Re: Re: from Brigite

[Guest guest]

There has to be some way.BRIGITE <KissofSadness@...> wrote: Yes, I still have my implants. I can't afford to have them removed, and my insurance specifically excludes removal. (There's no changing insurance, because I can only get coverage on a group plan {my husband's}, and am denied any coverage on a private plan due to my health.) I've not found any plastic surgeons who deal with Medicare to try that route, but there again none of them I've found believe in silicone poisoning anyway. (I have tried contacting Kolby and

Feng. I'm thinking they both told me they don't take Medicare, either.)If insurance doesn't cover something -I can't afford it. Even WITH insurance, I can't afford half the health care I need as it stands.As far as alternative treatments... I have heard accupuncture works wonders for pain from brain pressure, but isn't covered... and I did go to an Alternative Health Center with an osteopathic doctor for about 10 visits (he believed in silicone poisoning), but insurance didn't pay for any of my visits and my bill was $1500 for 1 month of visits. Vitamins he wanted me on were $250/mo. (Fortunately, the doctor was kind enough to take the loss.) They used cold laser treatment and vitamins to try to detox me. I have to say, I temporarily felt better and wish I could have afforded to contintue.I will write my full story later, but Pseudotumor Cerebri is really at the least of my worries. Like all of you,

it's the other diseases that cause head to toe pain and eat away at our energy that seem to be the hardest to deal with.In WV, I've not found any other doctors who acknowledge these types of complications as being related to implants... yet it's so rare for one person to have all of these things that when I go into new doctors they say "We don't prescribe pain pills here..." thinking I'm after drugs (despite that I hardly use any) or the almighty "IF you really had any of the diseases you have listed you'd be a very sick girl." Then every new doctor makes me re-prove everything I've spent 8 years figuring out I had already. I know you can all relate to all the people who think it's all in your head, when you know it isn't because you can pinpoint that moment in time when all your illnesses began ---when you were implanted or soon after. Unless people are around me much, they always think EVERYTHING I have

is in my head anyway -because no one thinks you "look" like what they would imagine someone to look like who's so sick.Having said all that, I've been on disability since I was 22. (I'm 31 now.) I had no problems getting disability started, because Pseudotumor Cerebri caused such anxiety, social phobia, and induced depression I'd already had. (My personality and mood went from day to night ---sunshine and light to pure dark.) Then the more physical diseases have all tacked on since, so I've never had a problem with SSI reviews. Even if they end up denying me someday, there's no way I could work. It's all I can do to keep my house clean and keep up. (And that's with no kids, although my husband is like a big kid! LOL! I don't know how you all do it with kids... my heart goes out to you all.)Anyway, it's nice to hear your stories, ladies. I've known for a while there were others like me out there, but I've

never known anyone in person to share this with. Then again, when I study into this TOO much I end up frustrated into a deeper depression because doctors here are so clueless. When I get to feeling like that, I read info thinking "LOOK! There IS help out there! There ARE things that can be done! What do I have to do get these things out of MY body? What has to happen before my insurance sees that these are killing me? Why don't I matter?" Then I end up frustrated and suicidal -feeling hopeless. So, when I start feeling like that I literally have to stop reading info and message boards on silicone poisoning to keep myself from giving up.I know explanting and detox aren't a "cure all," but it's just so hard feeling like MONEY stands between you and possible health improvement. If we had CANCER and couldn't afford surgery ---everyone we know would be wanting to help. But when you say "I need BREAST IMPLANTS

removed" ---people just snicker.I'm happy for all of you who are able to get your implants out and get detoxed, and even happier when it leads to some form of recovery...You will all be in my prayers, and I request your prayers in return for myself and others who can't afford removal, and who don't have access (or can't afford) detox.Brigite>> Welcome Brigite . . . > > How horrible! . . . We've had lots of women complain of severe, ongoing headaches, but no one has been given this dx that I know of. Maybe some of our ladies need to ask the right questions.> > Do you still have your implants? . . . It sounds like you have a huge juggling act going on! . . . Are you able to work?> > Have you tried any alternative

treatments (if there are any)?> > Hugs and prayers,> > Rogene> > .>

[Guest guest]

