Guest guest Posted September 28, 1999 Report Share Posted September 28, 1999 > That makes two of us on this list who's implant extruded!! It irritates me > to no end because Cochlear denies there are very many extrusions and I am > starting to hear about a few here and there. My daughter's implant > extruded twice!! We finally gave up because the process to find out why it > was extruding was long and arduous ... > > She now wears hearing aids like before but the ear that was implanted > definetely is now her " bad " ear - she hears much better with the other one. > I would not let them implant his other ear unless he has absolutely no > aidable hearing. > > Amy Hi Amy, I hesitate to even tell people what happened with Zak because he is the type of kid that " if it can go wrong, it will go wrong " . He has things happen to him that just don't happen to anyone. When our pediatrician prescribes a new medication....she doesn't look at he common side effects, she goes all the way to the bottom of the list and looks at the very rare, happens to 1/2 of 1% stuff and that is what we watch Zak for!!! We learned this the hard way. I have heard of few kids that have had their implants extrude, in Zak's case everyone is fairly certain that his extruded because it was placed to close to the surface when it was moved due to the infection. The well or the pocket was too shallow, so when the infection began to clear up and all the swelling went down it extruded. As far as his aided hearing....he was at the point that even with his aids he was getting next to nothing. There is a conference of implant surgeons soon and Zak's surgeon will be attending, he is taking pictures of the implant site and plans to present Zak's case to the other surgeons for their opinion on how to proceed. We are keeping our options open at this point. RoseAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 1999 Report Share Posted September 28, 1999 Congratulations, ! As far as I can remember, my son's first recognizable word(s) after he got his hearing aids was, " Let's go! " (Used appropriately as he climbed out of the high chair at a restaurant!) Dixie >Also I just wanted to let everyone Kassidy has had her hearing aid for about >2 1/2 weeks and I always tell her ALLRIGHT.....WITH THUMBS UP OF COURSE when >she eats her food and tonight she said AWWIIIIII!!!!!! WITH THE THUMBS UP!!! >HER FIRST WORD! WIERD ONE I KNOW. Thanks and sorry so long. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 1999 Report Share Posted September 28, 1999 I just was wondering if anyone has heard that in order to implant an ear the residual hearing in that ear will be destroyed, due to the fact that the wire has to go through the nerve.I was told (not by a doctor) That there is no use in using a hearing aid on that ear if the processor is broken or being repaired or something. Also on another note I had an EIP meeting with the twins' teacher and she said she would research if the implant processor and the fm sytem can be connected as Kay's son is. She told me she called cochlear and they said they shouldn't do that because the boys have different implants and one would work but the other boy would only hear the teacher! Well I don't have to tell you all but I went off in the notebook telling the teacher that coclear was wrong they have theEXACT SAME IMPLANT! I told her that I think I should know what the doctor's put into my child's head! I wasn't mad at the fact that they couldn't be connected I was mad at all the mis information going around and told her that. I know how well my sons are doing with their implants but I think they should have their right ears amplified as well. I am the parent and I make that desicion but everyone is telling me they are fine the way the are. I know that but why put nothing on the other ear? I just don't know what to do anymore any ideas?? Also I just wanted to let everyone Kassidy has had her hearing aid for about 2 1/2 weeks and I always tell her ALLRIGHT.....WITH THUMBS UP OF COURSE when she eats her food and tonight she said AWWIIIIII!!!!!! WITH THE THUMBS UP!!! HER FIRST WORD! WIERD ONE I KNOW. Thanks and sorry so long. