Guest guest Posted September 12, 2000 Report Share Posted September 12, 2000 , It affected my tongue muscle first. My tongue felt very thick and sluggish, kind of numb (like it had been given a shot of Novocain), and I had to talk " around my tongue " by using very exaggerated mouth movements. Whatever I tried to say came out sounding like I was completely soused. After that condition improved I noticed my throat would feel like it was " closing off " or tightening up which caused my voice to lack volume and sound very " breathy " . Then I started noticing I had excess saliva in my throat, which caused me to choke once in a while. And then my upper palate was affected, causing my speech to sound nasally. All during this time (within a 4 month period) I couldn't enunciate clearly -- I had trouble pronouncing certain consonant sounds without slurring. My speech has slowly gotten worse since then, the slurred words more indistinguishable, and all of the other symptoms remained except for the " thick tongue " feeling. My tongue still doesn't move like it should, which is the main reason for the slurred speech. And it's not much help while trying to manipulate food around in my mouth either. Lyndal In a message dated 9/12/00 5:25:14 PM Mountain Daylight Time, Deda@... writes: > Those of you who have problems with talking, would you please tell me how you > first noticed it? Was it mainly in the slurring of speech or can it affect > the throat first? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2000 Report Share Posted September 12, 2000 , mine is exclusively throat. I have laryngeal spasms called spasmodic dysphonia. My speech is clear but I sound very hoarse and will have words choked off by a spasm. It also leads me to cough a lot. First I noticed was the cough, next the hoarseness (sounded like allergies at first) Lavon At 06:18 PM 09/12/2000 -0500, you wrote: My Groups | PLS-FRIENDS Main Page | Start a new group! Those of you who have problems with talking, would you please tell me how you first noticed it? Was it mainly in the slurring of speech or can it affect the throat first? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2000 Report Share Posted September 12, 2000 : With me it started (and still does), when I get extremely tired. I have to coax the words out of me, by a certain way I have learned to breath. I have learned and taught myself how to control it, and try not to get my self to that point, but sometimes it's difficult. Rita ************************************* Some people succeed in spite of their handicap. Others succeed because of them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2000 Report Share Posted September 12, 2000 mine effected my throat and still does just recently i have noticed some slurring a lisp ect with some words and have trouble prononceing some words.A throrat study done last year showed that fluids leak into my lungs due to throat musscle involvement and as i right this I ma on my 2and antibiotic to try and clear up a lung infection caused from aspirateing so much.So I say yes tyhe throat can start first. Jerry Deda wrote: Those of you who have problems with talking, would you please tell me how you first noticed it? Was it mainly in the slurring of speech or can it affect the throat first? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 From: Sue Hi , I am actually in the initial phases of speech problems. I can only tell you that it is scaring the heck out of me. It feels as though I have a vice around my neck muscles and I have to squeeze the words out. The volumn is affected as well as clarity of words. I also have the feeling that I need to swallow alot. It somehow feels like I have something in my throat that is not functioning properly. I also have slight increase in saliva and choke easily because of that. So I guess you could say I am having spasms in my neck and problems with muscles in my throat as well. Anyone else with these symptoms? Take care. Sue speech Those of you who have problems with talking, would you please tell me how you first noticed it? Was it mainly in the slurring of speech or can it affect the throat first? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 , My voice started with a hoarseness and clearing of my throat quite often. I would lose my voice if I talked too long or was stressed, like laryngitis (sp). Then when I had the flu and took an anti-viral medication (don't know if that contributed or not), my voice became very halting like. It seemed as if I could only speak on an exhale and then it was only one syllable at a time. That cleared up but returned when I took the interferon/ribavirin medication. Now my words are slurred, I have a different tonal quality, and when tired enunciation is extremely difficult. It goes back to the exhale type speech when really tired. When I am well rested, my voice can seem almost normal, but with use deteriorates rapidly., Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 Hi Sue! That's how I started (choking, coughing, lots of liquid everywhere...) I also had problems with reflux- might be worth mentioning to your doc. If you end up looking at Boox they will check for reflux damage on your vocal cords too. Lavon At 11:53 AM 09/13/2000 -0400, you wrote: From: Sue Hi , I am actually in the initial phases of speech problems. I can only tell you that it is scaring the heck out of me. It feels as though I have a vice around my neck muscles and I have to squeeze the words out. The volumn is affected as well as clarity of words. I also have the feeling that I need to swallow alot. It somehow feels like I have something in my throat that is not functioning properly. I also have slight increase in saliva and choke easily because of that. So I guess you could say I am having spasms in my neck and problems with muscles in my throat as well. Anyone else with these symptoms? Take care. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2000 Report Share Posted September 13, 2000 Sue I have the same exact problem as you discribe and as I said in post yesterday the gagging and coughing get so bad in my case the aspiation is a real problem and with that comes lung infections i am on antibiotics yet again Jerry Gerry Niquette wrote: From: Sue Hi , I am actually in the initial phases of speech problems. I can only tell you that it is scaring the heck out of me. It feels as though I have a vice around my neck muscles and I have to squeeze the words out. The volumn is affected as well as clarity of words. I also have the feeling that I need to swallow alot. It somehow feels like I have something in my throat that is not functioning properly. I also have slight increase in saliva and choke easily because of that. So I guess you could say I am having spasms in my neck and problems with muscles in my throat as well. Anyone else with these symptoms? Take care. Sue -----Original Message----- To: PLS-FRIENDS <PLS-FRIENDSegroups> Date: Tuesday, September 12, 2000 7:20 PM Subject: speech Those of you who have problems with talking, would you please tell me how you first noticed it? Was it mainly in the slurring of speech or can it affect the throat first? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2000 Report Share Posted September 14, 2000 I don't answer the phone at all now. I started slurring words, then got to where I can't say 'em at all. This has taken place over three years. At first folks told me it was just my imagination, that I spoke fine. *I* was on the inside and noticed the problem. It got worse, and there is no question now. When I go to drive-in windows it is often potluck for me -- often what I get has no relation to what I thought I ordered. I knew I was in trouble when I walked into a department store and couldn't even tell the clerk what I wanted to buy. Out of all the things, I find this the most difficult to deal with. I've had little business cards printed up that explain that I CAN'T TALK and other things, but those are real hard to use at say, 25 feet or so, unless you wrap them around a rock or something. As far as being arrested for being drunk, it is one of the things I kind of expect. I carry those business cards, my gimp sticker (parking permit) and NEVER, EVER drink a drop if I'm gonna be driving. I want to blow a 0.0 or have a blood test showing absolutely NO alcohol. With the way I walk that would be a cop's natural suspicion, and I sure couldn't talk my way out of it. I've had to tell several official clerk-types that I have a rare nerve condition (disease makes folks wonder if it might be contagious) that makes me act drunk, but I assure people I haven't been drinking, I'm just from the South. Galen Hekhuis, NpD, JFR, GWA ghekhuis@... We are the Cro-Magnon of the future Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2000 Report Share Posted September 14, 2000 When I go to drive-in windows itis often potluck for me -- often what I get has no relation to what Ithought I ordered. I thought that is what drive-in's were, potluck! Since you can't understand what they are saying (thru the mike) and they can't understand what we are saying, I just don't go to them anymore., Quote Link to comment Share on other sites More sharing options...
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