Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 LOL, awesome Rogene! That is the key, you are absolutely right. Instead of thinking of what we can't eat and having a little pity party, we have to be positive and think of all the wonderful tasty foods we can enjoy, and find ways to be adventurous. I've been making my own kefir, and find it to be absolutely heavenly! I use a blackberry syrup that I got at Whole Foods market to add a little flavor, and it tastes just like the stuff you buy at the grocery story. My kids wrinkle their noses at my kefir, but I find it to be a real treat! Now, there's something healthy I can get into! And of course, once you are used to cutting out the sweet stuff, it eventually all tastes so sweet that the thought of it is purely gross. I hope to get there once again. Too many sweets lately has ruined my tastebuds. Patty Rogene S <saxony01@...> wrote: , Changing over to a healthy diet isn't about thinking about which foods you CAN'T have, it about finding foods that are healthy you really enjoy . . . It takes time and patience - but it can be done! You can still snack and eat healthy. My hubby really doesn't care for veggies . . . Instead of presenting them in the same old way - where he thinks "veggie" - I've been finding new recipes that use veggies, but present them differently. . . Because he's German, and has a thing for German foods, I've been trying German recipes . .. He's so funny . . . when I prepare them the "German" way, he doesn't even notice the veggies! Rogene Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 My 13-year old daughter cheats fairly often too but has learned that she can't any longer because her reaction to wheat has gotten much worse over the two years since she was diagnosed. It's probably a blessing that she reacts stronger now, she knows it isn't worth risking intestinal cancer later in life. Kenda > Thanks Rogene, > I am actually looking forward to seeing what my body will feel like totally > gluten free when I've given it a few months. I have just been cheating too > much. I think it will be amazing! > > I am thankful my celiac is not as bad as others also. I have both the gene > for celiac disease and gluten intolerance, but my reactions at this point are > very, very mild. I never would have known if I had not gotten tested. > > I just want to live out a long healthy life, and going gluten free will be > vital for that. Eventually, by continuing to eat gluten, I would just be > damaging my insides. Maybe having a severe reaction is better--it absolutely > forces you to comply! I'm working on it.... > Love, > Patty > > Rogene S <saxony01@...> wrote: > Patty, > > Thankfully your Celiac is not as severe as it could be . . . A friend can't > tolerate the least gluten . . . > > She doesn't let that stop her from celebrations, traveling, etc. She plans > ahead so she will be able to eat whatever they have that's safe (calling > ahead, talking to cooks, etc.) then bringing foods with her to eat with > everyone else. . . . The logistics of traveling is tough . . . She travels > with a refrigerated case and a small microwave . . . plus a small grocery > store! . . . > > As you body becomes adjusted to being Celiac free, it will become more > difficult to tolerate Gluten, rather than easier . .. So please be careful! > > Love, > > Rogene > > > > > > --------------------------------- > Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ > countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 >Rogene, Thank goodness I love veggies, You are right of course, you know I used to eat late night meals. Now I don't and eat fairly healthy but cant lose weight. Terri P > , > > Changing over to a healthy diet isn't about thinking about which foods you CAN'T have, it about finding foods that are healthy you really enjoy . . . It takes time and patience - but it can be done! You can still snack and eat healthy. > > My hubby really doesn't care for veggies . . . Instead of presenting them in the same old way - where he thinks " veggie " - I've been finding new recipes that use veggies, but present them differently. . . Because he's German, and has a thing for German foods, I've been trying German recipes . .. He's so funny . . . when I prepare them the " German " way, he doesn't even notice the veggies! > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 Terri . . . IMHO, weight comes in second place to eating healthy. One of the way our body handles toxins is to create fatty tissue to store them in. As you get the toxins out of your body, and eat healthy, and can exercise moderately, your weight should take care of itself. Stressing over weight simply takes away from the energy you need to heal. Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 My friend has had severe reactions when she has inadvertently eaten something with gluten . . . Think coming to with EMT people standing over you trying to bring you around! Her husband's first question when they came for a visit was "How long does it take for EMT to get here?" Celiac intolerance is something that MUST be taken very seriously! Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 > Rogene, I completely agree. My point is I am eating healthy, I don;t stress about the weight I am just frustrated. I am not sure besides chicken and veggies what I can eat.I even gave up fruit. my weight does add problems, like the pain in my hips and low back as well as the high cholesterol and fatigue. I know when I was not as heavy I had more energy and had less pain, I guess I was just needing to know what is everyone eating? What specific foods can I have for my new lifestyle? > Terri . . . > > IMHO, weight comes in second place to eating healthy. One of the way our body handles toxins is to create fatty tissue to store them in. As you get the toxins out of your body, and eat healthy, and can exercise moderately, your weight should take care of itself. > > Stressing over weight simply takes away from the energy you need to heal. > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 Terri, Have you read Rubin's "The Maker's Diet", or "The Great Physician's RX"? The books aren't just about diet - although there is one . . It's about the reasons we must eat healthy . .. There are ample recipes to go with his recommendations. Rogene Peake <peaketeresa@...> wrote: > Rogene,I completely agree. My point is I am eating healthy, I don;t stress about the weight I am just frustrated. I am not sure besides chicken and veggies what I can eat.I even gave up fruit. my weight does add problems, like the pain in my hips and low back as well as the high cholesterol and fatigue. I know when I was not as heavy I had more energy and had less pain, I guess I was just needing to know what is everyone eating? What specific foods can I have for my new lifestyle?> Terri . . . > > IMHO, weight comes in second place to eating healthy. One of the way our body handles toxins is to create fatty tissue to store them in. As you get the toxins out of your body, and eat healthy, and can exercise moderately, your weight should take care of itself.