Guest guest Posted January 14, 2012 Report Share Posted January 14, 2012 Tim - You get points for stopping by again and trying to work out a sense of understanding. However, you appear to be missing the point. Whatever level of support you've received from Jan Chambers, dropping that name is not sufficient to overcome the resistance and anger you incite with your statements to the effect of fibromyalgia being a psychological condition, however justifiable you believe that statement to be. Your article and 'cure' address a single aspect of a FMS, a complex, multi-causal syndrome. Worse, you've chosen language that will incite the strongest negative reaction among those of us who have years, decades even, of experience with a medical establishment that often latches onto the psychological component and stops there, offering only psychological treatment. Anything that can be interpreted as 'it's all in your head' will get this reaction from the FMS crowd. So if you want to communicate with us and offer an effective treatment, you must communicate differently. I also strongly suspect that you may have heard what you wanted to hear and not specifically what Jan Chambers told you with all the side notes and caveats that one would reasonably expect from someone well versed in the breadth of FMS as it presents across the population. This is understandable. It's human nature to latch onto statements that support our strongly held beliefs and downplay the cautions. Yes, you've acknowledged in this board the possible lack of effectiveness with PCT3 or stenosis, but there are many other physical causes of FM symptoms, and your article does not acknowledge any such limitations at all. Several other members of this board have provided clear explanations and good citations you will find helpful should you wish to put forth the effort to review the materials and consider the larger view. I will repeat my offer of a professional review of the article itself should you wish to contact me privately at the email address previously provided. From: fibromyalgiacured [mailto:fibromyalgiacured ] On Behalf Of eastlookdrive Sent: Saturday, January 14, 2012 2:13 PM To: fibromyalgiacured Subject: Re: Tim Testimonies - Reply from Tim Hi , You raise several good points. When I spoke on the phone with Jan Chambers (she is the president of the NFMCPA) she said, and I quote, " I am the gatekeeper to all those who have FM and I don't let just anyone in, in fact I have already spent a lot more time reviewing your materials than I usually give to most people. " After I had proved my therapy method to her she has endorsed me, on her website and with this article for her magazine BUT. she does not think it would work with people who have Cervical Cord Compression (PC3) or Spinal Stenosis. I personally do not know if I could help these people or not since no one who has come to me in the past mentioned this problem to me. I am not a doctor or an expert so my credentials are very small compared, you can't have higher credentials than being a doctor (and they can't help you) so what do credentials have to do with it? I actually have helped many people with FM. I helped a woman via telephone last winter who had been suffering for 31 years, 3 sessions later no more FM. I spoke with her many months later, she still has no FM. Same holds true with people I worked with back in 08. ------------- SO. ) ---------- Is there a way we can come together, get past the objections, and see if I'm full of #$%@ or actually have something viable? ) Do you or anyone on this board have any ideas on how we could do this? Thanks, Tim Bartley > > >>>Tim sounded like he had the cure for fibro. If so...why not share his client's testimonials? > > With all due respect, Tim sounded to me like just another in a very long line of slick pitches from thinly credentialed self-described 'experts' jumping on the bandwagon to make $$ off the ill and desperate. I am still, at this point, willing to give him the benefit of the doubt and allow that perhaps he genuinely believes his method is a cure based on his clearly limited understanding of FMS and based upon a few success stories from his clientele. Perhaps he really has had clients report full relief from their fibro symptoms, but without full background details and case histories verifiable by reliable third party sources, we AND HE have no way of determining the degree of truth to this so-called cure. We cannot know whether these clients had been diagnosed by recognized criteria or had self-diagnosed after a few months of feeling off. We cannot know whether the root cause of their conditions were also addressed or even guess at the root cause of each individual's condition -- and I do believe that fibromyalgia is a not a specific disease in and of itself, but a syndrome, a set of symptoms produced by various other conditions. I believe this because researchers have been able to produce fibromyalgia symptoms in healthy test patients through sleep deprivation, and because effective treatments vary so greatly among patients. > > And without a dialogue with Tim, we cannot begin to determine whether he's a genuine resource or a slick pitch artist -- and I say this with the experience of 20 years of fibro and a background as a journalist, research analyst, and author who's been active on the internet for a very long time. Yes, I'm professionally trained to be skeptical, and my professional history has reinforced that skepticism. That's been a very useful tool in managing my fibro and dealing with the root causes of my symptom since I was diagnosed ---- and actually, in even obtaining a diagnosis beyond, " here, take this pill. It should make you feel better. " I've gone from being unable to hold a pen long enough to write a single check, unable to walk half a block, to being able to carry a 50 lb. bag of feed or a bale of hay easily. > > I do hope Tim will step up and participate for the benefit of those who might find his treatment helpful. I've personally found a great deal of relief and greater control over fibro management through a similar form of therapy which is directed at the stresses the unconscious mind carries. Had that been the root cause of my fibro, I'd be cured. Had diet been the root cause, I'd also be cured because I've done the whole ketosis, low carb, and several others directed specifically at known gut issues and intolerances. Because of those treatments, I'm significantly improved. I'm not cured, though, and still am choosing among the therapies that seem to be a proper match. > > P > > > > > > Quote Link to comment Share on other sites More sharing options...
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