Re: Welcome to Listen-Up@onelist.com

[Guest guest]

Tonia,

Welcome to the list. I have been on for a few weeks now. There seems to be

alot of knowledgeable people on the list. I know I am learning alot from the

e-mails. Take care.

Elaine D.

[Guest guest]

>

> I live on the Big Island of Hawaii, and have three sons. The two oldest

are

> teenagers, hearing. The youngest is 4-1/2, severely deaf, diagnosed at

age

> 2. He is doing well with his hearing aids, and in addition he attends a

> Total Communication class where he also learns signing. But he is a great

> kid, lots of personality, and I fully expect him to be president someday

> because he is so full of self-confidence!

>

I'll vote for him!

> Good luck as you start on this journey with your son. How is everything

> coming along so far? Are you getting the information and help you need

from

> your local school?

>

> Dixie

>

Well, I was having some trouble at first, the audi was not a good listener.

But thankfully I had a great coach (thanks Barbara!) that helped me out. Now

we are traveling (not great but we live in an area where not much is

available) to Portland to the ESD (Education Sevice District) Audiology

dept. and the lady there is wonderful, with Jaron and me. <G> We'll be going

again on Nov. 4th to pick up the aids. We do have a local person for contact

and help so we won't have to travel everytime we have a problem. We are a

homeschooling family and I have gotten info and help from a fellow

homeschooler, mentioned previously. I wasn't sure if I wanted to go through

the schools but so far so good. I know anytime I am uncomfortable I can

leave.

Tonia

mox@...

Hammond, OR

Let it all go, fear, doubt, disbelief, free your mind. -Morpheus, The Matrix

http://www.onelist.com/subscribe/DeschoolingAdults

>

[Guest guest]

In a message dated 11/1/99 4:23:38 PM Eastern Standard Time, tania@...

writes:

> I am Tania, 30 years old, married to Jeroen (34) and we are the (hearing)

> parents of Maud (may 3rd, 1998) who has a profound hearing loss. <snip>

Since >we found out about her hearing loss we have been using Signing Exact

Dutch >(NOG in dutch) and she's doing beautifully, is using 90+ signs herself

(in little >sentences) and understands a whole lot more!

Tania, welcome to our community~ This list is becoming quite cosmopolitan!

My husbandand I, our daughter, 12 (hearing) and our son, 6, (profoundly deaf

- raised with total communication and American Sign Language, now learning to

listen with a CI) are originally from Ireland, moved to the US in '95 to get

early intervention for our son, lived initially in NY and are now in

Colorado!

We have some family friends, in Ireland, who are Dutch nationals and I spent

a few summers there in the Hague and in Amsterdam. I loved it! But, my

dutch is too rusty to remember more than a few words, it is over 25 yrs since

I was there!

Any information you would like to know about, pls don't hesitate to ask!

Welcome again, Orla

[Guest guest]

Hi Kay and everyone else,

> Please

> send a brief (or not so brief) introduction to the list so that we can all

get

> to know you.

I am Tania, 30 years old, married to Jeroen (34) and we are the (hearing)

parents of Maud (may 3rd, 1998) who has a profound hearing loss. We have

learned about her hearing loss some 4 months ago. She's wearing hearing aids

for

appr. two and a half months now and is taking to them real well, she hears

low sounds (up to 250 Hz) at 80 to 85 dB. Since we found out about her

hearing loss we have been

using Signing Exact Dutch (NOG in dutch) and she's doing beautifully, is

using 90+ signs herself (in little sentences) and understands a whole lot

more! We have requested a CI for her and are pending the selection. I have

recently started a dutch mailinglist for parents at onelist,

doofkindonelist ; there are 10 members at the moment, mostly

professionals, and we are patiently waiting for more members to come. In the

meantime AND in addition, I would very much like to talk to other parents of

children with hearing loss. I'm mostly interested in hearing about your

experiences with different sorts of communication and exchanging stories and

worries about the children.

Tania, mama to Maud (may 3rd, 1998)

[Guest guest]

Tania, welcome to the list! You will find many kindred spirits here, who

all offer love, support and information about children and hearing loss, a

truly wonderful community. My son Ben is 14 months, has a

moderately-severe loss which we found out about through routine screening

at birth; he's had hearing aids from 3 months old, and still occasionally

pulls them out (mostly for attention, I think); shows no interest yet in

using any signs, but babbles and vocalizes constantly. It's wonderful that

your daughter is communicating, and wonderful that you are putting together

your own list: I take it you're Dutch? Do you live in Holland?

