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Hi Sally, and welcome, welcome, welcome to the greatest

information, support, and fun group on the internet.

You will probably find more.............friendship.

I am from Iowa, 52 y/0, and was diagnosed 1 year ago

in September. I have had to slow down some, give up doing

some of the stuff I used to, and am still working on relaxing.

I have always been an extremely active, hard-working, ambitious, and try

anything gal. So, this is difficult admitting

that I cannot do some things anymore.

But, I am planning a week-long trip the the Boundary

Waters Canoe Area on the Minnesota/Canada border for

late next spring, with my best friend. So, I WILL do that again.

Haven't done it for 8 years.

Take care, and take care of yourself as well as the boys.

Laurel

> Hi, everyone. My name is Sally Sullivan. I live in Alabama. My

> diagnosis of PLS was confirmed about 2 weeks ago. I'm glad all of you are

out there and glad I'm not in the

> perverbial " boat " by myself.

>

> Sally

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Hi ( & all).

Mom isn't on line, but she will be visiting me for a few days. I'll

try to get her to say Hi! to you all. What is this conference that

some others wrote about? (The one with the dress code?)

See ya!

Cheryl

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  • 7 years later...
Guest guest

I've been reading your posts with interest. My husband had his

prostate removed 6/07 with the DaVinci robot at age 68. His doctor

thought my husband was very active for his age and recommended a

more aggressive approach. He had 3 brothers with prostate cancer--

one in his 50's who also had his removed, the other two in their

60's. Both of those cases went to the bone, diagnosed too late.

One has since passed. He had PSA tests every 6 months and when it

jumped a bit his doctor recommended a biopsy. Had my husband done

more research he probably would not have gone through with it, but

I'm glad he did. He has suffered from stress incontinence. He is a

very active person and does not have a desk job. His doctor told

him if he sat at a desk he would not leak as much. He also suffers

from ED and is taking Viagara with limited success. The one mistake

he made was he thought the surgery was no big deal and went right

back to work with the catheter in place. He didn't take it easy.

After the catheter was removed (which he complained about

constantly) he had intense abdominal cramps during the night, and I

had to take him to the ER. They did a cat scan and found urine

leaking inside. He didn't give that reattachment time to heal, so

they had to put the catheter back in. He drove me nuts during this

entire time. I kept telling him he had major surgery and he had

better listen to the doctor and take it easy. He is not a patient

person. We went to a seminar on incontinence and ED put on by his

doctor's office. They had a guy there who had both the implant and

the valve installed that shuts off urine flow. My husband thought

it was a big sales pitch. I said those things were last resorts. I

would suggest to those of you who are going to have surgery to do

your kegel exercises beforehand (he didn't) and to take it easy

after the surgery. Also, make sure you have a surgeon that has done

numerous operations with the robot. Ask how many. His doctor was

one of the first ones trained on it. Even though he has to deal

with some incontinence and ED, I still think it's better than having

cancer that you have to constantly worry about. Especially when you

consider his brothers.

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