Re: Order of treatments

[Guest guest]

, Never give up! Keep up the fight by studying everything that you can. Use Google and enter search words like treat advanced prostate cancer. I suspect that you may hear from Chuck Maack, on the yahoo forum. In the mean time go here and read the amazing story of Doug, who continues the good fight. http://www.roblesmar.com/features/dougs_prostate.htm#after_llu Read it all, down to the present. Best to you Fuller Manley wrote: I am 59 years old, diagnosed PCa 8-9-06 Gleason 9. hasn't goneinto the bone, has spread to my lungs & bladder. Which has beenresolved. Taking Ketoconazole pills & Zoledex shots. PSA is 1.67I started taking casodex until it stopped working, then I was put on Nilandron and when that stopped working I was put on Ketoconazole which I am on now. The doctor said there is only a 30 % chance it will do anything. Through all 3 drugs I was receiving Zoledex shots.My doctor said that there isn't anymore medication he can give me so when this stops working I will be put on Chemo & 1 1/2 years later I will die. He said that is

the average.It seems strange to me that there isn't more than 3 drugs available. Needless to say I am very depressed over all this.Please fell free to advise me off or on the list. I am open for anything.Thank-you ManleyFuller (Sonny)Author of PROSTATE CANCER MEETS THE PROTON BEAMSoon to be available in print at:

http://stores.lulu.com/cnsjones

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Thank-you --- Manleyhttp://web.mac.com/jamespmanley/iWeb/Photoshop_ElementsI am 59 years old, diagnosed PCa 8-9-06 Gleason 9. hasn't goneinto the bone, has spread to my lungs & bladder. Which has been resolved. Taking Nilandron pills & Zoledex shots. PSA is 0.3 , Never give up! Keep up the fight by studying everything that you can. Use Google and enter search words like treat advanced prostate cancer. I suspect that you may hear from Chuck Maack, on the yahoo forum. In the mean time go here and read the amazing story of Doug, who continues the good fight. http://www.roblesmar.com/features/dougs_prostate.htm#after_llu Read it all, down to the present. Best to you Fuller Manley <Jesus.is.healing.my.cancergmail> wrote:I am 59 years old, diagnosed PCa 8-9-06 Gleason 9. hasn't goneinto the bone, has spread to my lungs & bladder. Which has beenresolved. Taking Ketoconazole pills & Zoledex shots. PSA is 1.67I started taking casodex until it stopped working, then I was put on Nilandron and when that stopped working I was put on Ketoconazole which I am on now. The doctor said there is only a 30 % chance it will do anything. Through all 3 drugs I was receiving Zoledex shots.My doctor said that there isn't anymore medication he can give me so when this stops working I will be put on Chemo & 1 1/2 years later I will die. He said that is the average.It seems strange to me that there isn't more than 3 drugs available. Needless to say I am very depressed over all this.Please fell free to advise me off or on the list. I am open for anything.Thank-you ManleyFuller (Sonny)Author of PROSTATE CANCER MEETS THE PROTON BEAMSoon to be available in print at: http://stores.lulu.com/cnsjonesLooking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

(snip)

> My doctor said that there isn't anymore medication he can give me so

> when this stops working I will be put on Chemo & 1 1/2 years later I

> will die. He said that is the average.

Is that doctor a cancer specialist, an oncologist? I hope so, and that

(s)he is well-trained in treatment of PCa.

I recommend the handbook _Living with Advanced Prostate Cancer_

available free from the Institute for Continuing Healthcare Education

www.iche.edu/advancedpca

and via the objective, encyclopedic and reliable website of the Prostate

Cancer Research Institute (PCRI) at: http://prostate-cancer.org/index.html

Also on the latter site, there is much information available for those

with advanced cases. See the sections " Androgen Independent PC " and

" High Risk PC. "

There is a number of clinical trials of various treatments. If the

current medic is not aware of them, I suggest finding a PCa specialist

who is. Some are listed on the PCRI site via the portal

http://prostate-cancer.org/resource/find-a-physician.html

And lastly, post a Prostate Cancer Digest on the website of P2P

(Physician to Patient). Registration is available here:

http://www.prostatepointers.org/mlist/mlist.html

At least one PCa specialist will likely respond within a few days with

advice and information at no charge. It can be a life-saver, as I very

well know.

I'm sorry to see that the present " doctor " appears to have little to

offer when there is so much help available.

Good luck.

