New member

[Guest guest]

I bet your golf wouldn't be so skunky if your body wasn't dealing with this

skunky PLS. But that dosn't mean your LIFE needs to be skunky, too. Give

us a chance and we will perk you right up. You will find people with PLS of

every degree and there is sure to be someone you will identify with.

Nothing seems to help as much as knowing there is someone, somewhere, who

really does understand what you are living with and what you are saying and

what you may be asking. Life can be good. " Most people are just about as

happy as they make up their mind to be " . I hope you have decided to be

happy.

Ronnie Grove

NEW MEMBER

>

> This is my first time at this, and I just need to hear from people

with the same illness as I have. I have yet to talk to anybody with PLS.

They sent me to a support group that was for ALS patients, but I did not

feel comfortable there as they where in alot worse shape then I am, and to

me it was depressing.

>

>

>

>

>

>

[Guest guest]

Hi SkunkyGolfer:

first of all, do you have a name?

Welcome to this group. Unfortunate that you have to

get to know us this way, but it is the best place to be

when you have PLS. I was diagnosed almost 1 1/2

years ago, and was symptomatic for a couple of yrs

before that. I'm female, 53, live in Iowa, married,

have 7 children between us, and 7 grandchildren between us with 2 more on

the way. One of which will make

us great-grandparents. Uffda!

I am fortunate in that my PLS affects me mildly compared to so many other

dear people. My legs are weak, my

toes drag, my knees snap (don'tlaugh, Ronnie), and

my balance is off. Other than that, I am quite a whiz!

Welcome, and ask away any questions you may have.

Take care, and God bless.

Laurel

NEW MEMBER

>

> This is my first time at this, and I just need to hear from people

with the same illness as I have. I have yet to talk to anybody with PLS.

They sent me to a support group that was for ALS patients, but I did not

feel comfortable there as they where in alot worse shape then I am, and to

me it was depressing.

>

>

>

>

>

>

[Guest guest]

Hi:

My mane is Rita, I live in NH and have had PLS for over 20 years. You

didn't tell us very much about your circumstances, but you have come to

the right place for support. I have been fortunate enough to me 20

people with PLS. One thing to remember PLS is life changing, not life

threatening. I still drive, walk with the aid of a four wheeled walker

and still function very well. I am one of the lucky ones. I think

positive attitude helps, and the less stress in your life, the better

you feel. Where do you live, tell us about you.

Rita

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

[Guest guest]

Laurel wrote:

My legs are weak, my

toes drag, my knees snap (don'tlaugh, Ronnie), and

my balance is off. >>

sure sounds like my " sexy " walk, Laurel!! LOL

what do you do about the knee snap? Mine does the same and I got a

knee brace with hinges. It was still snapping and I got impatient so

just today I took it downstairs and took it apart on my husbands tool

bench. I did some " adaptive " cutting on some " things " he has down

there, stuck them in the brace to increase the bend.....and it now

helps much more. Course, I dont imagine the technicians at the

orthodics clinic will be happy with me. )

i do seem to have some foot swelling from all of the 'gear "

strapped on my right side, but the doctor said that was normal. Is

it?

maggie

> Hi SkunkyGolfer:

> first of all, do you have a name?

> Welcome to this group. Unfortunate that you have to

> get to know us this way, but it is the best place to be

> when you have PLS. I was diagnosed almost 1 1/2

> years ago, and was symptomatic for a couple of yrs

> before that. I'm female, 53, live in Iowa, married,

> have 7 children between us, and 7 grandchildren between us with 2

more on

> the way. One of which will make

> us great-grandparents. Uffda!

> I am fortunate in that my PLS affects me mildly compared to so many

other

> dear people. My legs are weak, my

> toes drag, my knees snap (don'tlaugh, Ronnie), and

> my balance is off. Other than that, I am quite a whiz!

> Welcome, and ask away any questions you may have.

> Take care, and God bless.

> Laurel

> NEW MEMBER

>

>

> >

> > This is my first time at this, and I just need to hear from

people

> with the same illness as I have. I have yet to talk to anybody

with PLS.

> They sent me to a support group that was for ALS patients, but I

did not

> feel comfortable there as they where in alot worse shape then I am,

and to

> me it was depressing.

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi maggie:

For my " snappy " knees, I just concentrate on taking

as long a stride as I can, calmly, and slowly, (but

who of us with PLS can move quickly, right?).

