Re: TY- Bladder problems

[Guest guest]

Kenda and others,

Thanks for your insight on IC. I had assumed it involved the cysts since they were both discussed by the OB-GYN and the urologist I was sent to when they made the IC speculation, and they didn't mention anything else... but ugh... I guess I need scoped.

LOL I'll check into it. ---Brigite

In a message dated 7/16/2006 10:05:19 AM Eastern Standard Time, skaggs@... writes:

I have IC but I have never had cysts with it. I have never heard of thatbefore. I know that some women develop ulcers, which I have had. I thinkif you have cysts, you really do need to have the scope done. The scope isslightly uncomfortable but filling your bladder, generally under anesthesia,is the only way to confirm the diagnosis. I have always had improvementsin symptoms following the scope because stretching the bladder improves ICsymptoms for some women.I have had IC for 25 years and was diagnosed by one of the top docs, Dr.Parsons, in California. I have been all kinds of drugs, been in drug trailsand have found the only drug that works for me is heparin injections.Heparin brought on a nearly complete remission of symptoms for 10 years.Unfortunately those 10 years are up now and my symptoms are intensifyingagain. Since I moved 20 years ago, I can't see Dr. Parsons. My new docrefuses to prescribe heparin! He said the drug is too risky because ofbleeding problems. Amazing that Dr. Parsons didn't think so. I'm going tofind a new urologist!Kenda

[Guest guest]

I really don't think cysts are involved. I have always had infection-like

symptoms but no infection. The pain ranged from very slight to off the

chart burning, causing ER visits. Of course there was nothing an ER doc

could do but I didn't know that early on. Lynda mentioned problems with

being scoped but I never developed any and always had a decrease in

symptoms. If you have diminished bladder capacity and have to urinate

often, one thing Dr. Parsons had me do was to try to hold my urine a bit

longer every day to stretch the bladder out to a more normal size. This

worked very well for me over time. I no longer have a teeny tiny bladder.

I would definitely check into the Desert Harvest aloe vera on their website.

Their protocol did help me significantly.

Kenda

>

> Kenda and others,

>

> Thanks for your insight on IC. I had assumed it involved the cysts since

> they were both discussed by the OB-GYN and the urologist I was sent to when

> they

> made the IC speculation, and they didn't mention anything else... but ugh...

> I guess I need scoped.

> LOL I'll check into it. ---Brigite

>

> In a message dated 7/16/2006 10:05:19 AM Eastern Standard Time,

> skaggs@... writes:

>

>

>

> I have IC but I have never had cysts with it. I have never heard of that

> before. I know that some women develop ulcers, which I have had. I think

> if you have cysts, you really do need to have the scope done. The scope is

> slightly uncomfortable but filling your bladder, generally under anesthesia,

> is the only way to confirm the diagnosis. I have always had improvements

> in symptoms following the scope because stretching the bladder improves IC

> symptoms for some women.

>

> I have had IC for 25 years and was diagnosed by one of the top docs, Dr.

> Parsons, in California. I have been all kinds of drugs, been in drug trails

> and have found the only drug that works for me is heparin injections.

> Heparin brought on a nearly complete remission of symptoms for 10 years.

> Unfortunately those 10 years are up now and my symptoms are intensifying

> again. Since I moved 20 years ago, I can't see Dr. Parsons. My new doc

> refuses to prescribe heparin! He said the drug is too risky because of

> bleeding problems. Amazing that Dr. Parsons didn't think so. I'm going to

> find a new urologist!

>

> Kenda

>

>

>

>

>