Answered prayers

[Guest guest]

Thanks to all those lovely wonderful people that e-mailed me direct.

Bless you for your support and concern. If Only I had known about this

disease and this group sooner it would have made many years of

aloneness not be quite so bad. No Chiara dx, but synptoms are:Profound

fatigue, heaviness in arms and legs like weights, slowed reflexes,

blurred and cloudy vision, hearing loss, hoarseness, (loss of singing

voice), knot on left side of neck, restricted movement, can't bend over

without feeling like head will blow off, anything and everything tires

me out quickly, balance and coordination problems, intoxicated look,

shallow breathing, narcolepsy (can't stay awake) or insomnia (can't go

to sleep, frequent urination, unsteady gait (have to hold on to

something and perception problems (think the vehicle is moving when it

isn't, and last but not least is " brain fog " , which I named " brain

dead " a long time ago for that is how I feel that my brain has died and

my body and mind separate. No doctor ever understood it. No

medications help the symptoms. Last November diagnosed with CFS/FMS

and Mitral Valve Prolapse, which they gave me anti-depressants for that

never helped. So what's next without treatment, surgery? Is there any

medicine anyone has found that helps? What about cost of surgery, MRI

(CINE). Money is a a big factor so I may remain the same, and slowly

get worse???

Thanks again for your concern, support and enlightenment.