I am supposed to have ankle orthotics, but they sound

so uncomfortable, and I can still lift my leg, and toes

when I walk if I really concentrate.

Today was a good day for walking. My legs felt " lighter "

than they have in a long time, and I felt like I looked quite

normal when walking. Just about that time, a co-worker

walked past me in the hall and asked if I was limping!

Guess the walk wasn't quite normal, huh?

Laurel

NEW MEMBER

> >

> >

> > >

> > > This is my first time at this, and I just need to hear from

> people

> > with the same illness as I have. I have yet to talk to anybody

> with PLS.

> > They sent me to a support group that was for ALS patients, but I

> did not

> > feel comfortable there as they where in alot worse shape then I am,

> and to

> > me it was depressing.

> > >

> > >

> > >

> > >

> > >

> > >

>

>

>

>

>

>

[Guest guest]

welcome. as you can see by tonights postings......just ask a

question or bring up a concern and this group responds with answers,

info, and alot of caring. )

I hope you will tell us all a bit about yourself. )

maggie

>

> This is my first time at this, and I just need to hear from

people with the same illness as I have. I have yet to talk to

anybody with PLS. They sent me to a support group that was for ALS

patients, but I did not feel comfortable there as they where in alot

worse shape then I am, and to me it was depressing.

[Guest guest]

Hi Lynn! Enjoy the ride at Disney! Your party will love pushing you

around since all parks I know of let " handicapped " patrons ahead of most if

not all of the folks in line. There are so few perks with this kind of

thing so this is a real pleasure. I have even had teen relatives volunteer

to take me with them for just this reason. Lavon

P.S. I was diagnosed the month after you were. Instead of going to the ALS

support group here in San I continue to go to my Sci Fi book

discussion group- now there's a bunch of people I have something in common

with!

At 01:03 AM 02/10/2001 +0000, you wrote:

> My name is LYNN, and I live in Arizona as of now. Originally it was

> Hayward, Ca. I retired from their in June 1997.I worked for the County

> of Alameda.I was diagnosed with PLS in Nov.1999. I had it for a few

> years before that, but just figured it was old age and didn't pay any

> attention to it. The first system was my balance. Then it got to the

> point, that it was hard to go up and down stairs. Nothing but

> elevators. Now I can't do them at all. My legs are weak, but I'm still

> walking. Very gently. I still am able to fix meals, and eat to much. I

> have gained so much weight. I wish I could find a tape to exercise to

> while sitting down. I have alot of trouble with dealing with the changes

> I have to make, especially when my husband has to help me. Now he is

> talking about pushing me in a wheel chair, when we take our grandchildren

> to Disney Land and places like that. That is a problem I have to deal

> with. But if I look around I can always find somebody in worst shape

> then me.

>

>

[Guest guest]

Welcome,

I'm glad that you found this website. Please let us know a little more

about you. I was diagnosed last Sept. 2000. What about you?

Sally Sullivan

NEW MEMBER

>

> This is my first time at this, and I just need to hear from people

with the same illness as I have. I have yet to talk to anybody with PLS.

They sent me to a support group that was for ALS patients, but I did not

feel comfortable there as they where in alot worse shape then I am, and to

me it was depressing.

>

>

>

>

>

>

Shop online without a credit card

http://www.rocketcash.com

RocketCash, a NetZero subsidiary

[Guest guest]

if you go to Disneyland in a wheelchair you get first class treatment. You don't

have to wait in line for anything and that means everyone in you party. If you

get a flat tire they take you behind the scenes and pump it up plus you get

great parking; not bad for having to use a

wheelchair.................................kathy

skunkygolfer@... wrote:

> My name is LYNN, and I live in Arizona as of now. Originally it was

Hayward, Ca. I retired from their in June 1997.I worked for the County of

Alameda.I was diagnosed with PLS in Nov.1999. I had it for a few years before

that, but just figured it was old age and didn't pay any attention to it. The

first system was my balance. Then it got to the point, that it was hard to go

up and down stairs. Nothing but elevators. Now I can't do them at all. My

legs are weak, but I'm still walking. Very gently. I still am able to fix

meals, and eat to much. I have gained so much weight. I wish I could find a

tape to exercise to while sitting down. I have alot of trouble with dealing with

the changes I have to make, especially when my husband has to help me. Now he is

talking about pushing me in a wheel chair, when we take our grandchildren to

Disney Land and places like that. That is a problem I have to deal with. But if

I look around I can always find somebody in worst sh!

