chiari & FMS/CFS connection

[Guest guest]

I will copy you on the notes from Rosner's interview by the NFRA

National Fibro Research Assoc. To summarize, a lot of FMS/CFS

symptoms are the same as suffered by Chiarians and people with

stenosis. Although Dr. Rosner operates to relieve neuro-symptoms…many

have also been previously diagnosed w/fms/cfs and many of those fms/cfs

symptoms go away or vastly improve after his surgery.

Excerpt:

Dr Rosner, a neurosurgeon, presented an abstract and slide

program of his findings related to spinal cord compression in FMS and

CFIDS patients. The abstract follows this letter for your review.

Abstract #953, presented at the 1997 American College of Rheumatology

Meeting reaffirms Dr. Rosner's findings.

Based on Dr. Rosner's research, Pam , FM sufferer and wife of NFRA

founder, Jack , underwent craniectomy surgery on December 23,

1997, to alleviate problems caused by a Chiari malformation. Since the

operation, Pam's FM symptoms have dramatically improved. Following is a

list of improvements:

& #61623; Fatigue greatly reduced

& #61623; Overall widespread body pain reduced

& #61623; Cognitive and memory problems improved

& #61623; Gastrointestinal problems improved

& #61623; Sight improved

& #61623; Neurological problems disappeared or non-existent

& #61623; Warm hands and feet for the first time in years

NFRA is funding a pilot spinal cord compression surveillance study by

FM researchers, Dr. of Oregon Health Sciences

University; Dr. I. Jon of the University of Texas Health

Sciences at San ; and Dr. Dan Clauw of town University,

Washington, DC. Dr. Rosner is acting as coordinator and consultant for

this project. Newly diagnosed FM patients will be given a neurological

examination and MRI to ascertain whether a spinal cord compression is

present. The purpose of this investigation is to determine the

percentage of patients diagnosed with FM who have spinal cord

compression.

(this paper has also been published…)

Dori

Hope this helps

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From: Justwdleme@...

Sent: Friday, December 10, 1999 10:25 AM

To: dcoldwel@...; chiari@eGroups

Subject: Fibromyalgia and ACM

I keep seeing notes that mention both of these but really don't

understand

the connection. I thought Fibromyalgia and CFS were connected. I know

people

who have one or the other and both. I don't know anyone personally,

besides

my 4 year old nephew with Chiari. How is Chiari and Fibromyalgia

connected.