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 1999 Report Share Posted September 28, 1999 > From: Glm@... > > I just was wondering if anyone has heard that in order to implant an ear >the residual hearing in that ear will be destroyed, due to the fact that the >wire has to go through the nerve. , this is also what we were told. > Also on another note I had an EIP meeting with the twins' teacher and she > said she would research if the implant processor and the fm sytem can be > connected as Kay's son is. She told me she called cochlear and they said >they shouldn't do that because the boys have different implants and one >would work but the other boy would only hear the teacher! This doesn't make any sense just like you said. Kay's son has the N24 from Cochlear Corp. I am not sure if your son's have the N22 or N24 but I would think that they could use a FM on either. Did you get the new teacher's manual from Cochlear? If you have not ask your implant center to get you one. It is filled with good information for teachers of kids with implants, including a list of what FM systems are compatible with which processors. If you want the FM list right away let me know and I can scan it in and email it to you. RoseAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 1999 Report Share Posted September 29, 1999 In a message dated 9/29/99 12:19:53 AM Eastern Daylight Time, MDUPLAN@... writes: > > > > > From: Glm@... > > > > I just was wondering if anyone has heard that in order to implant an ear > >the residual hearing in that ear will be destroyed, due to the fact that > the >wire has to go through the nerve. > > , > this is also what we were told. > > Hi guys, yes, essentially, any residual hearing is destroyed but it is because of the electrode being introduced in the cochlea. It doesn't go through the nerve. Some adults, tho', say that they can still hear somewhat when they put their old HA's on that ear!! Altho' it is in a very few small number of cases. Hope this helps. Orla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 1999 Report Share Posted September 29, 1999 > I just was wondering if anyone has heard that in order to implant an ear the > residual hearing in that ear will be destroyed, due to the fact that the wire > has to go through the nerve.I was told (not by a doctor) That there is no use > in using a hearing aid on that ear if the processor is broken or being > repaired or something. The wire does not go through the nerve, it merely runs along side it. I've heard from a few implant patients who report they can still hear with their hearing aid in their implanted ear, though not really well. I was really surprised when our son was implanted that the surgeon said if JD wanted to he could try wearing the hearing aid on him implanted side till he was ready for hookup because he may be able to hear with it (JD didn't want to). > Also on another note I had an EIP meeting with the twins' teacher and she > said she would research if the implant processor and the fm sytem can be > connected as Kay's son is. Shouldn't be too much of a problem, depending on the brand of FM being used. Some use a cord that has a plug similar to the plug on the end of a patch cord and you just patch the FM receiver into the speech processor. Some of the FM receivers may need to have an internal switch changed so it's always best to have your implant center do the connecting. Phonak FM's require a special cord, but there is a gentleman who makes special patch cords to order for folks with implants. > I know how well my sons are doing with their implants but I > think they should have their right ears amplified as well. I am the parent > and I make that desicion but everyone is telling me they are fine the way the > are. I know that but why put nothing on the other ear? I just don't know what > to do anymore any ideas?? I know this doesn't really answer your question, but I recently put up a file from a lady who put into wonderful words why she uses a hearing aid with her implant. http://members.tripod.com/listenup/ci-ha.htm Just as a point of interest, our implant center allows the user to choose whether or not to aid the unimplanted ear. However, the military implant center (thankfully it was shut down for a few months at the same time our son qualified) looks at us like aiding JD's other ear is a form of child abuse. JD does do better with binaural amplification, always has. When he qualified for implantation, in each ear he got 38% and 42% word recognition. But binaurally he got much better than that. I've heard from lots of adult users who say that they like wearing both because the implant gives them a lot of the highs they've been missing, but the hearing aid gives them more of the lows, and together the sound has more dimension than either one alone. I've also heard from adults that say the sounds seem out of sync, and they just can't get their brains to put the two together. I guess like all things we have to deal with, it's highly individual. ;-) Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 1999 Report Share Posted October 1, 1999 In a message dated 9/28/99 11:27:15 AM Eastern Daylight Time, MDUPLAN@... writes: << There is a conference of implant surgeons soon and Zak's surgeon will be attending, he is taking pictures of the implant site and plans to present Zak's case to the other surgeons for their opinion on how to proceed. >> Roseann Who is the surgeon? Why did they put it too close to the skin? Shirley Quote Link to comment Share on other sites More sharing options...
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