Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Dear friends, Have been lurking for a bit, and now have a question. My husband is going to have his prostate removed next week. As far as we know it was caught very early, and his choice is to have it removed. So, my question is for those of you who have made a similar choice, how did you feel once you got home? I know we will be dealing with the catheter for several weeks, and that lifting is a nono, but otherwise what were your experiences as far as what you were able to do around the house? I have physical limitations that keep me from doing much in the way of housekeeping and so depend on MDH for a lot. Our son will be with us for a week and our daughter is nearby, but I am just curious what your experiences were? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Hi there, I am sure you will get a good response from people on this List, but if you have the time and the interest, you can read of the experiences of many men who have had surgery at http://www.yananow.net/Experiences.html - most of them will respond to specific questions you may have too. All the best Terry Herbert I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then. My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za Dr “Snuffy” Myers : " As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data " From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of seabreezemomgrandma Sent: Saturday, 5 January 2008 8:57 AM To: ProstateCancerSupport Subject: Got a question! Dear friends, Have been lurking for a bit, and now have a question. My husband is going to have his prostate removed next week. As far as we know it was caught very early, and his choice is to have it removed. So, my question is for those of you who have made a similar choice, how did you feel once you got home? I know we will be dealing with the catheter for several weeks, and that lifting is a nono, but otherwise what were your experiences as far as what you were able to do around the house? I have physical limitations that keep me from doing much in the way of housekeeping and so depend on MDH for a lot. Our son will be with us for a week and our daughter is nearby, but I am just curious what your experiences were? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Terry - I agree that the 'default' treatment is usually surgery. Surgery is usually what a guy is offered first and then given other treatments as options. Most guys see surgery as a "get it over with quick" option. Especially robotic surgery. Guys in general tend to not want to go to the doctor period. If they are given the choice of get it over with now or come back for multiple treatments with no guarantee to be any better off in the end, they will choose the get it over with now option most often. And who can blame? Certainly not me.Mick Terry Herbert wrote: It is one of the odd things about life how different people can have such different perceptions of issues. As Moderators we were having complaints not too long ago that this List seemed to be devoted to proton beam therapy!! To me it seems a very well balanced List but inevitably since surgery is the specialty of most urologists it becomes the default treatment for many men and is still the #1 treatment choice in the US. If members of this List are representative of the US men, then most of them will choose or will have had surgery. I agree with Aubrey regarding research and understanding options fully before making a cdecision, but each person is entitled to make the decision that suits them and their situation. All the best Terry Herbert I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then. My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za Dr “Snuffy” Myers : "As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data" From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of APilgrmaol Sent: Saturday, 5 January 2008 4:12 PM To: ProstateCancerSupport Subject: Re: Got a question! Hi All, It seems that most of the people on this list favor surgery. I cannot understand why not many are looking at brachytherapy. I have seen patients have the seed implants, get up off the table 45 minutes later and go back to work. Not all of them do this, but some do. And the primary bladder valve is not involved so it is not damaged as is the case in a lot of the RPs. Each to his own- But please think and research before committing to a procedure that you will have to live with the rest of your life. Aubrey I wish you all the best Aubrey Pilgrim, DC (Ret.) Author of A Revolutionary Approach to Prostate Cancer-Read the original book for FREE at: http://www.prostatepointers.org/prostate/lay/apilgrim/ Read new edition for FREE at http://www.cancer.prostate-help.org/capilgr.htm Dr. E. Crawford is co-author of the revision In a message dated 1/4/2008 6:47:33 P.M. Pacific Standard Time, white.richard54 writes: Hello, Everyone handles surgery different. Don't forget that this is major surgery no matter how they do it. What type of RP is he having? I can not talk about open RP because I had robotic but I'm pretty sure he will be side lined from most activities for at least six weeks. It depends also on what kind of shape he is in as well(I don't want to say age because that is not always an indication of physical condition). I had mine out on May 16, 2007 and I had my catheter in for nine days. That nine days was for me the most difficult time and my activities were very limited. Once the catheter came out I felt much better and was able to drive and do alot more. I had some pain and I did take some pain pills that i came home with but for the most part I was able to handle it without taking them often. I am in pretty good physical condition(I was 52)and I was able to go back to work in two weeks. I was not allowed to do ANY lifting for six weeks but I was able to do most things as long as there was no discomfort. Don't hesitate to ask any questions, this is a great group and I wish I had found it when I was in your shoes last May. Good Luck to you and your husband. Rick Got a question! Dear friends, Have been lurking for a bit, and now have a question. My husband is going to have his prostate removed next week. As far as we know it was caught very early, and his choice is to have it removed. So, my question is for those of you who have made a similar choice, how did you feel once you got home? I know we will be dealing with the catheter for several weeks, and that lifting is a nono, but otherwise what were your experiences as far as what you were able to do around the house? I have physical limitations that keep me from doing much in the way of housekeeping and so depend on MDH for a lot. Our son will be with us for a week and our daughter is nearby, but I am just curious what your experiences were? Thanks. Start the year off right. Easy ways to stay in shape in the new year. God rewards those that keep on keeping on. Stay positive. Think positive. Pray positive. And talk positive. