Guest guest Posted January 25, 2004 Report Share Posted January 25, 2004 Hey Melisa I will definately say that the progress we saw on Friday motivated me to keep that helmut on and realize its for Dylans best interest. I feel the same way about Dylan being a trooper, especially with all the sweating- its just got to be uncomfortable. Ian can actually take off the helmut himself? Im not sure how long Dylan will be in the helmut- we go back on 2/13 for our 2nd check up. She said in the begining it would be anywhere b/w 8-16 weeks - I just hope he has graduated by his 1st bday in June. We didnt make it to the aquarium but hope to attend the next one Long Beach is a little far for us so I hope its closer. Take care- Dylan 1/04 Local helmut Los Angles > Thanks . > > I think your right, once I see the progress I'll feel better, but Ian doesn't go for an adjustment until February 27th! So far today, he's had it on the whole time, since midnight, well except for 15 minutes this morning when I fed him. I let him air out because his forhead was so red. > > I tell Ian everyday to eat lots so he grows faster. I have to say though, he is just being such a trooper, I'm so proud (corny, huh?) > > Keep me updated on Dylan. That's awesome that your already seeing improvement. My Orthotist said you see the most improvement the first month, then the second month you'll see half the improvement of the first month, the third month you'll see half the improvement of the second month and so on...do you have any idea how long Dylan will have to wear it? My Orthotist keeps saying I'll probably stop putting it on Ian as soon as the May hot weather hits. I would hate to have him wearing it in the hot weather but I don't want to terminate his treatment before it's time either. I guess we'll just wait and see. > > Melisa > Ian 1/23/04 Loma > > ps. did you go to the Aquarium yesterday? > > > Re: Ian got his helmet - Loma (Day 2) > > > Hi Melisa- > I to felt the same way when Dylan got his helmut, and I cried for 2- > 3 days. I would be so sad and feel bad for him- it was especially > frustrating when I would try and breastfeed b/c the helmut made it > awkward and fell down over his eyes (it has since been adjusted and > it is much better) It has been almost 2 weeks, and things have > gotten better for both of us. He doesnt care whether its on or off > and im starting to not even notice it. We went for our first recheck > appointment and Dylan must have had a giant growth spurt b/c his > head change amazed the othothist and she remeasured him 3 times to > be sure, the change was from a 1 to a .3 (I think im writing that > right) so that gave us all the more confidence in our decision and > washed alot of the negative feelings I had away. Progress helps as > does time. I will admit he has still not wore his helmut for the > full 23 hrs- he still gets so sweaty and the helmut stinky, even > with cornstarch baby powder, and is getting a rash on his forehead > which the orthotist thinks could be a heat rash so I take of the > helmut thru out the day and let his forehead breathe a little- > Anyway hang in there, it soed get better and I never thought I would > be able to say that > > Dylan 1-04 Local Helmut Los Angeles > > > --- In Plagiocephaly , " MLB " <Groove79@p...> wrote: > > Thanks everyone for your kind words about my Ian. > > > > Well, today he wore his helmet about...20 hours. I checked on him > before I went to bed last night and he was sleeping peacefully. At > 5:15 am (10 hrs after he went to bed) I heard him babbling so I went > in and he had his helmet in his hands and was chewing on it! Well, I > gave him a break (by not putting it back on), gave him his pacifier > and he went back to sleep for a couple hours. He wore it all day > today except at the end of his morning nap it was off again! He > probably took it off because he was sweating so bad. His hair was > all wet and beads of sweat were still inside the helmet. But, he > slept with it on for 2 hours during his afternoon nap. Tonight he > went to bed at 6:45, I just checked on him and he's sleeping > peacefully! > > > > It is causing a bit of a problem with Isabelle. They've just > recently started to play with toys together, take toys away from > each other, etc. And, I think Isabelle views Ian's helmet as HIS toy > that he WON'T share with her. She was really mad about it this > morning when they were playing. She kept grabbing it and he'd pull > his head away and she'd start to cry or worse let out one of her > really high pitched screams. It was kind of sad...ok and a little > funny. > > > > So here's the thing, Ian totally doesn't mind the helmet, he's as > happy as can be, but it still bothers me...why? Do I feel guilty? I > don't know. I can't figure it out. I think he looks adorable in it, > he's happy, no one else seems to mind it...so why do I still feel > bad for him? I'm sure in a few more days, when I'm completely use to > it, I'll feel better. Especially when I start to see his little head > rounding out! > > > > Well, that's our 'day 2' update. The helmet seems to fit really > good so hopefully things will continue going good. > > > > Melisa > > Ian B. 1/23/04 Loma > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
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