> ape then me.

>

[Guest guest]

Kathy,

Thank you so much for the information on the wheel chair.

Everybody has been very helpful, and I really apreciate it. Thanks

again.

LYNN

[Guest guest]

Anytime. Welcome to the group by the way. There is always someone here for

you. It may not be like getting a real hug or anything but it is the closest

we can get. Take care.............................kathy

skunkygolfer@... wrote:

> Kathy,

> Thank you so much for the information on the wheel chair.

> Everybody has been very helpful, and I really apreciate it. Thanks

> again.

> LYNN

>

[Guest guest]

,

No one knows the cause of PLS. And no one has a cure.

The medications currently prescribed treat the

symptoms, but do not stop the underlying disease

process.

Mark Weber

--- Trzecinski

wrote:

> Hello, I am so glad to be here..What cause of PLS or

> there are cured for that?..

>

> =====

> Trzecinski

>

> __________________________________________________

>

[Guest guest]

Hi MArk, Thank You Very much..

--- Mark Weber wrote:

> ,

>

> No one knows the cause of PLS. And no one has a

> cure.

> The medications currently prescribed treat the

> symptoms, but do not stop the underlying disease

> process.

>

> Mark Weber

>

> --- Trzecinski

> wrote:

> > Hello, I am so glad to be here..What cause of PLS

> or

> > there are cured for that?..

> >

> > =====

> > Trzecinski

> >

> > __________________________________________________

> >

[Guest guest]

Hi :

Welcome to our very exclusive group. Mark made the point in a very

simple manner, and thats PLS. However, you must not be discouraged. I

am 65, have had PLS for well over 20 years, and I still do pretty well.

I do walk with the aid of a walker, but still drive, and function very

well. PLS is not life threatening, it is life changing. You will also

learn that (having met 21 people with PLS), that we all have different

degrees of progression, some are worse than others, for reason not

understood. You will also find that we all, and in many cases our

neurologist, have different idea's as to how to treat this disease.

Mine is to try to alleviate as much stress from your life as possible,

stay positive, and good things will come of it, both physically and

mentally.

Tell us more about you.

Rita

Luv & Hugs!

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

[Guest guest]

Hello Rita, My legs feel funny!...I am so tired.. rest

are..under my story...at

http://groups.com/multidisablities

I think..Thanks,

--- ritadfromhollis@... wrote:

> Hi :

>

> Welcome to our very exclusive group. Mark made the

> point in a very

> simple manner, and thats PLS. However, you must not

> be discouraged. I

> am 65, have had PLS for well over 20 years, and I

> still do pretty well.

> I do walk with the aid of a walker, but still drive,

> and function very

> well. PLS is not life threatening, it is life

> changing. You will also

> learn that (having met 21 people with PLS), that we

> all have different

> degrees of progression, some are worse than others,

> for reason not

> understood. You will also find that we all, and in

> many cases our

> neurologist, have different idea's as to how to

> treat this disease.

> Mine is to try to alleviate as much stress from your

> life as possible,

> stay positive, and good things will come of it, both

> physically and

> mentally.

>

> Tell us more about you.

>

> Rita

>

> Luv & Hugs!

>

>

>

>

> *************************************

> Some people succeed in spite of their handicap.

> Others succeed because

> of them.

>

>

=====

Trzecinski

__________________________________________________

[Guest guest]

I tried to get your story, but was not able to do so, can you elabrate a

little more, here, so we can get to know you???

Rita

Luv & Hugs!

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

[Guest guest]

Hi ,

Welcome to this very supportive group. I have not been able to welcome

all of the other new comers and hope to do so soon. Right now, welcome

to all of you. I have been a member since 1999, I think. Time passes rather

quickly for me. I am still working and things do change rapidly at work,

at home, and in my life. The only thing that hasn't changed rapidly is

my PLS. My neurologist believes I am better now than when I first saw him.

I equate that with a very positive attitude, a good sense of humor, and

faith in God's will for me.

The cause of PLS is uncertain, . There is no cure. Stress makes

things worse, so try to remove as much stress in your life as possible.

In fact, I would be glad to hear if stress affected you and ended in PLS.

Let me explain. Many of us who are on this line have experienced "toxic

stress", stress which lasted at least six months or more and could not

be dispelled. Usually, stress is a variable that helps us focus and get

a task done. Toxic stress does not go away when we finish a task, usually

because there are several other tasks facing us and we feel overwhelmed.

