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Re: Sandi

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Hi Sandi,

Glad to hear that you're still fighting with everything you can. I'm sure that, in the end, you'll prevail. I think the systems sucks (forgive my language). I get so tired of hearing how people are walked all over by these agencies, only to be successful in the end. They do not have to make it as unpleasant as they do. We pay into worker's comp, etc. we are entitled to it if we are disabled. If I were king.......

I'll start the radio-frequency next week and we'll go from there. So far, I've managed to stay off everything except Zanaflex and some Oxycontin.... It's not easy though.

Thanks for caring!

Hugs,

Jo

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I'll start the radio-frequency next week and we'll go from there

Hi Jo,

What day are you going for the radio frequency? Is that outpatient or in hospital stay?

Good luck with it, you are in our thoughts and prayers!

Hoping for Pain Free Days,

Sandi

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  • 1 month later...

I am so sorry that you had to go thru that with a bone scan. I've had two of them done, but only on my right leg.

I don't remember them asking me any questions about breaks or cancer or anything like that at all.

Only thing was I did have to get a new x-ray afterwards.

I am so sorry that you had to go thru that horrible experience. It sounds to me like the "techs" just weren't listenting to you

Hoping you feel better real soon with the holidays!

Love

Danette

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  • 10 years later...

Hi Sandi

When its cold I too wake up stiff and the heated mattress cover does help a

great deal. For me its my neck and shoulders. I also have a flax seed filled

wrap that I can heat in the microwave that helps me so much

Ciao-

Ange

________________________________

To: fibromyalgiacured

Sent: Thu, February 2, 2012 8:39:31 AM

Subject: Re: Bone Broth Allergy?

I feel fine now. Thanks!

I woke up stiff and a little puffy-eyed, which is common for me when I

eat things I shouldn't. Sometimes I'm very stiff.

Sandi

lunarose@...

Real Food for Health and Pleasure blog

<http://www.realfoodforhealthandpleasure.blogspot.com/>

One Day My Brain Exploded blog <http://onedaymybrainexploded.blogspot.com/>

>

> Hi Sandi

> Do you live in the states? I went to a homepathic doctor in San

> Francisco and

> she ordered a sensitivity test. The insurance would not pay but I felt

> like with

> all the co pays and terrible invasive tests the reg doctors were

> putting me

> through I was happy to pay. It was a blood test and so many things

> came up like

> wheat, cows milk, yeast, brewers yeast, four types of beans, squash,

> cumin and

> many others I keep the list in my purse. It might be something to look

> into if

> you can afford.

> I do eat grass fed butter but I wont drink reg milk.

>

> The side effects that you are having sound bad anytime you have pain

> in the back

> of you neck and head I was told it was your brain.

>

> How are you feeling now?

>

> Ciao-

> Ange

>

>

> ________________________________

> From: Sandi <lunarose@... <mailto:lunarose%40centurytel.net>>

> To: fibromyalgiacured

> <mailto:fibromyalgiacured%40yahoogroups.com>

> Sent: Wed, February 1, 2012 6:39:56 PM

> Subject: Re: Bone Broth Allergy?

>

> Yes. It starts within 10 minutes of eating it.

>

> I have pain around the bottom of my neck and under my jaw and bottom of

> my head. A bit of a headache. I feel a little puffy and a little

> difficult breathing. It's almost completely gone now, thank goodness.

>

> Last time I was more puffy and my blood pressure seemed to go up. And I

> got very sleepy. I had eaten more of it last time.

>

> This used to happen a lot, but I have eliminated most of the foods that

> caused it. I have suspected the broth a few times in the past. I am

> still unclear on the glutamate thing with the broth. I do not tolerate

> MSG well (not nearly as bad as some people, but bad enough to avoid it).

> A little over a year ago my reactions started getting really bad, and I

> had a very hard time figuring out what to avoid. Some things seemed

> pretty obvious, but some were not. And, I can't be sure about each thing

> because I did not do an elimination diet.

>

> Sandi

> lunarose@... <mailto:lunarose%40centurytel.net>

> Real Food for Health and Pleasure blog

> <http://www.realfoodforhealthandpleasure.blogspot.com/>

>

> One Day My Brain Exploded blog

> <http://onedaymybrainexploded.blogspot.com/>

>

>

> >

> > Hello

> > Can you describe the reaction you had?

> >

> > Ciao-

> > Ange

> >

> >

> > ________________________________

> > From: Sandi <lunarose@...

> <mailto:lunarose%40centurytel.net> <mailto:lunarose%40centurytel.net>>

> > To: fibromyalgiacured

> <mailto:fibromyalgiacured%40yahoogroups.com>

> > <mailto:fibromyalgiacured%40yahoogroups.com>

> > Sent: Wed, February 1, 2012 5:19:51 PM

> > Subject: Bone Broth Allergy?

> >

> > I seem to be having an allergic reaction to bone broth. The last two

> > times I have eaten it I had a reaction. One was chicken, one was beef.

> > There are other possible suspects, but I am afraid to try again.

> >

> > Anyone else have this problem or heard of it? Any thoughts?

> > --

> >

> > Sandi

> > lunarose@... <mailto:lunarose%40centurytel.net>

> <mailto:lunarose%40centurytel.net>

> > Real Food for Health and Pleasure blog

> > <http://www.realfoodforhealthandpleasure.blogspot.com/>

> >

> > One Day My Brain Exploded blog

> > <http://onedaymybrainexploded.blogspot.com/>

> >

> >

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