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Re: number of listings

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I agree with Ginger's comments. It is too time consuming to open everything and

delete the non-essentials. As of yesterday I surveyed the last 100 messages

posted and about 30% have nothing directly to do with PLS.

I want to keep up on PLS information, medication, studies, etc. but am about to

drop out because of the unnecessary messages that are overwhelming. It would

help if personal or person-to-person messages were done directly rather than

through this forum and most of all we could try to stay on the topic.

As we add more and more people with PLS the more we need to be focused or it

will unravel. When people such as Sonya drop out it should be a red flag. This

forum is for all who have PLS, caretakers, or those interested, but it cannot be

a social forum. I think we are at the moment of choice.

Emmett

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