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Mick, There was no question of blame anywhere – except for the medical profession who often do not act very professionally in that they do not give their patients all the information required to make an informed decision. All the best Terry Herbert I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then. My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za Dr “Snuffy” Myers : " As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data " From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Mick Northrop Sent: Sunday, 6 January 2008 5:46 AM To: ProstateCancerSupport Subject: RE: Got a question! Terry - I agree that the 'default' treatment is usually surgery. Surgery is usually what a guy is offered first and then given other treatments as options. Most guys see surgery as a " get it over with quick " option. Especially robotic surgery. Guys in general tend to not want to go to the doctor period. If they are given the choice of get it over with now or come back for multiple treatments with no guarantee to be any better off in the end, they will choose the get it over with now option most often. And who can blame? Certainly not me. Mick Terry Herbert <ghenesh_49optusnet.au> wrote: It is one of the odd things about life how different people can have such different perceptions of issues. As Moderators we were having complaints not too long ago that this List seemed to be devoted to proton beam therapy!! To me it seems a very well balanced List but inevitably since surgery is the specialty of most urologists it becomes the default treatment for many men and is still the #1 treatment choice in the US. If members of this List are representative of the US men, then most of them will choose or will have had surgery. I agree with Aubrey regarding research and understanding options fully before making a cdecision, but each person is entitled to make the decision that suits them and their situation. All the best Terry Herbert I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then. My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za Dr “Snuffy” Myers : " As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data " From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of APilgrmaol Sent: Saturday, 5 January 2008 4:12 PM To: ProstateCancerSupport Subject: Re: Got a question! Hi All, It seems that most of the people on this list favor surgery. I cannot understand why not many are looking at brachytherapy. I have seen patients have the seed implants, get up off the table 45 minutes later and go back to work. Not all of them do this, but some do. And the primary bladder valve is not involved so it is not damaged as is the case in a lot of the RPs. < div class= " MsoNormal " >Each to his own- But please think and research before committing to a procedure that you will have to live with the rest of your life. Aubrey I wish you all the best Aubrey Pilgrim, DC (Ret.) Author of A Revolutionary Approach to Prostate Cancer-Read the original book for FREE at: http://www.prostatepointers.org/prostate/lay/apilgrim/ Read new edition for FREE at http://www.cancer.prostate-help.org/capilgr.htm Dr. E. Crawford is co-author of the revision In a message dated 1/4/2008 6:47:33 P.M. Pacific Standard Time, white.richard54 writes: Hello, Everyone handles surgery different. Don't forget that this is major surgery no matter how they do it. What type of RP is he having? I can not talk about open RP because I had robotic but I'm pretty sure he will be side lined from most activities for at least six weeks. It depends also on what kind of shape he is in as well(I don't want to say age because that is not always an indication of physical condition). I had mine out on May 16, 2007 and I had my catheter in for nine days. That nine days was for me the most difficult time and my activities were very limited. Once the catheter came out I felt much better and was able to drive and do alot more. I had some pain and I did take some pain pills that i came home with but for the most part I was able to handle it without taking them often. I am in pretty good physical condition(I was 52)and I was able to go back to work in two weeks. I was not allowed to do ANY lifting for six weeks but I was able to do most things as long as there was no discomfort. Don't hesitate to ask any questions, this is a great group and I wish I had found it when I was in your shoes last May. Good Luck to you and your husband. Rick Got a question! Dear friends, Have been lurking for a bit, and now have a question. My husband is going to have his prostate removed next week. As far as we know it was caught very early, and his choice is to have it removed. So, my question is for those of you who have made a similar choice, how did you feel once you got home? I know we will be dealing with the catheter for several weeks, and that lifting is a nono, but otherwise what were your experiences as far as what you were able to do around the house? I have physical limitations that keep me from doing much in the way of housekeeping and so depend on MDH for a lot. Our son will be with us for a week and our daughter is nearby, but I am just curious what your experiences were? Thanks. Start the year off right. Easy ways to stay in shape in the new year. God rewards those that keep on keeping on. Stay positive. Think positive. Pray positive. And talk positive. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 -- I never needed a real " diaper " , even on the first day my catheter came out (after 3 weeks). I used Depends " Belted Shields " for a while (they're uncomfortable, but hold a lot of urine), and then graduated to Tena " Male Guards " inside a Jockey-style brief. I'm a fan of " condom catheters " and leg bags -- see: www.DiapersBeDamned.com for instructions. The Coban tape he recommends is superb, and not expensive. As soon as the catheter is removed, your husband should start Kegel exercises to improve his bladder control. If your doctor hasn't trained him, find a nurse or physiotherapist to help. > > Dear , > > Thank you, thank you. Your information pretty much confirmed what I suspected. Our son will be here for a week, so that will help, and our daughter lives nearby. I'm sure we'll be ok. We shall just have a couple of quiet months. And that will be just fine. > > May I ask what type of pad/adult diaper you purchased for your husband? I kind of figured I'd wait until we were at the hospital - I guess I should have asked his doc, but didn't think of it. We've been told about 2 months for recovery and a couple - perhaps 3 weeks for the cath. > > Thank you again for your insight. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Hi , Thanks for the encouragement and advice. I will try bending my knees and see what happens. I do a lot of gardening and remodeling of my home. Both have a lot of lifting and squating which give me most of my problems with incontinance. I do believe I am still improving though. Some days I hardly leak at all. Thanks again, and God bless to you my friend Jack Got a question! Dear friends,Have been lurking for a bit, and now have a question. My husband is going to have his prostate removed next week. As far as we know it was caught very early, and his choice is to have it removed.So, my question is for those of you who have made a similar choice, how did you feel once you got home? I know we will be dealing with the catheter for several weeks, and that lifting is a nono, but otherwise what were your experiences as far as what you were able to do around the house?I have physical limitations that keep me from doing much in the way of housekeeping and so depend on MDH for a lot. Our son will be with us for a week and our daughter is nearby, but I am just curious what your experiences were?Thanks. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
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