The chemicals that are a byproduct of stress are not removed from the body

and compromise the immune system. This leads to a breakdown of the immune

system and some "evil thing" such as PLS emerges. Frequently it is a heart

attack or stroke or ulcers of the worst kind. We just happened to get the

"disease which sucks," as Mark Weber as coined it.

Feel free to ask any and all questions. Someone will have an answer

for you. We will all support you and tell you our stories. By now, many

of us will tell you personally, since we have told many others in the past.

If you would like to see some of the stories now, go to 's

website at www.geocities.com/mdmfoo/pls.html. From there, you will learn

of other websites that are very beneficial.

Good luck to you and all the other "newbies".

Mike Gray Logansport IN

Trzecinski wrote:

Hello, I am so glad to be here..What cause of

PLS or

there are cured for that?..

=====

Trzecinski

__________________________________________________

[Guest guest]

:

Welcome to our group. I agree with the answers you received from others, but I hope that there soon will be a cure. It does seem as if Neurological research is showing promise.

[Guest guest]

-- others here may have some insights regarding the fluctuating PSA. But, your doc is right and the cancer is still there, no matter what. Each of us is different, with different life needs and expectations, so take your time and make the decision that feels right for you.My case is not unlike the sound of yours -- I'm a little younger, 60. I was diagnosed in May of last year, Gleason 6 (3+3), and I decided on DaVinci surgery. But, I waited 8 months to switch to a new insurance that would cover a surgeon with ample experience at the procedure. My surgery in January went well -- after it was out, pathology showed no spread of cancer beyond the prostate capsule, the margins were clear, and the tumor was still 3+3. So, I think time is on your side, as far as making up your mind. Thus far my post-surgery PSA is undetectable, and thus far I'm pleased with my treatment decision. I've had no trouble at all controlling urination, but do have some ED that is slowly returning. Despite the latter, I'd describe my sex life as good -- there are other ways of being intimate, and in some ways it's even better than before the surgery! I've been married 32 years, which can certainly help with this sort of life challenge -- and if I were single and dating I might be of another opinion about how that one side effect has intruded into my lifestyle.One thing is certain -- you are fortunate to have found this early. You have some time and options a later and more advanced diagnosis would not have afforded you.All best,/stephen> To: ProstateCancerSupport > Date: Sat, 26 Apr 2008 19:15:18 +0000> Subject: New member> > Hello all, just joined this group, I am 64 and I live in the UK.> > About 5 months ago I had a blood test and my PSA was 6.2. It then fell> to 5.8, however I then had a TRUS biopsy showing that I was 6 on the> Gleason Scale. A test since the biopsy shows I am currently PSA 5.2> but my consultant suggests that although the cancer is non-aggressive> I should consider either surgery or radiotherapy.> > He has given me two months to decide what to do, again test the PSA> after that time but even if it had fallen again he says the cancer> will still be there of course but does a lower PSA mean it's behaving> itself?> > My decision is which course of action to take and what the side> effects of either treatment will be or just hope that the cancer will> stay where it is!> > Back to work after baby– how do you know when you’re ready?

[Guest guest]

> Hello all, just joined this group, I am 64 and I live in the UK.

Welcome to the gentlemen's club no one wishes to join.

> About 5 months ago I had a blood test and my PSA was 6.2. It then

> fell to 5.8, however I then had a TRUS biopsy showing that I was 6 on

> the Gleason Scale. A test since the biopsy shows I am currently PSA

> 5.2 but my consultant suggests that although the cancer is

> non-aggressive I should consider either surgery or radiotherapy.

Gleason score is generally considered to be a measure of aggressiveness.

But it would be prudent to know some details such as:

How many specimens were taken?

Are they identified as to the source of each? Such as R apex, L mid, etc.

How many show evidence of prostate cancer (PCa)?

How much of each such specimen shows such evidence? Such as x

millimetres, y percent.

> He has given me two months to decide what to do, again test the PSA

> after that time but even if it had fallen again he says the cancer

> will still be there of course but does a lower PSA mean it's behaving

> itself?

I would recommend not permitting anyone, including the consultant/medic,

to exert pressure in these circumstances. If the cancer is not

aggressive, as the consultant guesses, what is the hurry? Take time to

study, learn and then take charge.

