Re: Hand sucking--Any ideas?

[Guest guest]

What are your/others thoughts about Depakote for the hand sucking and

Clonodine(sp?) for sleep onset and staying asleep issues? I live in Michigan,

Caleb's regression(although I saw stuff at age one) was clearly obvious the

November after he turned 2. I think seasonal affective stuff plays in b/c the

hand sucking was less, does seem to increase in Nov after sun decreases

dramatically and because he is getting less physical activity outdoors. He is

running around living room more also. This is a very unscientific description,

but I feel like his brain waves get more agitated during this time of year...

Thanks again. Pat

[Guest guest]

I like clonidine for sleep if tenex won't do the job - I don't think I would use

depakote unless there were a seizure disorder, and L-carnitine needs to be given

alongside depakote to protect the liver from fatty acid oxidation no matter why

it is given.  Yes, allergies increase inflammatory cytokines and make everything

worse - I really like quercetain with Vit C for this.  I also like high doses of

pure DHA to help this for some kids.  Also Vit D should probably be raised to

10,000iu daily in the winter months per the current recommendations, and

whenever you get a blood test for any reason be sure and check Vit D (OH)

levels, but apparently you would have to get 200,000daily for about 5 months to

get toxicity from what I have recently learned.  Dr. JM

Subject: Re: Hand sucking--Any ideas?

To: csb-autism-rx

Date: Wednesday, December 10, 2008, 4:23 AM

What are your/others thoughts about Depakote for the hand sucking and

Clonodine(sp? ) for sleep onset and staying asleep issues? I live in Michigan,

Caleb's regression(although I saw stuff at age one) was clearly obvious the

November after he turned 2. I think seasonal affective stuff plays in b/c the

hand sucking was less, does seem to increase in Nov after sun decreases

dramatically and because he is getting less physical activity outdoors. He is

running around living room more also. This is a very unscientific description,

but I feel like his brain waves get more agitated during this time of year...

Thanks again. Pat

[Guest guest]

We have tried a number of different GI meds (pentasa, sulfasalazine,

endocort, etc), and my two kids don't seem to tolerate any of them.

The pentasa type meds cause abdominal pain, and we had a problem with

severe reflux on endocort. What should we try to address GI

inflammation? Dr. K has suggested trying endocort again soon, but I am

feeling wary. I think these IBD meds have significant side effects.

>

>

> Subject: Hand sucking--Any ideas?

> To: csb-autism-rx

> Date: Sunday, December 7, 2008, 8:44 AM

>

>

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> Hi,

> Our son started sucking on his entire hand when he regressed into

> autism at age 2. He is 5 now, we have tried everything to decrease

> this behavior. He is heavily supplemented and none of this has seemed

> to decrease the need. We do chewy tubes--he still prefers the hand.

> We tried chewing gum, it helps, but he can't have soy or rice(in most

> gums) and the only really safe gum for him--a gum with Xylitol, also

> causes diarhea for him. We went to Krigsman this past summer for the

> gut problems and while on the 60 days of prednisolone( the first

> treatment for Crohn's he used)my son's hand sucking decreased a bit--

> so did his posturing behaviors he did to soothe his lower gut. So we

> think the sucking may be a way to cope with gut discomfort/pain. Any

> ideas on what we might do to decrease this? He hates bandaids and

> would peel them right off. We are looking at issues of infection in

> his hand as well as a host of dental problems as he gets older. Any

> suggestions would be appreciated! Pat

>

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[Guest guest]

This is what I recommend: 

1)  Strict dietary control, including elimination of ALL refined sugar, with a

90-food IgG every 4-6 months to make sure certain foods are not keeping the gut

inflamed.

2)  Stool and urine organic acid tests to direct treatment of gut pathogens; px

anti-fungals and anti-bacterials (not nystatin) followed by maintenance with

natural anti-pathogens, like Kaprycydin-A and Uva Ursi (I alternate these)

3)  Natural anti-inflammatories, such as VRP's Advanced Inflammation Control.

(also VRP's Epicor to increase secretory IgA to help shore up gut mucosa as

protective barrier

4)  Plenty of Vit C & magnesium (to bowel tolerance), Omega-3's esp DHA, B's &

Aminos

5)  Methylcobalamin and folinic acid to help both gut and brain; get mercury

loads down 

6)  Ecological Formulas IGA+, Integrative's Silybin Phytosome, Zinc and

Selenium  and other compounds to help glutathione synthesis

7)  TD-LDN to help the immune system; HBOT if you can afford it (getting these

kids well is not cheap!)  Dr. JM

Subject: Re: Hand sucking--Any ideas?

To: csb-autism-rx

Date: Saturday, December 13, 2008, 5:21 AM

We have tried a number of different GI meds (pentasa, sulfasalazine,

endocort, etc), and my two kids don't seem to tolerate any of them.

The pentasa type meds cause abdominal pain, and we had a problem with

severe reflux on endocort. What should we try to address GI

inflammation? Dr. K has suggested trying endocort again soon, but I am

feeling wary. I think these IBD meds have significant side effects.

>

> From: Pat DiSalvo <disalvop@.. .>

> Subject: [csb-autism- rx] Hand sucking--Any ideas?

> To: csb-autism-rx@ yahoogroups. com

> Date: Sunday, December 7, 2008, 8:44 AM

>

>

>

>

>

>

> Hi,

> Our son started sucking on his entire hand when he regressed into

> autism at age 2. He is 5 now, we have tried everything to decrease

> this behavior. He is heavily supplemented and none of this has seemed

> to decrease the need. We do chewy tubes--he still prefers the hand.

> We tried chewing gum, it helps, but he can't have soy or rice(in most

> gums) and the only really safe gum for him--a gum with Xylitol, also

> causes diarhea for him. We went to Krigsman this past summer for the

> gut problems and while on the 60 days of prednisolone( the first

> treatment for Crohn's he used)my son's hand sucking decreased a bit--

> so did his posturing behaviors he did to soothe his lower gut. So we

> think the sucking may be a way to cope with gut discomfort/pain. Any

> ideas on what we might do to decrease this? He hates bandaids and

> would peel them right off. We are looking at issues of infection in

> his hand as well as a host of dental problems as he gets older. Any

> suggestions would be appreciated! Pat

>

>

>

>

>

>

>

>

>

>

>

>

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>

>

>

[Guest guest]

I don't know what meds you use if none of Dr. K's work, thank you for the info.

on Pentasa, This is when our son started the posturing again, but we also has a

soy infraction, so we weren't sure. HBOT(we do soft chamber) does help with the

gut stuff, (we notice more formed/normal stools) but it is very expensive and a

huge time commitment. thx Pat

[Guest guest]

You mention Tenex--in your opinion, is using a med like this or clonodine a last

resort if Melatonin,and other natural remedies do not work? What is quercetain

and who sells it? Why straight DHA versus regular Omega-3 combinations? This

is all very helpful... Thank you. Pat