Re: : I have been booed off sites

[Guest guest]

I look at it this way: People come and people go, but maybe while they’re here

they pick up one little snippet of truth. Then they go on to another group and

pick up something meaningful there. Gradually, their thoughts are changed-if

their minds are open. Sometimes they even come back. All we can do is answer

questions as to how something has helped us. Some people listen and are helped,

others close their minds, but it is all on them as to what they do. We just go

on, helping where we can.

On another group I’m on there is a lady who has been sick with Fibromyalgia as

long as I have. I have told her of all the things that have helped me, but I can

tell by her replies that she hasn’t tried any of them. Now she has been

diagnosed with MS. I wrote a long email telling her of the many things a person

with MS can do and sending links to places where she can get help. She didn’t

even acknowledge my email. I have to look at it as though I did my part and now

it is up to her to do hers. Will she follow through and learn for herself the

importance of diet and alternative health, or will she follow her doctors’

choices of potentially harmful drugs? Only time will tell. But she has to make

that decision for herself.

Judy H

To Health Through Knowledge

Started taking Low Dose Naltrexone on January 20, 2009 for

Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

http://health.groups.yahoo.com/group/LDNforFibro/

From: Joanne Ford

Sent: Saturday, January 14, 2012 8:46 AM

To: fibromyalgiacured

Subject: : I have been booed off sites

Hi

I have been thinking about Tim and his share and in some ways this all reminds

me of me. I go from site to site carrying the message, I have even spent weeks

with folk giving them my all only to be told I am a plotter using God and

spiritual psycho babble to draw folk into some kind of scam. I am not selling

anything, and hope folk will see that often when somebody is not selling the

item there can be more truth in it for that very reason, but these same folk

that boo me off stage are baying hundreds if not more in therapies that I know

are completely useless, I have to let it go

I was taling to Parkinsons folk one day, I really felt I had developed a great

rapour with them so I told them about how folk that have trauma can develop

Parkinsons type symptoms and that by using the diet and tapping and other stuff

like McKenna they caln calm the system down. Some of their carers became

damn right hostile towards me when I said this, and one said I had annoyed her

from day one comparing Parkinsons with that illness, Fibromyalgia. Even the

others that had been supportive towards me backed off when things got like this.

I had to leave that site and was so saddened

Anyway, I could not help anybody there at all and really felt quit down about

all of this, but a few days ago a friend from that site told be that since I

have left they have seen Newports stuff on CBN and the youtube blog where

the lady (I have forgotten her name) but the one that has cured herself using a

hunter gather diet. And there is also one person there using Dr diet,

for Cancer, and her husbands Parkinsons has totally cleared up with it

Sometimes our messages are not recieved with thankful hearts, but if they a true

they will linger. the folk at that site know about this site and they know they

can come here if they want to.

Tim came, and now seems to be gone. He does not have fibro and is not giving his

stuff for free, he was selling something. just because it is sold does not mean

it is not true, but he also did not tell us the price. I need cheap, very cheap,

and the MCKenna stuff sounds similar to what Tim is selling, and the

McKenna CDs can if you hunt around a bit be bought cheaply

I told Tim about the diet and the toxicity, and showed him where to learn more

about this. I don't think his ideas are barmy, just not considering everything.

NLP and the other things he mentioned can help with Fibro and with all

autoimmune illness. I think where the insult comes to some folk is that many

believe Fibro is an hysteria illness where as other autoimmune illnesses are not

regarded in this way. When folk say, I have a treatment that deals with your

emotional upset, but dont worry you are not mental, or words to that effect, it

is getting to be like a red rag to a bull

Myself, I feel my illlness is physical, originating in the gut, my nervous

system and brain are physically damaged from all this. My illness was triggered

by trauma, and even slight trauma now can trigger it. Some of this is physical

too, low dopamine, and other neurons, but some is to do with sensitive to others

and their suffering. This is a double edge sword since it is only because I have

this sensitivity I see what is going on with this illness. I also see how the

less sensitive bring about their own illnessses, the illnesses many regard as

real compared to this one.

Anyway the long and short of this is that if I take care of my spirit and soul,

and gently nurture my psycholgoical and emotional stuff, and care for my body

with the diet etc. And then work backwards through all this again, ensure by

body is well, deal with the emitional psycholgical stuff and ensure my spirit

and soul are well, and then back dwon the ladder again, this is how I keep well,

keep away from my addictions and the meds, and stay happy with peace hope and

joy

Thanks for discussing this , it did need covering

Love Joanne

said..................

