Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 , You have asked for views on this subject so I am responding to that request otherwise I would not have replied directly to Kathy’s mail on List. From time to time members of this List complain about the volume of posts. That complaint is not unique to this List, but is a common one. Sometimes the complaint is not justified and merely reflects the fact that the complainant does not find the posts useful for their particular situation or, in some cases, especially for newly diagnosed men, it is because they cannot relate to what the post is about. I have always felt therefore that one should consider carefully who will benefit and how before posting on List and that if Press Releases or Abstracts are posted that there should a brief note to guide the uninitiated as to the potential value of the item posted. I personally learned a tremendous amount for posted Abstracts and studies, but usually this was when an explanation was given or when there was a discussion on the Abstract – or better still, the study itself. Without this kind of interaction I think that there is a good chance of the item being misinterpreted, misunderstood or merely ignored because the value is not clear and they are merely part of the overwhelming flood of information. It is interesting that you say that some (? many? all) should be taken with a pinch of salt and that they are of interest as an indication of what may come through later. You may understand this, but do the newly diagnosed, or do they plod through masses of items that are not even of interest to them, let alone of any specific use? Do they know how few studies based on laboratory growths in petrie dishes or mouse tumors are of any real value when considering how they might affect a man with prostate cancer? I have been watching for developments and reading about prostate cancer for over 11 years now and cannot really recall any great change in treatment that resulted from the myriad of ‘breakthroughs’ that have been announced regularly as being available – usually in five years time. The treatment of prostate cancer is essentially unchanged in that time – surgery for the majority of men diagnosed, radiation for most of the rest, with hormone therapy a third option. Cryosurgery and HIFU are still minority treatment choices. Of course there have been changes in the delivery of the treatment – laparoscopic surgery has been a substantial advance, but that wasn’t developed for prostate cancer. It was used for many other surgeries before prostate surgery. Similarly the delivery of radiation has improved substantially, but that is by land large a change in the mechanical delivery system, the only significant differential being the development of proton beam. In my opinion the true value of Lists like this is in providing answers to specific questions asked by members, where the collective knowledge of the other members may enlighten and guide. It is not in posting unexplained technical papers which may do neither. All the best Terry Herbert I have no medical qualifications but I was diagnosed in ‘96: and have learned a bit since then. My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za Dr “Snuffy” Myers : " As a physician, I am painfully aware that most of the decisions we make with regard to prostate cancer are made with inadequate data " From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of Metcalf Sent: Saturday, 29 March 2008 2:38 AM To: ProstateCancerSupport Subject: Re: UroToday - Complications of Open Radical Retropubic Prostatectomy in Potential Candidates for Active Monitoring - Abstract Kathy I think we just have to accept that these posts are just indicative of present research results. From my reading they have not all had peer reviews and therefore must be taken with a pinch of salt. I find them useful however to see what is being looked at and what may come through later with further work. What does eveyone else think?? RE: UroToday - Complications of Open Radical Retropubic Prostatectomy in Potential Candidates for Active Monitoring - Abstract Terry, As I have said before I post these studies because they may be helpful to some. My time is very limited because I am working full time. I have had to pull back my involvement. What I am sending from UROTODAY is the abstract not a press release. These are journal summaries for physicians. They are at time technical but men should be aware they are what their physicians may be reading. At the bottom of each post is information that will help anyone get more information. Written by Loeb S, Roehl KA, Helfand BT, Catalona WJ. These are the authors of the article. The first and the last are the one who have been most involved. Reference Urology. 2008 Mar 6. Epub ahead of print. doi:10.1016/j.urology.2007.12.016 This is information about the Journal where the article is published. Most articles will cost money to read but if anyone is interested they can go to a medical library and read it for free. If not you have to pay for the cost of the article. PubMed Abstract PMID:18329080 This is the PubMed number that will help you find a link to the article online through the National Library of Medicine, I would appreciate it if others can explain the abstracts if they need explaining. My time is very limited. If they are not helpful, I will discontinue sending them to the list. Kathy Quote Link to comment Share on other sites More sharing options...
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