Guest guest Posted December 15, 1999 Report Share Posted December 15, 1999 In a message dated 12/15/99 5:55:07 PM Central Standard Time, notyou@... writes: << I was wondering if you could all tell me how many of you have Chiari II, and have had the Surgery? And please, those of you who have not had the Surgery, please feel free to reply, I would like to know that too. >> has Spina Bifida, Hydrocephalus w/VP Shunt, Tethered Cord, Syringomyelia w/syrinx @ c1- c2, and ACM II. He has had a decompression on March 2, 1999 and is doing great. He should have actually had the surgery when he was a year old...it would have saved him a lot of unnecessary suffering. We owe that to a narrowminded, egotistical Neurosurgeon who kept insisting that the chiari was asymptomatic and all his problems were from the spina bifida....NOT!!! Love, hugs and prayers, Haydee (Nana to , 7 1/2 yrs old w/Spina Bifida, ACM II, Hydrocephalus w/VP Shunt, Syringomyelia w/Syrinx at c1-c2, G Tube fed (totally NPO), Swallowing Coordination Disorder, Neurogenic Bladder, ARDS (Lung Failure) 3/30/97, 33 days on ECMO (total Lung Bypass), 60 days on Life Support, Humidified Oxygen Dependent, Radical Tracheostomy w/Total Loss of Vocal Cord Use, Paralyzed from the Waist Down, 18 Surgeries, Asthma, Severe Latex Allergy, Allergies to many Medications Adhesives and tons of other stuff, With Such a Wonderful Love of Life and one crazzzy Nana living right outside Baton Rouge, Louisiana. Posterior Fossa Decompression, Opening of the Dura (No graft) and Laminectomy of c1-c2, March 2, 1999...w/immediate and dramatic improvement of symptoms, so far so good, getting better and stronger every day!!!) 's web page ~~~> <A HREF= " http://www.pressenter.com/~chip/joshua.htm " >Th e Story</A> http://www.pressenter.com/~chip/joshua.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 1999 Report Share Posted December 15, 1999 In a message dated 12/15/99 6:55:31 PM Eastern Standard Time, notyou@... writes: > I was wondering if you could all tell me how > many of you have Chiari II, and have had > the Surgery? has Chairi II with no spina bifida, hydrocephalus and severe craniofacial abnormalities. She has been decompressed and then had the dura opened and still is having many problems. Tory ('s mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 1999 Report Share Posted December 15, 1999 Hi Brande, Haydn has Chiari 2 and has been decompressed twice.He was very symptomatic both times.Main symptoms were swallowing problems,apnoeas,GERD and short term memory loss. Interesting though he does not and has never suffered head or neck pain as a result of Chiari. Trish in New Zealand Brande wrote: > > Hi, I was wondering if you could all tell me how many of you have Chiari II, and have had the Surgery? And please, those of you who have not had the Surgery, please feel free to reply, I would like to know that too. For starters.......I have Chiari II, and have not had the Surgery, as of yet, that is. Take Care, Brande NotYou@... Take Care, Brande NotYou@... Join the Conversation! Chat at http://www.talkcity.com > ----------------------------------------------------------------------- > WACMA Site: http://www.pressenter.com/~wacma > Your Personal support group member page: > http://www.eGroups.com/group/chiari/ **Avoid List Congestion: > Unsubscribe from this list: mailto:chiari-unsubscribeegroups > Contact list mgmt: mailto:chiari-owneregroups > ----------------------------------------------------------------------- > > eGroups.com Home: /group/chiari > www. - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
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