Okay, I can't keep my mouth shut any longer. Old Tim seems to have given

all a ride to insult and waste of time.

I am one to say if someone claims something and presents the great

program with juicy and colorful words and doesn't hand us the facts...there

something smelly in the kitchen. He has a thing with psycho trauma issues

(we have discussed before) but has shown no patients to share or give

support to hisprogram. When this happened before in this site

we are able to recognize them.

Yes, many here have had a traumatic experiences that

may have begun our illness. But it is THE DARN PAIN, FATIGUE, SWELLING,

RASHES, ETC. ETC. ETC.. that needs the cure.

For some of us this disease made its appearance after a surgery, accident, or

even after

a third child. Some others have other origins to this illness. Does this make

us a group of psycho traumatic dummies...bah humbug!

There is always an origin of physical illness, the KEY is to find the complete

cure where doctors cannot help us or won't(like mine).

What we have found here in the site is a natural health cure with no one

giving us some psycho mumbo jumbo of the ailment. We know we are going

through the stresses of life, who isn't???

What we need is acknowledge the fact that whatever began our illness,

has us in a roller coaster ride and we need to put on the brakes. Do we have

a crazy family causing this? Do we have relatives causing us grief? Do we have

friends, employers, co workers causing headaches? Do we have alcohol or

drug related relatives, friends, or situations??? SO WHAT!? There are plenty

in the world that do have this same thing. There are some of us who are more

physically Sensitive to the world's stress, or drugs, or environment, or

chemicals.

In this little area of ours, we learn to

encourage, support, and learn from one another to lead a wholesome healthy

life through diet, attitude, prayer, and wonderful friends.

Positive support and HOPE are Key Factors to the road of Healing. We have been

blessed to have more in this site than others. God Bless Us All!

Now this was a free consultation....You did have to pay for all that talk.

May we encourage one another to a more positive outlook and learn the healthy

way

to live, and enjoy Life once again.

Love to all,

________________________________

From: P <mailto:%40Napdog.com>

To: mailto:fibromyalgiacured%40yahoogroups.com

Sent: Friday, January 13, 2012 6:54 AM

Subject: RE: Re: Tim Testimonies

>>>Tim sounded like he had the cure for fibro. If so...why not share his

client's testimonials?

With all due respect, Tim sounded to me like just another in a very long line of

slick pitches from thinly credentialed self-described 'experts' jumping on the

bandwagon to make $$ off the ill and desperate. I am still, at this point,

willing to give him the benefit of the doubt and allow that perhaps he genuinely

believes his method is a cure based on his clearly limited understanding of FMS

and based upon a few success stories from his clientele. Perhaps he really has

had clients report full relief from their fibro symptoms, but without full

background details and case histories verifiable by reliable third party

sources, we AND HE have no way of determining the degree of truth to this

so-called cure. We cannot know whether these clients had been diagnosed by

recognized criteria or had self-diagnosed after a few months of feeling off. We

cannot know whether the root cause of their conditions were also addressed or

even guess at the root cause of

each individual's condition -- and I do believe that fibromyalgia is a not a

specific disease in and of itself, but a syndrome, a set of symptoms produced by

various other conditions. I believe this because researchers have been able to

produce fibromyalgia symptoms in healthy test patients through sleep

deprivation, and because effective treatments vary so greatly among patients.

And without a dialogue with Tim, we cannot begin to determine whether he's a

genuine resource or a slick pitch artist -- and I say this with the experience

of 20 years of fibro and a background as a journalist, research analyst, and

author who's been active on the internet for a very long time. Yes, I'm

professionally trained to be skeptical, and my professional history has

reinforced that skepticism. That's been a very useful tool in managing my fibro

and dealing with the root causes of my symptom since I was diagnosed ---- and

actually, in even obtaining a diagnosis beyond, " here, take this pill. It should

make you feel better. " I've gone from being unable to hold a pen long enough to

write a single check, unable to walk half a block, to being able to carry a 50

lb. bag of feed or a bale of hay easily.

I do hope Tim will step up and participate for the benefit of those who might

find his treatment helpful. I've personally found a great deal of relief and

greater control over fibro management through a similar form of therapy which is

directed at the stresses the unconscious mind carries. Had that been the root

cause of my fibro, I'd be cured. Had diet been the root cause, I'd also be cured

because I've done the whole ketosis, low carb, and several others directed

specifically at known gut issues and intolerances. Because of those treatments,

I'm significantly improved. I'm not cured, though, and still am choosing among

the therapies that seem to be a proper match.

P