> My decision is which course of action to take and what the side

> effects of either treatment will be or just hope that the cancer will

> stay where it is!

I think it would not be prudent to hope that the PCa will not grow.

Maybe, maybe not.

All treatments have side effects (SEs), but it is impossible for any

individual to be sure which he will experience and to what extent.

Here are some suggested sources of information. Granted that they are

Yank-oriented, but I rather suspect that everyone's prostate is pretty

much the same:

(1) The authoritative website of the Prostate Cancer Research

Institute (PCRI) at http://prostate-cancer.org/index.html is an

excellent beginning.

Start with the section " Newly Diagnosed " at

http://prostate-cancer.org/education/education.html#newly_diagnosed

(2) I heartily recommend this text on PCa: _A Primer on Prostate

Cancer_ 2nd ed., subtitled " The Empowered Patient's Guide " by medical

oncologist and PCa specialist B. Strum, MD and PCa warrior

Donna Pogliano. It is available from the PCRI website and the like,

as well as Amazon (30+ five-star reviews), & Noble, and

bookstores. A lifesaver, as I very well know.

(3) Personal contact with other patients can be very helpful. Local

chapters of the international support group Us Too can be found via

their website at http://www.ustoo.com/chapter_nearyou.asp

(4) For a consultation with a genuine cancer specialist, an oncologist,

I suggest

Professor R T D Oliver

Consultant Medical Oncologist

Holly House Hospital

High Road

Buckhurst Hill, Essex

IG9 5HX

T: 0

F: 020 8554 4895

E: u.d.somasundram@...

The London Clinic

20 Devonshire Place

London

W1G 6BW

He is well-recommended by Dr. Strum, mentioned above.

The better-informed and empowered the patient, the more likely an

optimum outcome.

Good luck, and please do keep us informed.

Regards,

Steve J

Arizona, USA

" Empowerment: taking responsibility for and authority over one's own

outcomes based on education and knowledge of the consequences and

contingencies involved in one's own decisions. This focus provides the

uplifting energy that can sustain in the face of crisis. "

--Donna Pogliano, co-author of _A Primer on Prostate Cancer_, subtitled

" The Empowered Patient's Guide. "

[Guest guest]

Did the urologist feel anything when he did a digital rectal examination?

If not I would be inclined to ask to go on an active surveillance programme. This would monitor your PSA at first say monthly and then at longer intervals if it is not moving - plus other tests as appropriate. In the meantime check your diet is heart friendly, that helps PCa too!

The essence is that you will book treatment - that you have had time to consider - if the PSA levels indicate a tumour that has to be dealt with.

This is a slightly better way of sorting the tigers from pussy cats - ie agressive verses non or slow growing. There is yet no perfect way, but they are working on it.

Hambleton

Selby

Yorkshire

New member

Hello all, just joined this group, I am 64 and I live in the UK.About 5 months ago I had a blood test and my PSA was 6.2. It then fellto 5.8, however I then had a TRUS biopsy showing that I was 6 on theGleason Scale. A test since the biopsy shows I am currently PSA 5.2but my consultant suggests that although the cancer is non-aggressiveI should consider either surgery or radiotherapy.He has given me two months to decide what to do, again test the PSAafter that time but even if it had fallen again he says the cancerwill still be there of course but does a lower PSA mean it's behavingitself?My decision is which course of action to take and what the sideeffects of either treatment will be or just hope that the cancer willstay where it is!

[Guest guest]

Well thank you all so much for your comments, I am most grateful.

As to your questions Steve, I am not too familiar with all the

technicalities but I understand that 12 samples were taken and that

one side of the prostate was more cancerous than the other (4 + 2 I

think) and some areas showed no evidence. Thank you too for the link

to Professor Oliver. That must be an omen as I went to school in

Buckhurst Hill, Essex!

, the urologist did say that upon initial examination my prostate

was a little enlarged and your comments were very reassuring.

I have been married for 40 years and have my wife's full support and

understanding. It is of course the side effects that are a primary

concern.

We are off on holiday tomorrow for 8 days of sunshine so will try to

put it to the back of our minds and make a decision when we return.

BTW I have never heard of Da Vinci surgery but some of the film the Da

Vinci Code was made in Lincoln Cathedral ;-))

Best wishes,

Lincolnshire

UK

[Guest guest]

,

It seems from the information you have

given that you may have what is termed an insignificant tumour - the definition of a " insignificant " tumour

as being:

1. Nonpalpable

2. Stage T1c

3. Percent free PSA 15 or

greater

4. Gleason less than 7

5. Less than three needle

cores with none greater than 50% tumour.

