Guest guest Posted December 17, 1999 Report Share Posted December 17, 1999 ---------- >From: snbquilter@... >To: chiarieGroups >Subject: new group member >Date: Thu, Dec 16, 1999, 11:53 PM > > I found this group after the Dateline show. I am 51 now, and had > decompression surgery at age 50. I recovered very fast, and had about > 3 or 4 months that were great. I have found a new neurologist who is > very puzzled by my symptoms. Mayo in Rochester said they couldn't do > anything he hasn't done. Now we are waiting to see if Mayo in > sdale will see me. The pain is bad when it hits, but fortunately > doesn't last long. There are usually several pain episodes each day. > I'm taking neurontin and indocin. I am very frustrated with this whole > situation. My surgeon didn't offer guarantees, but the few great > months made me think the problems were over. > Sorry this is so long, I'm just glad to talk to someone who will > understand. > Thanks, Marci Hi Macrci and group, I hate to say it but you might be wasting time and money going to Mayo in sdale (I have been there and saw their group of doctors...was not impresses! They told me my major problem was depression! Really made me angry} but anyway, they do the standard decompression that most neuros do. A suggestion would be to talk with one of the doctors who have had a lot of chiari experience like, Milhorat, Oro, .....etc. Since these doctors have been doing studys on chiari they may be better equipted to help you. ....just a thought... hugs, Judy Marie Quote Link to comment Share on other sites More sharing options...
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