Re: connection between saline implants & MS

[Guest guest]

I think it does not show up for a few years in some women. I had mine in late 1998. I started getting minor symptoms about 3 1/2 to 4 years ago. I thought they might be PMS related because my fatigue started around that time of month. Once my symptoms started getting worse (to include pain in my joints and muscles, not being able to find the right word for objects, and symptoms that lasted months) I started seeing doctors to see what might be wrong. With me, things just kept getting worse and worse with no real break where I felt better for a while. pinkpaisley40 <jsl2909@...> wrote: I was told 18 month ago I had MS I have always believed I did until the other day something accured that what if my Implants are causing the symtoms I am having? I will list a few, poor balance gait not stable, achey muscles, numbness in certain areas and weakness in my left hand.I feel they may be wrong. I am not in denial just want to make sure its not the implants, I got them in 1997 could it take this long for them to fail me?I don't know where to go to find out if its the implants maybe slow leaking.any feed back would be awesome. so frustrated.Regards,Jackie

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[Guest guest]

Yes, Jackie, it very well could be the implants. Start with your PCP or

OB-GYN and tell him or her your concerns and what you want to find out.

Go do it--do not wait! It's not *terribly* common to be misdiagnosed,

but it happens more than we think, and you have very good reasons to

suspect that it could have happened in this situation. I'm not trying

to be super optimistic here, but it's a very chance that implants have

caused changes which could mislead your doctors. Especially since most

of them don't believe that implants are harmful.

Courage,

[Guest guest]

Hi Jackie,

Sometimes the best voice to listen to is our own, and from what I've

seen, an awful lot of women are coming here complaining of the same

or similar symptoms - diagnosed with MS, Lupus, or unable to get any

kind of diagnosis but are very sick. Some people get symptoms from

the implants right away, others it takes years, and some people

never seem to have problems (and those are the ones who think we are

crazy, unfortunately). Anyway, I had my implants six months and

then had them removed, because I got sick immediately. I think I

would have continued to get worse if I hadn't had them removed. I

had alot of numbness in my fingers and toes the last few months I

had implants. I had achiness, and brain fog, and swollen joints. I

took two really bad falls during the time I had implants, my legs

just gave out from under me, and this wasn't something that normally

happened to me. I had panic attacks quite frequently, and this was

not normally something that happened to me. I'm really sorry that

you're sick, and it seems to huge a coincidence that we all have

that common denominator - we were healthy, we got implants, and we

all ended up with similar health issues.

Sis

>

> I was told 18 month ago I had MS I have always believed I did

until the

> other day something accured that what if my Implants are causing

the

> symtoms I am having? I will list a few, poor balance gait not

stable,

> achey muscles, numbness in certain areas and weakness in my left

hand.

>

> I feel they may be wrong. I am not in denial just want to make

sure its

> not the implants, I got them in 1997 could it take this long for

them

> to fail me?

>

> I don't know where to go to find out if its the implants maybe

slow

> leaking.

>

> any feed back would be awesome. so frustrated.

> Regards,

> Jackie

>

[Guest guest]

Jackie...

I got mine in 1996 and am still very ill.... they have tested me for MS and lupus more times than I can count over the last few years as I have all the right symptoms.... I did not start getting ill until after a rupture i had in 99 that needed to be replaced... then things slowly progressed from there.... the numbness, dizziness, falling, running into walls - it is all happening to me now. In fact, my neuro symptoms have progressed to the point of having a massive seizure attack this last June that the hospital could find no reason for... all the millions of tests they ran - nothing came up yet they diagnosed me w/ epilepsy as they had no other diagnosis to pin it on.... I constantly have bruises all over my legs, etc, from being unsteady and running into stuff.... to back up a little - I did have my implants removed in 2003 but did it inexpensively and recently I visited an expert doctor in the explant area who thinks I have lots of capsule left in me as well as an infection causing my illness to progress so I am planning another surgery with her to get everything cleaned out for good.