If this is the case then

you are a potential candidate for what is termed Active Surveillance. If,

before you go on your holiday, you click on the Files link on this site you can

page down to see a piece on Active Surveillance entitled What are the results and how safe is it? That should give you some

interesting reading – as will another file “Thorough review of

randomized clinical trials comparing treatments for localized prostate cancer”

that shows a comparison of treatments and their potential outcome.

All the best

Terry Herbert

I have no medical qualifications

but I was diagnosed in ‘96: and have learned a bit since then.

My sites are at www.yananow.net and www.prostatecancerwatchfulwaiting.co.za

Dr

“Snuffy” Myers : " As a physician, I am painfully aware that most of

the decisions we make with regard to prostate cancer are made with inadequate

data "

From: ProstateCancerSupport [mailto:ProstateCancerSupport ] On Behalf Of

Sent: Sunday, 27 April 2008 5:15

AM

To: ProstateCancerSupport

Subject:

New member

Hello all, just joined this group, I am 64 and I live

in the UK.

About 5 months ago I had a blood test and my PSA was 6.2. It then fell

to 5.8, however I then had a TRUS biopsy showing that I was 6 on the

Gleason Scale. A test since the biopsy shows I am currently PSA 5.2

but my consultant suggests that although the cancer is non-aggressive

I should consider either surgery or radiotherapy.

He has given me two months to decide what to do, again test the PSA

after that time but even if it had fallen again he says the cancer

will still be there of course but does a lower PSA mean it's behaving

itself?

My decision is which course of action to take and what the side

effects of either treatment will be or just hope that the cancer will

stay where it is!

[Guest guest]

Terry, thank you for that. I will have a look at the Files list later

today when packed!

You reminded me of the free to total PSA test I had some months ago

and it was 16%. I might add that my eldest daughter is a nurse and it

was she that started all this by insisting I have that blood test!!

Best wishes,

" Terry Herbert " wrote:

>

> ,

>

>

>

> It seems from the information you have given that you may have what is

> termed an insignificant tumour - the definition of a " insignificant "

tumour

> as being:

>

> 1. Nonpalpable

>

> 2. Stage T1c

>

> 3. Percent free PSA 15 or greater

>

> 4. Gleason less than 7

>

> 5. Less than three needle cores with none greater than 50% tumour.

>

>

>

> If this is the case then you are a potential candidate for what is

termed

> Active Surveillance. If, before you go on your holiday, you click on the

> Files link on this site you can page down to see a piece on Active

> Surveillance entitled What are the results and how safe is it? That

should

> give you some interesting reading - as will another file " Thorough

review of

> randomized clinical trials comparing treatments for localized prostate

> cancer " that shows a comparison of treatments and their potential

outcome.

>

>

>

>

>

> All the best

>

>

>

> Terry Herbert

>

> I have no medical qualifications but I was diagnosed in '96: and have

> learned a bit since then.

>

> My sites are at www.yananow.net <http://www.yananow.net/> and

> <http://www.prostatecancerwatchfulwaiting.co.za/>

> www.prostatecancerwatchfulwaiting.co.za

>

> Dr " Snuffy " Myers : " As a physician, I am painfully aware

that most

> of the decisions we make with regard to prostate cancer are made with

> inadequate data "

>

>

>

[Guest guest]

Terry,

My tumor satisfied all the items that you list below except one. My free PSA was 10%. I think I remember my Dr. saying that PSA from PCa attaches to protein and normal PSA remains free in the blood. What is the significance that mine was so low?

Regards,

Rick

[ProstateCancerSupp ort] New member

Hello all, just joined this group, I am 64 and I live in the UK .About 5 months ago I had a blood test and my PSA was 6.2. It then fellto 5.8, however I then had a TRUS biopsy showing that I was 6 on theGleason Scale. A test since the biopsy shows I am currently PSA 5.2but my consultant suggests that although the cancer is non-aggressiveI should consider either surgery or radiotherapy.He has given me two months to decide what to do, again test the PSAafter that time but even if it had fallen again he says the cancerwill still be there of course but does a lower PSA mean it's behavingitself?My decision is which course of action to take and what the sideeffects of either treatment will be or just hope that the cancer willstay where it is!

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