Guest guest Posted June 1, 1999 Report Share Posted June 1, 1999 Hi , Thank you for your welcome to the U.S., I love it here its an amazing place and reminds me of Australia in so many ways, you too are the land of the bar-b-que!!! And the oreo cookies I am totally addicted. I have found so much support and information on this website I hope you do too. Please stay in touch regards sue --- PLS-FRIENDSonelist wrote: > > ONElist: bringing the world together. > http://www.onelist.com > Join a new list today! > > There are 4 messages in this issue. > > Topics in today's digest: > > 1. Crying-Laughter > From: D52L@... > 2. Re: Crying-Laughter > From: EPSPLSPAL@... > 3. Re: just introducing myself > From: J Lawrence > > 4. Re: just introducing myself > From: EPSPLSPAL@... > > > _______________________________________________________________________________ > _______________________________________________________________________________ > > Message: 1 > Date: Sun, 30 May 1999 19:20:59 EDT > From: D52L@... > Subject: Crying-Laughter > > I too have to be careful what I watch on TV. At > times I just walk away and go > do something else. Crying comes very easy all I have > to do is think about > something sad. I am taking Amitriptyline to help me. > I started with 2 -10 mg > per day and worked my way up to 50 mg and to 3-50mg > a day. My mouth was so > dry I would carry hard candy with me. My neuro then > told me to take how ever > much that I was comfortable with. I have cut back to > 1-50mg in the morning. I > couldn't tell much difference in the crying but my > mouth wasn't so dry > anymore. Elavil is the brand name. I do not have the > side affect that Joe > has. I do once a year have a blood test to make sure > it isn't affecting my > liver. > > Laughing is not so much of a problem with me but I > do sometimes burst out > laughing. The problem I have with laughing is if I > really get to laughing too > hard then I start to cough and that is worse. So > many times when I get to > coughing I can't stop. I have to make an effort to > stop like swallowing or > take a deep breath that is the only way that I can > stop. There have been a > few times that came near to passing out. Does anyone > else experience this? > > When my crying started my neuro said that it is > important to let your family > and freinds know why you are laughing or crying so > they know it is the PLS > that is causeing you to so. > > Lehman > > > _______________________________________________________________________________ > _______________________________________________________________________________ > > Message: 2 > Date: Sun, 30 May 1999 19:56:27 EDT > From: EPSPLSPAL@... > Subject: Re: Crying-Laughter > > Dave ,I have chokeda from too much laugh, have cried > at tv, I try hard to > mentally control it. > Joe > > > _______________________________________________________________________________ > _______________________________________________________________________________ > > Message: 3 > Date: Sun, 30 May 1999 19:34:28 -0500 (CDT) > > Subject: Re: just introducing myself > > Dear Sue from Australia, > welcome to the US. I was also very pleased when I > found this website. It > has relieved so many fears. The unknown is so much > more painful to me. > Take care, Jen > > > > _______________________________________________________________________________ > _______________________________________________________________________________ > > Message: 4 > Date: Sun, 30 May 1999 21:00:03 EDT > From: EPSPLSPAL@... > Subject: Re: just introducing myself > > In a message dated 5/30/99 8:34:39 PM Eastern > Daylight Time, > lawreej@... writes: > > << lawreej@... >> > , Talk to me any time about fear of the > unknown. In my talks > with many PLS'ers over the years- the changes come > gradually so you have time > to a dapt. Generally baring accidents like falling > or baring tramatic > changes caused by psylogical, physican or medicinal > changes to your system, > the progression of PLS (for most of us ) has been > gradual to the point of > almost unmeasurable from month to month,year to > year. > Joe Alberstadt > I have progression of symptom chart. > > > _______________________________________________________________________________ > _______________________________________________________________________________ > > _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 1999 Report Share Posted June 1, 1999 Dear Thank you for your comment about the web site in your email message to . We have received over 2900 visits from 11 different countries, the biggest problems is that PLS people do not fill out out the guest book that is also used to built the PLS data base, I am contacting lots of research institutions to get them to do research on PLS and it is of a great help if I can tell them how many of us there are and