You are not alone - many people have come here after several years w/ implants then started to experience these things... they may or may not be related but it is definitely worth looking into and not just any doctor is going to help you there unfortunately... most treat us like freaks.. what area are you in and maybe some of us can lead you in the direction of good specialists that can help you determine the true cause of your illness.... also - one thing to consider.... I have known many women to have MS like symptoms with implants.... getting them removed will do nothing but improve your odds there as long as you get it done correctly and not do it like I did... food for thought....

best of luck and God bless

shari

[Guest guest]

Shari,

Thank you for sharing your story with me, my question is what should I do first? ask for a blood test or an MRI on my chest? where do I go from here. I may even be wrong about this but I would like to know if it is my implants. I am not really ill, I just fit all the criteria's of Having MS.

fluid from spinal tap came back positive for the antibody. MRI said it showed lesions on my spine, and then unexplained reason for my poor gait .I haven't talk to anyone who said they had all these test done, do you know anyone?

Thank you so much, I am so glad I hooked up to this site its been very informative.

Regards,

Jackie

[Guest guest]

Shari,

Best wishes with your upcoming surgery.

Sis

>

> Jackie...

>

> I got mine in 1996 and am still very ill.... they have tested me

for MS and

> lupus more times than I can count over the last few years as I

have all the

> right symptoms.... I did not start getting ill until after a

rupture i had in

> 99 that needed to be replaced... then things slowly progressed

from there....

> the numbness, dizziness, falling, running into walls - it is all

happening

> to me now. In fact, my neuro symptoms have progressed to the

point of having

> a massive seizure attack this last June that the hospital could

find no

> reason for... all the millions of tests they ran - nothing came

up yet they

> diagnosed me w/ epilepsy as they had no other diagnosis to pin it

on.... I

> constantly have bruises all over my legs, etc, from being unsteady

and running into

> stuff.... to back up a little - I did have my implants removed

in 2003 but

> did it inexpensively and recently I visited an expert doctor in

the explant

> area who thinks I have lots of capsule left in me as well as an

infection

> causing my illness to progress so I am planning another surgery

with her to get

> everything cleaned out for good.

>

> You are not alone - many people have come here after several years

w/

> implants then started to experience these things... they may or

may not be related

> but it is definitely worth looking into and not just any doctor is

going to

> help you there unfortunately... most treat us like freaks.. what

area are you

> in and maybe some of us can lead you in the direction of good

specialists

> that can help you determine the true cause of your illness....

also - one

> thing to consider.... I have known many women to have MS like

symptoms with

> implants.... getting them removed will do nothing but improve

your odds there as

> long as you get it done correctly and not do it like I did...

food for

> thought....

>

> best of luck and God bless

>

> shari

>

[Guest guest]

Has anyone had spinal taps and they came back positive and or MRI with lesions being shown? I am curious* ( with saline implants )

Thank you all for your imputes its been so interesting

J.

[Guest guest]

I had double lumen implants - saline and silicone.

I had an abnormal spinal tap result - oligoclonal banding and elevated igG

index.

I also had MRIs of the brain and c-spine with demyelinating lesions on both

tests.

As a result I was diagnosed with MS.

Around that time I also was diagnosed with lupus.

Although I had silicone and not strictly saline, I do believe that some women

are more

susceptible to autoimmune illness than others. I also believe that such women

can have

an autoimmune response to saline implants - which do have a silicone shell.

I am not a medical doctor, of course, but it makes absolutely no sense to assume

these are

'safe'. My rheumatologist is quick to point out that she doesn't think saline

implants are

much (if any) better than silicone implants. I think she is right.

>

> Has anyone had spinal taps and they came back positive and or MRI with

> lesions being shown? I am curious* ( with saline implants )

>

> Thank you all for your imputes its been so interesting

> J.

>

[Guest guest]

Jackie, Diet is key for anyone with MS. I would highly recommend cutting out all dairy, grains, and anything else that you may be allergic to. Then I would detox, detox, detox. There are many people with MS symptoms who live a totally normal life due to paying attention to diet. Another key for MS sufferes is staying active. I need to take my son to school, so I will write more later, but do some internet research on diet and MS. The natural approach is a much better way to go than drugs, and can provide the opportunity to have long lasting healing take place. Pattyjsl2909@... wrote: Shari, Thank you for sharing your story with me, my question is what should I do first? ask for a blood test or an MRI on my chest? where do I go from here. I may even be wrong about this but I would like to know if it is my implants. I am not really ill, I just fit all the criteria's of Having MS. fluid from spinal tap came back positive for the antibody. MRI said it showed lesions on my spine, and then unexplained reason for my poor gait .I haven't talk to anyone who said they had all these test done, do you know anyone? Thank you so much, I am so glad I hooked up to this site its been very informative. Regards, Jackie

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