Oh Brigite . . . I'm so sorry! . . . You really have your hands full . . and I know I don't have half the story. I would like to share your history with several people who are in positions of leadership. I don' t know that it will change your personal circumstances - but we can only hope. When you feel up to it, would you tell us more about what's going on with you? . . . I'll be happy to send you the names/addresses of those who I have in mind. Hugs and prayers, Rogene BRIGITE <KissofSadness@...> wrote: Yes, I still have my implants. I can't afford to have them removed, and my insurance specifically excludes removal. (There's no changing insurance, because I can only get coverage on a group plan {my husband's}, and am denied any coverage on a private plan due to my health.) I've not found any plastic surgeons who deal with Medicare to try that route, but there again none of them I've found believe in silicone poisoning anyway. (I have tried contacting Kolby and Feng. I'm thinking they both told me they don't take Medicare, either.)If insurance doesn't cover something -I can't afford it. Even WITH insurance, I can't afford half the health care I need as it stands.As far as alternative treatments... I have heard accupuncture works wonders for pain from brain pressure, but isn't

covered... and I did go to an Alternative Health Center with an osteopathic doctor for about 10 visits (he believed in silicone poisoning), but insurance didn't pay for any of my visits and my bill was $1500 for 1 month of visits. Vitamins he wanted me on were $250/mo. (Fortunately, the doctor was kind enough to take the loss.) They used cold laser treatment and vitamins to try to detox me. I have to say, I temporarily felt better and wish I could have afforded to contintue.I will write my full story later, but Pseudotumor Cerebri is really at the least of my worries. Like all of you, it's the other diseases that cause head to toe pain and eat away at our energy that seem to be the hardest to deal with.In WV, I've not found any other doctors who acknowledge these types of complications as being related to implants... yet it's so rare for one person to have all of these things that when I go into new

doctors they say "We don't prescribe pain pills here..." thinking I'm after drugs (despite that I hardly use any) or the almighty "IF you really had any of the diseases you have listed you'd be a very sick girl." Then every new doctor makes me re-prove everything I've spent 8 years figuring out I had already. I know you can all relate to all the people who think it's all in your head, when you know it isn't because you can pinpoint that moment in time when all your illnesses began ---when you were implanted or soon after. Unless people are around me much, they always think EVERYTHING I have is in my head anyway -because no one thinks you "look" like what they would imagine someone to look like who's so sick.Having said all that, I've been on disability since I was 22. (I'm 31 now.) I had no problems getting disability started, because Pseudotumor Cerebri caused such anxiety, social phobia, and induced

depression I'd already had. (My personality and mood went from day to night ---sunshine and light to pure dark.) Then the more physical diseases have all tacked on since, so I've never had a problem with SSI reviews. Even if they end up denying me someday, there's no way I could work. It's all I can do to keep my house clean and keep up. (And that's with no kids, although my husband is like a big kid! LOL! I don't know how you all do it with kids... my heart goes out to you all.)Anyway, it's nice to hear your stories, ladies. I've known for a while there were others like me out there, but I've never known anyone in person to share this with. Then again, when I study into this TOO much I end up frustrated into a deeper depression because doctors here are so clueless. When I get to feeling like that, I read info thinking "LOOK! There IS help out there! There ARE things that can be done! What do I have to do get

these things out of MY body? What has to happen before my insurance sees that these are killing me? Why don't I matter?" Then I end up frustrated and suicidal -feeling hopeless. So, when I start feeling like that I literally have to stop reading info and message boards on silicone poisoning to keep myself from giving up.I know explanting and detox aren't a "cure all," but it's just so hard feeling like MONEY stands between you and possible health improvement. If we had CANCER and couldn't afford surgery ---everyone we know would be wanting to help. But when you say "I need BREAST IMPLANTS removed" ---people just snicker.I'm happy for all of you who are able to get your implants out and get detoxed, and even happier when it leads to some form of recovery...You will all be in my prayers, and I request your prayers in return for myself and others who can't afford removal, and who don't have access (or

can't afford) detox.Brigite>> Welcome Brigite . . . > > How horrible! . . . We've had lots of women complain of severe, ongoing headaches, but no one has been given this dx that I know of. Maybe some of our ladies need to ask the right questions.> > Do you still have your implants? . . . It sounds like you have a huge juggling act going on! . . . Are you able to work?> > Have you tried any alternative treatments (if there are any)?> > Hugs and prayers,> > Rogene> > .>