> > Stressing over weight simply takes away from the energy you need to heal.> > Rogene> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2006 Report Share Posted August 31, 2006 Rogene, I got a giggle about what you said about your husband and veggies. My friend a's husband doesn't like eating greens, so she tried a new raw food recipe with a banana in it...mixed greens..a bit of water...blend and presto! He actually drinks it and likes it! I don't know if my tummy could handle bananas and greens in the same meal, but I'm curious to try it. Love & Blessings, Sunny xo > > , > > Changing over to a healthy diet isn't about thinking about which foods you CAN'T have, it about finding foods that are healthy you really enjoy . . . It takes time and patience - but it can be done! You can still snack and eat healthy. > > My hubby really doesn't care for veggies . . . Instead of presenting them in the same old way - where he thinks " veggie " - I've been finding new recipes that use veggies, but present them differently. . . Because he's German, and has a thing for German foods, I've been trying German recipes . .. He's so funny . . . when I prepare them the " German " way, he doesn't even notice the veggies! > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Rogene, I totally agree with the weight thing. That's why I call what I eat a " live-it " not a " die-it " . I'm personally so glad to be implant free and alive, that you know what? I really don't mind my tummy bulge, that's slowly disappearing, or anything about my body that's so-called imperfect. God loves me as is, and so do I, doggone it! Love you all very much, Sunny > > Terri . . . > > IMHO, weight comes in second place to eating healthy. One of the way our body handles toxins is to create fatty tissue to store them in. As you get the toxins out of your body, and eat healthy, and can exercise moderately, your weight should take care of itself. > > Stressing over weight simply takes away from the energy you need to heal. > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Hello Marie, I was diagonsed almost three years ago with RA and I am 25 years old now. I have been on Humira for the last 6months. I take the Humira the exact same way as you have. I am also taken the Predinzone also and I have noticed that it is helping me a lot. I know that Predinzone is not for everybody, example is your case, but I have had some flare ups with the Humira and Predinzone. I also have problems with the back of the heel area to where when I walk I feel a stretching and pulling of my muscles. I have noticed that with Humira and Pred the most probably is with the feet. I had a time where the top of my one foot had a ball that was as big as a golf ball that hurt when I walked. My doctor just told me to take more Pred. I am now slowly getting off of the Pred because I have been on it since I was diagnosed, and this was by my choice not my doctor but she is supporting me. So I am saying that me and you are two people so far that has had this problem with our feet while on Humira. I was also wondering about where do you give your shots on your legs or stomach? Also does it burn when you are injecting the Humira and hurt a little bit when you are done and walk after the injection? Thanks, Destiny > > Hello to everyone > I was diagnosed with RA back in April of 2007. I went into denial & > wouldn't go to a Rhuematologist until Aug. of '07. He wanted to put > me on MTX & Prednizone but my liver enzymes came back too high. He > ended up putting me on 40mg Humira every other week, he also wanted > me to take 5mg Prednizone a day but it made me feel crazy. I > couldn't stop itching & felt like I had bugs all over me all the > time. So we stopped the Prednizone & now I am just on the Humira. My > question is I still have small flare ups. Is this normal? My right > foot is still swollen at the heel & I have been wearing backless > shoes because these are the most comfortable. Will the swelling ever > go down in my foot? I am 43 years young & I have a wonderful > supportive husband. He is in the Army & is deployed to Iraq right > now so I am not sleeping well at all. He will be home in December of > this year, maybe January of next year...? > Could I still be having problems because I am not sleeping so good? > Sorry so many questions...I have one more thing to ask about. I have > noduals on my right elbow & one of them keeps getting bigger. My > primary care Doctor wants to remove it in March. Is it ok to get > them removed? Thank you all for being here...gentile hugs to all > Marie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2008 Report Share Posted January 26, 2008 The small flareups are normal unless you are fortunate enough to go into remission. Those are the times to REST and take more care of yourself. andrea hecht <dreahecht@...> wrote: Hello, I was diagnosed in July of 2007 and like you I take Humira and prednisone as well as sulfasalazine and I still swell up, specifically the tendon that is located by the inside upper arch of my foot. My doctor says to stay off of it as much as possible, but with a baby running around the house I find that impossible. I also sleep pretty well and still have swollen joints. I sleep about 8 hours at night and take a nap during the day. My doctor said that the swelling should go down once the Humira starts taking more affect and I think he wants to add another medication. I started Humira late November. But I think resting does play a huge part. I know when I am on my feet longer then two hours I start feeling the affects. Hope I helped Marie Homan <marieannett2269@...> wrote: Hello to everyone I was diagnosed with RA back in April of 2007. I went into denial & wouldn't go to a Rhuematologist until Aug. of '07. He wanted to put me on MTX & Prednizone but my liver enzymes came back too high. He ended up putting me on 40mg Humira every other week, he also wanted me to take 5mg Prednizone a day but it made me feel crazy. I couldn't stop itching & felt like I had bugs all over me all the time. So we stopped the Prednizone & now I am just on the Humira. My question is I still have small flare ups. Is this normal? My right foot is still swollen at the heel & I have been wearing backless shoes because these are the most comfortable. Will the swelling ever go down in my foot? I am 43 years young & I have a wonderful supportive husband. He is in the Army & is deployed to Iraq right now so I am not sleeping well at all. He will be home in December of this year, maybe January of next year...? Could I still be having problems because I am not sleeping so good? Sorry so many questions...I have one more thing to ask about. I have noduals on my right elbow & one of them keeps getting bigger. My primary care Doctor wants to remove it in March. Is it ok to get them removed? Thank you all for being here...gentile hugs to all Marie --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
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