Guest guest Posted December 9, 2008 Report Share Posted December 9, 2008 I went to another doctor this morning and got my referral to a hematologist for my high ferritin. He won't be much help on thyroid issues. He doses by TSH and thought T4 was the active form of thyroid hormone. I doubt he had ever heard of RT3. I think he ordered another ferritin so I can see if the first blood donation did any good. Or maybe the first reading was anomalous. Who knows? Anyway there is a Red Cross blood drive on Sunday I am hoping to donate to. That will be #2. That one site said one loses 30 mg per draw. So then I will have 2 to go. Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Well isn't that special? I have read one paper that says by 1000 organ damage is in progress, and that nobody KNOWS when it actually starts. I have also read that while the iron excess is removable the organ damage from it is NOT reversible. And many sites I have read say that people with iron overload do NOT live well with it, nor do they live normal lifespans............they die sooner than they otherwise would. sol dorothyroeder wrote: > So I had my visit with the hematologist about my 196 ferritin. He said > it was normal. Big surprise - not. He says they don't worry unless it > is over 1000 and even then people live very well. So I will just > continue to give blood. I had gotten a serum iron and TBIC which gave > a TS of 15 which is low normal anyway. He was really nice. Offer to > read anything I thought important. First doctor I've seen that said that. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2008 Report Share Posted December 30, 2008 Just reporting what he said. Dorothy > Well isn't that special? I have read one paper that says by 1000 organ > damage is in progress, and that nobody KNOWS when it actually starts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 Well My ferritin was 909! Ferritin is also a measure of inflamation. I had to have my spleen measure and my liver count was up too. It also depends too on what percentage of saturation that you have. Usually that is very true under 1000 it has been said that there is less than 1% chance of developing liver cancer. Hemochromatosis affects approximately 1 in every 200-300 people, iron overload. How they came up with that number is one of the hemocromatosis groups has actually tested over 8000 in a given area and it was 1 in every 200-300 people. I would have to say that someone should not wait until ferritin reaches above 1000 thats is rediculous. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2008 Report Share Posted December 31, 2008 And I was just commenting on what he said, rather snidely, I admit. If you take his advice, please let us know how you do longterm. sol dorothyroeder wrote: > Just reporting what he said. > > Dorothy > > >> Well isn't that special? Quote Link to comment Share on other sites More sharing options...
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