[Fwd: pls study]

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Hi every one, i am not a nube here, have had pls for going on six years, i

realy fell that we all should take advantage of this, because if we dont , then

we have to do it for the kids out there that might get this. If we dont take

advantage of this then shame on us!!

Dave Stiver

Nailah Siddique wrote:

> Thanks for your lovely offer, ! We are trying to accrue enough

> samples to eventually determine whether there are underlying genetic

> factors that make one vulnerable to PLS. We need lots of samples before we

> can actually do the research. We are looking for families in which there

> is a patient who has 2 parents who can also give 2 tablespoons of blood, or

> a patient and older, unaffected brother or sister. We need at least 300 of

> each type of set. (but of course we'll never get that if we don't start,

> so we're starting at least!)

>

> I can send little kits directly to each person participating. We'll pay

> for the blood drawing and the shipping via Fed Ex. I would also like a

> copy of your medical records to verify the diagnosis. I can send you a

> release form for that. The final thing I would need is enough information

> about your familyt to construct a basic family tree that indicates what

> health problems are present in the family. (I've a form for that, too.)

>

> If this sounds OK, let me know to whom, and where I should send

> stuff. Again, thanks for your great offer. Sorry I was slow to answer. I

> had skipped out on vacation (to try to get warm...)

> Nailah

> At 04:12 PM 2/1/00 -0500, you wrote:

> >Dear Nailah

> > I have seen through the P.L.S. web sight that you are

> >requiesting people with pls to volenter for your study. I have had pls

> >since 1994 and would like to join your study.

> >

> > Best Reguards

> > Daved C. Stiver

> > 213 Meadow Dr.

> > stown Pa.

> >

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