Re: silicone hypersensitivity?

[Guest guest]

You know, it just hit me.... This makes so much sense when looked in the shared light of gluten sensitivity! Those who are gluten intolerant need to avoid all forms of gluten. And those who are gluten intolerant don't always show overt symptoms of illness, like needing to suddenly go to the emergency room in shock if they consume it, though some do. But there are so many ways to react to gluten...and the standard is finding those anti-gluten antibodies in the body. Once they show up, that is a sign that something is wrong and the diet needs to be changed. In the same way, perhaps all forms of silicone need to be avoided if we have anti-silicone antibodies? I can see why this is a so very misunderstood disease, knowing that there are alot of people walking around with gluten sensitivity and NOT KNOWING IT, but suffering little signs of illness, like brain fog

or joint pain. Maybe we continue to suffer because we just haven't eliminated all forms of silicone from our lives. Silicone is in so many things. Maybe we should create a list of things to avoid similar to a gluten free diet, including brands, etc.? Lana could help us alot with this. PattyRogene S <saxony01@...> wrote: Message from Lana regarding silicone hypersensivity - Rogene-------------------------------------------If I could give only one more gift to

anyone in my entire life time, it would be the gift of the silicone hypersensitivity tests. Those tests results COMPLETELY changed my life. In the darkness came a light and the answer that saved me from suffering. I have no way of truly expressing what a change it has made. All I know is I went to the beach 2 times rock collecting with my grandchildren for some stairs leading up to the childrens playhouse. I went swimming. I took the kids to the park and two weeks before that I rode my bike around the park with the grandchildren for the first time. I garden in my yard almost everyday, even climing a ladder to pick the cherries ot of my tree. With out the knowledge that I was allergic to myself because of the implants, and to most of the medications and treatments I was using to get well, I still would not be able to get out of bed. Most importantly, MY BOYS

ARE WELL because of those tests! If you read the removale report you saw how bad that right implant ruptured. My body is filled with migrated gel but I have still been able to at least improve the quaility of my life because of those tests.The doctors I come in contact with no longer treat me like and idiot and argue with me about the implants. Instead, they change our medications for silicon free medications. With the exception of a doctor at the hospital when I took my son in for treatment for a reaction to the wart medication. I am sure the test results won't slove all of everyones medical problems, and it hasn't solved all of mine, but I can say that having those test results does help.I would have them start their journey into improving thier health by checking thier mediations for any form of silicon! Also silicon dioxide usually doesn't show a response for a day or two and it usually clears up about

two to three weeks after the medication is stopped. Medications with silicone in them can bring on a much swifter and more noticeable reaction. This has been our experiance anyway. I wish them luck. If they take the information about the tests to thier doctors they should be able to get them done under the Elias/ActLana

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[Guest guest]

Hi Patty!

This reminds me of something a plastic surgeon told me at one of my consults

-- he told me that silicone is inert, it is plastic, just like water

bottles! How many of you drink water from water bottles? I wonder if it is

toxic to you? I had a bottle in my car that had been there for a couple of

days and it tasted like plastic! Of course I didn't drink it and won't but

it did make me think about silicone in the water.

Kenda

> In the same way, perhaps all forms of silicone need to be avoided if we have

> anti-silicone antibodies? I can see why this is a so very misunderstood

> disease, knowing that there are alot of people walking around with gluten

> sensitivity and NOT KNOWING IT, but suffering little signs of illness, like

> brain fog or joint pain. Maybe we continue to suffer because we just haven't

> eliminated all forms of silicone from our lives. Silicone is in so many

> things. Maybe we should create a list of things to avoid similar to a gluten

> free diet, including brands, etc.? Lana could help us alot with this.

>

> Patty

>

> Rogene S <saxony01@...> wrote:

> Message from Lana regarding silicone hypersensivity - Rogene

> -------------------------------------------

>

> If I could give only one more gift to anyone in my entire life time, it

> would be the gift of the silicone hypersensitivity tests. Those tests

> results

> COMPLETELY changed my life. In the darkness came a light and the answer that

> saved me from suffering. I have no way of truly expressing what a change it

> has made. All I know is I went to the beach 2 times rock collecting with my

> grandchildren for some stairs leading up to the childrens playhouse. I went

> swimming. I took the kids to the park and two weeks before that I rode my

> bike around the park with the grandchildren for the first time. I garden in

> my yard almost everyday, even climing a ladder to pick the cherries ot of my

> tree. With out the knowledge that I was allergic to myself because of the

> implants, and to most of the medications and treatments I was using to get

> well, I still would not be able to get out of bed. Most importantly, MY BOYS

> ARE WELL because of those tests! If you read the removale report you saw how

> bad that right implant ruptured. My body is filled with migrated gel but I

> have still been able to at least improve the quaility of my life because of

> those tests.

