Guest guest Posted September 12, 1998 Report Share Posted September 12, 1998 In a message dated 9/12/98 7:07:09 AM Eastern Daylight Time, MAILER- DAEMON@... writes: << , I have talked to you online a few times, and hve joined this group to try to help myself with what I was told was hypothyroid, not hyperthyroidism. So is this group something I should remain on, or will you be covering both of these problems? Thanks. Chris >> The original message was received at Sat, 12 Sep 1998 07:06:25 -0400 (EDT) from root@localhost ----- The following addresses had permanent fatal errors ----- <Hyperthyroidism@...> ----- Transcript of session follows ----- .... while talking to relay102.jaring.my.: >>> RCPT To:<Hyperthyroidism@...> <<< 550 <Hyperthyroidism@...>... Relaying Denied 550 <Hyperthyroidism@...>... User unknown Hypo- Content-type: text/plain; charset=US-ASCII Content-transfer-encoding: 7bit X-Mailer: AOL 4.0 for Windows 95 sub 214 , I have talked to you online a few times, and hve joined this group to try to help myself with what I was told was hypothyroid, not hyperthyroidism. So is this group something I should remain on, or will you be covering both of these problems? Thanks. Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 1998 Report Share Posted November 19, 1998 , and everyone, the more people talk about their symptoms, the more I realize how many are mine. the feelings of rage, which I experience at times, not a violent rage, but just periods of feeling really irritated with something or someone. these have surprised me, but I thought it had to do with menopause... are we mistaking any and all symptoms we get to hypo or hyper? How can we tell? , I had increased my zinc to 100 mg a day 3 weeks ago, and wonder if I should still be taking that much....I don't seem to feel better or worst, maybe better , surely, not worst....how long can I take that amount? I'm taking 4 mg of copper also? Chris ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2000 Report Share Posted February 7, 2000 In a message dated 2/7/00 9:22:12 PM Eastern Standard Time, onelist writes: << Hypothetical question - If you had $1 million dollars to donate (doesn't have to be non-profit necessarily): Which political organization (to rally for CFIDS issues) would you support? >> This is a good question, Marty. My family and I have been giving every year to the CAA, but now they aren't directly funding research. I asked around a few months ago and nobody knew of any other org that made research grants. Other than the CAA, I would like to hear of other 501c3 options, especially money that would go to research. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2000 Report Share Posted February 7, 2000 In a message dated 2/7/00 10:49:25 PM Eastern Standard Time, MCamp10139@... writes: << I would like to hear of other 501c3 options, especially money that would go to research. >> Mike, not only does all of our money (National CFIDS Foundation) go to research from any excess, but a portion of everyone's dues go toward research. Right now, we are the only national organization funding CFS specifically and we are 501© 3. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2000 Report Share Posted February 7, 2000 Mike, The National CFIDS Foundation is run in it's entirety by volunteers. Money from all membership dues are applied to research because they don't have a highly paid executive director or overpaid lobbyist. They have financed research done by Hemex and the HHV6 group in WI. http://www.cfidsfoundation.org/ Jerry ----- Original Message ----- From: <MCamp10139@...> > This is a good question, Marty. My family and I have been giving every year > to > the CAA, but now they aren't directly funding research. I asked around a few > months ago and nobody knew of any other org that made research grants. Other > than the CAA, I would like to hear of other 501c3 options, especially money > that would go to research. > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2000 Report Share Posted February 8, 2000 In a message dated 2/8/00 1:24:52 AM Eastern Standard Time, onelist writes: << Mike, not only does all of our money (National CFIDS Foundation) go to research from any excess, but a portion of everyone's dues go toward research. Right now, we are the only national organization funding CFS specifically and we are 501© 3. Gail >> Thanks, Gail. Since I am not a big fan of HEmex, I would like to know where the research money is going to go before I make the donation. Who decides at the ncf? Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2000 Report Share Posted February 8, 2000 In a message dated 2/8/00 7:37:10 PM Eastern Standard Time, MCamp10139@... writes: << Thanks, Gail. Since I am not a big fan of HEmex, I would like to know where the research money is going to go before I make the donation. Who decides at the ncf? >> Actually, Hemex has already spent over $100,.000 out of their own pockets for thier research. We funded only for the initial blind cultures to be given to them (double-blinded) for about $4,000. Our grant to Drs. Knox and Carrigan to find something that destroyed HHV-6A but be non-toxic to the patient is still ongoing (with one success already). That was nearly triple. We've also funded one pediatric study. Our plans for a future study will be one that is to independently done to prove what one causative feature of CFIDS leads to so that we can begin to fund methods to turn this around. Our medical board makes not only the suggestions, but votes along with board members. Board members are open to any member who can take on a part of our group by themselves. The medical board is made up of medical progessionals who are both patients and non-patients (about a 50-50 split). Treatment is a priority. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2000 Report Share Posted February 9, 2000 In a message dated 2/9/00 12:10:11 PM Eastern Standard Time, moores@... writes: << If Hemex is willing to do studies for only 4000 buck then they are very generous. I need to join your organization & I know you have given me the address before but where do I send my check. >> National CFIDS Foundation, Inc. 103 Aletha Rd. Needham, MA 02492 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2000 Report Share Posted February 9, 2000 If Hemex is willing to do studies for only 4000 buck then they are very generous. I need to join your organization & I know you have given me the address before but where do I send my check. steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2000 Report Share Posted February 9, 2000 In a message dated 2/9/00 2:30:04 PM Eastern Standard Time, moores@... writes: << how much to join? >> The annual dues is $25.00 with a portion of that going to research. (We have no paid employees and practically no overhead.) We waive all members who cannot afford that financially, though, and do not ask for reasons or proof since we feel it's bad enough to not have the money. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2000 Report Share Posted February 9, 2000 how much to join? GAILRONDA@... wrote: > From: GAILRONDA@... > > In a message dated 2/9/00 12:10:11 PM Eastern Standard Time, > moores@... writes: > > << If Hemex is willing to do studies for only 4000 buck then they are very > generous. I need to join your organization & I know you have given me the > address before but where do I send my check. >> > > National CFIDS Foundation, Inc. > 103 Aletha Rd. > Needham, MA 02492 > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2001 Report Share Posted March 9, 2001 Dee,<br>Yes that is very intresting. I was wondering the same thing myself, the connection between hypothroidism and ADHD.<br>Wonder if there is something to it???<br> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2001 Report Share Posted March 9, 2001 You know, I belong to a group like this for ADHD children. I am going to ask them to see if any of the other women in that club have Hypo Thyroid. Also, to see if it happened after they had there first child. Boy, we might have stumble onto something. Wish, we could get paid for the study! LOL!!!<br><br>Wishing all is well! Tonight or TOday is me and my Bo's 6 month anniversary, and I am taking it easy, after my son is dropped off with his father. I am not saying a word to my Ex, and if he speaks to me, I am just going to tell him to tell his lawyer to call mine. I am sooooooooooooo stressed out this week with the new meds, and I still looked like I was 9 months pregnant last night. This morning, I woke up and felt like someone beat me up in my stomach! I go next week for a check up. Still haven't lost any weight. Very depressed. I got a spiral perm, and my bangs are too kinky, I feel ugly, can't concentrate, can't sleep well, my mind is all over the place. I try to relax, but **POP** the stressors go right into my head. I HATE THIS I HATE THIS I HATE THIS!!!!!! I was wondering maybe I should go off of all the benzo's and antidepressants, now they know I have a Hypo, and see what happens? I will ask the doctor, but what does everyone usually take?<br><br>Hope<br>Hoping for piece of mind! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2002 Report Share Posted January 4, 2002 Is there a link between hypoglycemia and gallstones or gallbladder attack ? I'm asking this question because I've got some pain at the upper right side all day long. The doctor comfirm that I have gallstones in the gallbladder but since I've got hypoglycemia, I have to avoid all citrus fruit. So what can I do to resolve this problem ? Quote Link to comment Share on other sites More sharing options...
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