, who just

> > moved to Arizona as a retirement gift to myself.

>

> Good judgment. But Havasu is too hot for me. (I'm in Phoenix with a

> good AC)

>

> > I was diagnosed in 2003 with a psa of 34.5 and treated with IMRT,

> > brachytherapy, chemo and hormone replacement, etc. My psa was

a .01

> > in July 2006!

> >

> > It is now going back up and is 7.7, even though a bone scan and ct

> > scan show no hot spots.

>

> That is a very fast PSA velocity. Not a pretty picture. And CT and

> bone scans are notoriously insensitive.

>

> > My new doctor. a VA referral, wants me to go on hormones

> > immediately, but I refuse.

>

> What is the specialty of that doctor? A urologist or a genuine

cancer

> specialist, an oncologist? This is vital. Uros are surgeons and few

of

> them are qualified to engage in endocrine therapy of PCa.

>

> Why refuse " hormones? " Horror stories about side effects (SEs)? BTW,

> proper terminology is Androgen Deprivation Therapy (ADT).

>

> I recommend reference to the authoritative and encyclopedic site of

> the Prostate Cancer Research Institute (PCRI) at

> http://prostate-cancer.org/index.html

>

> Reliable and objective information about ADT is to be found there.

>

> As well as a listing of some of the experts in the field of PCa. See

> http://prostate-cancer.org/resource/find-a-physician.html

>

> In addition, information on how to alleviate any SEs will be found

by

> searching on Androgen Deprivation Syndrome (ADS). Any patient might

> experience some, none, or all of them; there is no way to be sure.

But

> it can be stopped if necessary -- and the risk is acceptable to the

> patient.

>

> > I hope to hear from others in this group with experience in

rising

> > psa after treatments, and the methods used to combat it.

>

> So far as I, a layman, know, there are three ways of dealing with

it:

>

> 1. ADT + such other txs as are appropriate such as radiation

> 2. Chemotherapy

> 3. Do nothing and accept the consequences.

>

> Oh and I suppose there's a fourth: Enrich one of the scumbag quacks

> that infest the internet. Excuse the rant; I hate them.

>

> Regards,

>

> Steve J

>

> " I believe it is a mistake for many urologists to be involved in the

> endocrine therapy of prostate cancer. Let me state why. Urologists

> are surgeons and many times surgeons rush to a treatment without

> really understanding what they are doing. "

> -- B. Strum, MD

> Medical Oncologist

>

[Guest guest]

Welcome to keithroach2004 keithroach2004@... who has

joined the ProstateCancerSupport group and says:

I just found out I have prostate cancer stage 2 and

really know nothing about the disease and would like to learn about the diet I

should eat

Sorry to hear of your diagnosis but welcome to the

club you never wanted to join. No doubt you’re in a bit of a state of

shock, and perhaps feeling isolated. You’ll find plenty of friendly folk

on this List who will do what they can to help you through.

You might find it useful to visit YANA

- You Are Not Alone Now www.yananow.net a site set up for newly

diagnosed people. The first section gives some basic information in plain

language with links to more complex and technical sites. There is a section

dealing with the management of the disease, including some dietary hints at http://www.yananow.net/MyersManagement.htm

there is also a section suggesting the questions that you should seek answers

to before making any treatment decision at http://www.yananow.net/questions.htm

The second section of the site is where men are

invited to tell their prostate cancer stories and how they arrived at their

decisions regarding treatment. Many people have mailed to say how useful they

have found this, especially because most of the men are happy to respond to

specific questions. The section of the site can be found by clicking the link

labelled Experiences or going to http://www.yananow.net/Experiences.html

But in any event, please post some details of

your diagnosis – your Age, your PSAs leading up to the diagnosis, your

Gleason Score and Staging (these terms are all explained on the YANA site) and any questions you might have. Just

remember – there are no dumb questions. We all started off where you are

now, but we’ve collectively learned a lot over the years.

All the best

Terry Herbert

I have no medical qualifications but I was diagnosed

in ‘96: and have learned a bit since then.

My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za

Dr

“Snuffy” Myers : " As a physician, I am painfully aware that most of the decisions

we make with regard to prostate cancer are made with inadequate data "