>

> The doctors I come in contact with no longer treat me like and idiot and

> argue with me about the implants. Instead, they change our medications for

> silicon free medications. With the exception of a doctor at the hospital

> when I took my son in for treatment for a reaction to the wart medication. I

> am sure the test results won't slove all of everyones medical problems, and

> it hasn't solved all of mine, but I can say that having those test results

> does help.

>

> I would have them start their journey into improving thier health by

> checking thier mediations for any form of silicon! Also silicon dioxide

> usually doesn't show a response for a day or two and it usually clears up

> about two to three weeks after the medication is stopped. Medications with

> silicone in them can bring on a much swifter and more noticeable reaction.

> This has been our experiance anyway. I wish them luck. If they take the

> information about the tests to thier doctors they should be able to get them

> done under the Elias/Act

> Lana

>

>

>

>

>

>

>

> ---------------------------------

> Music Unlimited - Access over 1 million songs.Try it free.

[Guest guest]

What is the Elias Act that Llana was talking about? Has anyone been

able to have their primary doctor run a silicone hypersensitivity test?

[Guest guest]

My primary didn't run one, but the rheumatologist I went to did. If

you don't live in NJ, you still might be able to call her office and

ask for information on what lab they use. E-mail me at

auntsisnj@... if you want to know her name.

Sis

>

>

> In a message dated 7/11/2006 6:14:47 PM Eastern Standard Time,

> adkrick@... writes:

>

> Has anyone been

> able to have their primary doctor run a silicone hypersensitivity

test?

>

>

>

>

> What is this test? A blood test?

>

> Quite a few years ago, 2000 I think, an internal med doc (who is

no longer

> around) did a Silicone Antibodies test on me. He said my levels

weren't high,

> which shocked him--he thought it would come back with flying

colors. Later

> on, I mentioned this while speaking with a practitioner at an ob-

gyn office.

> She was familiar with Sil. Pois. and recalled a few cases she'd

known of and

> told me the test can vary depending on how strong your immune

system is that

> day -so that a negative Silicone Antibodies test is not an

accurate marker.

> (Maybe you ladies can tell me more on that?)

>

> Since then, I've tried to have this repeated, but other doctors

here, in WV,

> now say that no one on the EAST coast does them!!! I think is a

CROCK of

> bologna. I'd love to learn more about tests my doctor can do or

send for -if

> anyone knows! I can't afford them if insurance does not cover

them, but if there

> are any I will call and see if they're covered! ------Brigite

>

[Guest guest]

Sis, what were the results of your test? Pattyauntsisnj <auntsisnj@...> wrote: My primary didn't run one, but the rheumatologist I went to did. If you don't live in NJ, you still might be able to call her office and ask for information on what lab they use. E-mail me at auntsisnjlycos if you want to know her name.Sis--- In , KissofSadness@...

wrote:>> > In a message dated 7/11/2006 6:14:47 PM Eastern Standard Time, > adkrick@... writes:> > Has anyone been > able to have their primary doctor run a silicone hypersensitivity test?> > > > > What is this test? A blood test?> > Quite a few years ago, 2000 I think, an internal med doc (who is no longer > around) did a Silicone Antibodies test on me. He said my levels weren't high, > which shocked him--he thought it would come back with flying colors. Later > on, I mentioned this while speaking with a practitioner at an ob-gyn office. > She was familiar with Sil. Pois. and recalled a few cases she'd known of and > told me the test can vary depending on how strong your immune system is that > day -so that a negative Silicone Antibodies test is not an accurate marker. > (Maybe you ladies can

tell me more on that?)> > Since then, I've tried to have this repeated, but other doctors here, in WV, > now say that no one on the EAST coast does them!!! I think is a CROCK of > bologna. I'd love to learn more about tests my doctor can do or send for -if > anyone knows! I can't afford them if insurance does not cover them, but if there > are any I will call and see if they're covered! ------Brigite>

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[Guest guest]

I forwarded your message to Lana . . . She's not a member of this group. She's very much an activist though!Rogeneallysonallysonkrick <adkrick@...> wrote: What is the Elias Act that Llana was talking about? Has anyone been able to have their primary doctor run a silicone hypersensitivity test?