Re: Pls Pain and other stuff

[Guest guest]

Thanks to all who have responded re pain and neuropathy ... they are

helpful. I would like to hear from more.

I have a sneaking suspicion that while I have the symptomology associated

with PLS (progressive spasticity caused by degeneration of upper motor

neurons), that the cause of those symptoms may be different for me than for

most PLSers. I will continue to look for differences.

How about burning eyes??

Also, my progression is pretty rapid compared to most and seems to happen

in step changes occuring at fairly regular intervals. Any comments?

Thanks so much and regards ... Roy

[Guest guest]

Roy,

Now you have mentioned one for me. I have burning eyes. I am currently

using natural tears to help with this. It is probably a side effect of

any meds you are on, especially baclofen, Zanaflex, or a

benzodiazapine.(Valium or Klonopin or Xanax, etc.) Your progression

sounds a little unusual to me. I haven't heard from others who progress

in steps. I, personally, have been stable for at least 3 years and my

neurologist says I'm in better shape now than when he first saw me.

Strange. Hope it stays that way for me. Also hope you stop progressing.

My 2nd diagnosis was chronic degenerative spastic paraperesis. When I

was having my spasms, I could not walk and they were painful. Both legs

were affected with the right one being first. When the left got

involved, it became the worst side. The right was still involved, and

still is, but when I am having problems, it is my left side that is

problematic. However, it is the right side that that has the

fasciculations in the quadricep. I also have an " electrical shock

feeling " across the right quad from my groin to the outside of my right

knee. Haven't had that for a long time. As far as degeneration is

concerned, I've been degenerate for a long time, according to some of my

friends, including my wife. Best to you. Mike Gray.

" Roy A. s " wrote:

>

>

> Thanks to all who have responded re pain and neuropathy ... they are

> helpful. I would like to hear from more.

>

> I have a sneaking suspicion that while I have the symptomology

> associated

> with PLS (progressive spasticity caused by degeneration of upper motor

>

> neurons), that the cause of those symptoms may be different for me

> than for

> most PLSers. I will continue to look for differences.

>

> How about burning eyes??

>

> Also, my progression is pretty rapid compared to most and seems to

> happen

> in step changes occuring at fairly regular intervals. Any comments?

>

> Thanks so much and regards ... Roy

>

>

> -----------------------------------------------------------------------

> [

[Guest guest]

> Also, my progression is pretty rapid compared to most and seems to happen

> in step changes occuring at fairly regular intervals. Any comments?

>

> Thanks so much and regards ... Roy

Hi Roy! I too have had " step changes " . I have periods of increased

weakness that last 4 to 6 weeks then partially resolve as well as some

progressive, abelit very slow, losses. In fact, I thought I had MS rather

than PLS but all tests for MS were negative and my age, currenty state,

etc. fits PLS (as does my poor typing!). I suspect as more of us get known

to the docs there will be more variety and the commonalities more defined.

Remember- PLS is more a matter of symptom clustering rather than a clearly

defined disease process. I call mine a condition rather than a disease

for this reason. Lavon

[Guest guest]

Lately, hubby (Glen) is complaining quite a bit about burning eyes. I had

thought the increased use of household heat with out weather problems, could be

the cause. I add moisture to the air, and think it does help some. If PLS is

the culprit, I would like to know too. Carol C

" Roy A. s " wrote:

>

>

> Thanks to all who have responded re pain and neuropathy ... they are

> helpful. I would like to hear from more.

>

> I have a sneaking suspicion that while I have the symptomology associated

> with PLS (progressive spasticity caused by degeneration of upper motor

> neurons), that the cause of those symptoms may be different for me than for

> most PLSers. I will continue to look for differences.

>

> How about burning eyes??

>

> Also, my progression is pretty rapid compared to most and seems to happen

> in step changes occuring at fairly regular intervals. Any comments?

>

> Thanks so much and regards ... Roy

>

> ---------------------------