Anyway, welcome, and I look forward to talking more with you --

Stefanie

[Guest guest]

Tania,

I just want to say welcome to the list.

Elaine D.

[Guest guest]

Welcome, Robin!

My husband and I have three sons: two teenagers (a breed apart) and a 4-1/2

year old who is deaf. He has had his hearing aids since he was two years

old, and does well with them. We also sign, and he is in a Total

Communication class at a local public school.

I think disciplining deaf children can be harder because they often have a

language delay. This may frustrate them, and it may make it more difficult

for parents to convey their expectations of proper behavior to them. I can

remember when my son was 2 years old and newly diagnosed with his hearing

loss. He had no language. I despaired of ever making him understand that

he had to drink his milk and eat his dinner before he could have dessert!

That was a major worry of mine! What helped for us was a " no-no " (or " time

out " ) book that we made at the Summer Session we attended. It

was a booklet that had simple pictures of various negative behaviors

(hitting another child, spitting, pinching, throwing sand, etc.). When the

child does one of these things, he is placed in " time out " and shown the

picture of what he did, is told " no " along with facial expressions to

indicate that this is behavior that is not allowed. This was very effective

with my son. It helped him understand why he was having the time out, and

the limits of acceptable behavior. There was also a " good job " booklet with

pictures of good behavior, such as sitting nicely in a car seat or shopping

cart, holding an adult's hand crossing the street, etc. My son enjoyed this

book also, but the " no-no " book was by far the most effective. Even today,

he pulls it out sometimes and looks at the pictures and tells me that those

are bad things to do!

Anyway, you can get the pages for the booklet with the free

Clinic correspondence course. I think it comes with the fourth or fifth

lesson in the series. If you aren't familiar with the course, you may want

to check it out. I'm sure Kay has information on contacting

Clinic on her web site. The clinic was a lifesaver for us.

Dixie in Hawaii

p.s. My son quickly learned to eat his dinner before dessert! I laugh at

myself when I remember how concerned I was about this.

Re: Welcome to Listen-Uponelist

>

>

>Hello, My name is Robin Kay, I have four beautiful

>children,( 8years, Lucas 5years, Hannah 2years,

>and Holly 10months). I have a wonderful husband,

>, who is the father of Hannah and Holly.

>was not supposed to be able to have children and then

>I came along. We had Hannah and then 13 months later,

>Holly. Hannah was born deaf for reasons unknown. She

>and Holly have been very healthy babies. We decided to

>have her implanted with the Nucleus 24 and this was

>done in August 99 and she was hooked up October

>4,1999. This is the greatest thing we could have ever

>done. She wears her device all day every day and is

>making new sounds every day. She has tried to mock us

>saying up and does a pretty good job of it. She is

>precious as are all of my children, but she has

>somewhat of a behavioral problem. She gets her way

>with the rest of the children and if she doesn't she

>bites and hits and attacks. Other than that she gets

>along pretty well. Does any one out there see that

>their deaf child is harder to dicipline than the

>hearing children. If so maybe some advice?!?! Thanks

>Robin.

[Guest guest]

Robin,

I just want to say welcome to the list. Hope it helps as much it has helped

me.

I have asked questions in the past couple of months and have received great

response to.

Elaine D.

[Guest guest]

Hi Robin,

Welcome to the list. Alyssa was implanted in June and activated in

July. She turned two in Sept. I also belive this was the best decision

we could have made. Alyssa isn't speaking any words yet, but makes lots

of sounds. She is much easier to discipline than our hearing 3 year

old. Her feelings get hurt easily, so all I have to say is no and she

quits what she is doing. on the other hand just keeps at it.

I can relate to having two close together. Our girls are 1 year and 9

days apart. Never a dull moment!!

[Guest guest]

Robin,

Welcome to the list, I'm sure you'll learn alot/connect with kindred souls.

Someone mentioned the Clinic; their website is

www.johntracyclinic.org. They have a fabulous correspondance course,

filled with great info/ideas and it's all free.

Good luck, and I look forward to getting to know you!

Stefanie, mother of Ben (14 months, HOH), and Isabella (4, mostly hearing)