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Hi all,

I'm leaving Monday morning to the Universitey of Chicago for the week. I'm

having a csf drain put in to determine whether I need a shunt or not. I

had 2 ACM1 decompressions this year, but still continue to deteriorate.

I'm hoping there is an answer somewhere for me to help alleviate some of

these symptoms. I've had a number of complications after surgery, so that

didn't help much either. Please keep me in your prayers. I'll let you

know how things go. Nancee T's hubby or mine will keep you all updated in

the meantime.

Love ya all,

in Wisconsin

ACM1, posterior fossa decompression 9/99 w/ autologous graft, C1 lam,

romoval of right tonsil and scar tissue around foramen magnum. 4/99,

posterior fossa decompression w. bovine graft. 2 catheter ablations for

SVT, still arrhythmias, dysautonomia (POTS, NMH). Heart murmur, mild

tricuspid regurg. Irritable bowel, hiatal hernia, reflux. Temperature

regulation problems. 2 lumbar lams, multi level disc degeneration. Many

others too numerous to remember. Doing poorly, but still hanging in there

with God's help.

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