Steve J

" We must tailor the treatment to the nature of the disease. We must

listen to the biology. "

-- B. Strum, MD

Medical Oncologist

[Guest guest]

,There is currently a small phase II trial going on at Yale University with the drug Phenoxodoil. Phenoxodoil has bee used in Australia with decent results. I believe that you could qualify for the trial, but it is small so contact them immediately. I do have a friend who just joined the trial and is just now starting the drug. It seems to have minimal side effects. You can read more about the trial at my blog for advanced prostate cancer at: www.advancedprostatecancer.net

Good luck.On Sat, Mar 1, 2008 at 10:06 PM, Manley wrote:

I am 59 years old, diagnosed PCa 8-9-06 Gleason 9. hasn't gone

into the bone, has spread to my lungs & bladder. Which has been

resolved. Taking Ketoconazole pills & Zoledex shots. PSA is 1.67

I started taking casodex until it stopped working, then I was put on

Nilandron and when that stopped working I was put on Ketoconazole

which I am on now. The doctor said there is only a 30 % chance it will

do anything. Through all 3 drugs I was receiving Zoledex shots.

My doctor said that there isn't anymore medication he can give me so

when this stops working I will be put on Chemo & 1 1/2 years later I

will die. He said that is the average.

It seems strange to me that there isn't more than 3 drugs available.

Needless to say I am very depressed over all this.

Please fell free to advise me off or on the list. I am open for

anything.

Thank-you

Manley

-- T Nowak

[Guest guest]

> There is currently a small phase II trial going on at Yale University

> with the drug Phenoxodoil. Phenoxodoil has bee used in Australia with

> decent results. I believe that you could qualify for the trial, but it

> is small so contact them immediately. I do have a friend who just

> joined the trial and is just now starting the drug. It seems to have

> minimal side effects. You can read more about the trial at my blog for

> advanced prostate cancer at: www.advancedprostatecancer.net

> <http://www.advancedprostatecancer.net>

Pardon; the correct spelling is " phenoxodiol. "

Details will be found on this site of the National Institutes of Health:

http://www.clinicaltrials.gov/ct2/show/NCT00557037?term=phenoxodiol & cond=prostat\

e+cancer & rank=1

or

http://tinyurl.com/2nzgsg

The med failed of FDA approval about a year ago, and I've heard from Dr.

Strum, renowned PCa specialist, that it was primarily due to the trial

design. The drug itself appears to have great promise. I'm hoping that

it will be available if/when I need to move to the next stage.

Regards,

Steve J

[Guest guest]

Thanks, I forwarded this to my doctor. --- Manleyhttp://web.mac.com/jamespmanley/iWeb/Photoshop_ElementsI am 59 years old, diagnosed PCa 8-9-06 Gleason 9. hasn't goneinto the bone, has spread to my lungs & bladder. Which has been resolved. Taking Nilandron pills & Zoledex shots. PSA is 0.3 ,There is currently a small phase II trial going on at Yale University with the drug Phenoxodoil. Phenoxodoil has bee used in Australia with decent results. I believe that you could qualify for the trial, but it is small so contact them immediately. I do have a friend who just joined the trial and is just now starting the drug. It seems to have minimal side effects. You can read more about the trial at my blog for advanced prostate cancer at: www.advancedprostatecancer.netGood luck.On Sat, Mar 1, 2008 at 10:06 PM, Manley <Jesus.is.healing.my.cancergmail> wrote:I am 59 years old, diagnosed PCa 8-9-06 Gleason 9. hasn't goneinto the bone, has spread to my lungs & bladder. Which has beenresolved. Taking Ketoconazole pills & Zoledex shots. PSA is 1.67I started taking casodex until it stopped working, then I was put on Nilandron and when that stopped working I was put on Ketoconazole which I am on now. The doctor said there is only a 30 % chance it will do anything. Through all 3 drugs I was receiving Zoledex shots.My doctor said that there isn't anymore medication he can give me so when this stops working I will be put on Chemo & 1 1/2 years later I will die. He said that is the average.It seems strange to me that there isn't more than 3 drugs available. Needless to say I am very depressed over all this.Please fell free to advise me off or on the list. I am open for anything.Thank-you Manley-- T Nowak

[Guest guest]

--- Manleyhttp://web.mac.com/jamespmanley/iWeb/Photoshop_ElementsI am 59 years old, diagnosed PCa 8-9-06 Gleason 9. hasn't goneinto the bone, has spread to my lungs & bladder. Which has been resolved. Taking Nilandron pills & Zoledex shots. PSA is 0.3 (snip)> My doctor said that there isn't anymore medication he can give me so> when this stops working I will be put on Chemo & 1 1/2 years later I> will die. He said that is the average.Is that doctor a cancer specialist, an oncologist? I hope so, and that (s)he is well-trained in treatment of PCa.Yes, he is the chief oncologist.