when we are located, I can then contact the PLSers in their area and tell them who they have to contact. Regards and best wishes Reyerse Orr wrote: > > > > Hi , > Thank you for your welcome to the U.S., I love it here its an amazing > place and reminds me of Australia in so many ways, you too are the land > of the bar-b-que!!! And the oreo cookies I am totally addicted. I have > found so much support and information on this website I hope you do > too. Please stay in touch > regards > sue > --- PLS-FRIENDSonelist wrote: > > > > ONElist: bringing the world together. > > http://www.onelist.com > > Join a new list today! > > > > There are 4 messages in this issue. > > > > Topics in today's digest: > > > > 1. Crying-Laughter > > From: D52L@... > > 2. Re: Crying-Laughter > > From: EPSPLSPAL@... > > 3. Re: just introducing myself > > From: J Lawrence > > > > 4. Re: just introducing myself > > From: EPSPLSPAL@... > > > > > > > _______________________________________________________________________________ > > > _______________________________________________________________________________ > > > > Message: 1 > > Date: Sun, 30 May 1999 19:20:59 EDT > > From: D52L@... > > Subject: Crying-Laughter > > > > I too have to be careful what I watch on TV. At > > times I just walk away and go > > do something else. Crying comes very easy all I have > > to do is think about > > something sad. I am taking Amitriptyline to help me. > > I started with 2 -10 mg > > per day and worked my way up to 50 mg and to 3-50mg > > a day. My mouth was so > > dry I would carry hard candy with me. My neuro then > > told me to take how ever > > much that I was comfortable with. I have cut back to > > 1-50mg in the morning. I > > couldn't tell much difference in the crying but my > > mouth wasn't so dry > > anymore. Elavil is the brand name. I do not have the > > side affect that Joe > > has. I do once a year have a blood test to make sure > > it isn't affecting my > > liver. > > > > Laughing is not so much of a problem with me but I > > do sometimes burst out > > laughing. The problem I have with laughing is if I > > really get to laughing too > > hard then I start to cough and that is worse. So > > many times when I get to > > coughing I can't stop. I have to make an effort to > > stop like swallowing or > > take a deep breath that is the only way that I can > > stop. There have been a > > few times that came near to passing out. Does anyone > > else experience this? > > > > When my crying started my neuro said that it is > > important to let your family > > and freinds know why you are laughing or crying so > > they know it is the PLS > > that is causeing you to so. > > > > Lehman > > > > > > > _______________________________________________________________________________ > > > _______________________________________________________________________________ > > > > Message: 2 > > Date: Sun, 30 May 1999 19:56:27 EDT > > From: EPSPLSPAL@... > > Subject: Re: Crying-Laughter > > > > Dave ,I have chokeda from too much laugh, have cried > > at tv, I try hard to > > mentally control it. > > Joe > > > > > > > _______________________________________________________________________________ > > > _______________________________________________________________________________ > > > > Message: 3 > > Date: Sun, 30 May 1999 19:34:28 -0500 (CDT) > > > > Subject: Re: just introducing myself > > > > Dear Sue from Australia, > > welcome to the US. I was also very pleased when I > > found this website. It > > has relieved so many fears. The unknown is so much > > more painful to me. > > Take care, Jen > > > > > > > > > _______________________________________________________________________________ > > > _______________________________________________________________________________ > > > > Message: 4 > > Date: Sun, 30 May 1999 21:00:03 EDT > > From: EPSPLSPAL@... > > Subject: Re: just introducing myself > > > > In a message dated 5/30/99 8:34:39 PM Eastern > > Daylight Time, > > lawreej@... writes: > > > > << lawreej@... >> > > , Talk to me any time about fear of the > > unknown. In my talks > > with many PLS'ers over the years- the changes come > > gradually so you have time > > to a dapt. Generally baring accidents like falling > > or baring tramatic > > changes caused by psylogical, physican or medicinal > > changes to your system, > > the progression of PLS (for most of us ) has been > > gradual to the point of > > almost unmeasurable from month to month,year to > > year. > > Joe Alberstadt > > I have progression of symptom chart. > > > > > > > _______________________________________________________________________________ > > > _______________________________________________________________________________ > > > > > > _________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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