Re: Judy LDN and Fibromyalgia

[Guest guest]

The problem with LDN is that it works for most people but not always in the same

way for everyone. What I mean is that for some people they have the best sleep

of their lives while for others they have a harder time getting to sleep or

staying asleep. The majority of people take it at bedtime, but some people have

to take it upon arising if they have sleep issues. As for myself, I had no

change in sleep habits at first, but then I gradually noticed that I was

dreaming, which I hadn’t done in a long time. I now dream normally, but I

always wake up at least once around 3-4 hours after I take LDN. I usually go

right back to sleep, though.

As for fatigue, I did notice a slight difference, but I agree, it doesn’t

really affect it. However, it really did affect my pain levels. It was a real

gradual process, but my pain levels were close to normal within 6 to 9 months.

If a person has thyroid problems, they will want to start at a very low dose and

gradually work their way up. This is especially important if it is the

autoimmune type called Hashimoto’s Thyroiditis. We are learning that people

that are on Synthroid may have to start lowering their dose once they start LDN.

What causes this isn’t understood yet.

Judy H

To Health Through Knowledge

Started taking Low Dose Naltrexone on January 20, 2009 for

Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

http://health.groups.yahoo.com/group/LDNforFibro/

From: Joanne Ford

Sent: Tuesday, February 28, 2012 1:11 PM

To: fibromyalgiacured

Subject: Re: Judy LDN and Fibromyalgia

Judy

This is good news that the LDN is helping pain, but it is saying no improvement

in fatigue and sleep. how have you been with fatigue and sleep, has it helped

you? I ask because my dad is in the process of starting with this. I am hoping

he will be able to lower his l-dopa dose using LDN.

Love Joanne

From: Judy Harford <mailto:jlharford%40msn.com>

To: mailto:fibromyalgiacured%40yahoogroups.com

Sent: Tuesday, 28 February 2012, 16:38

Subject: LDN and Fibromyalgia

Here is the latest information on the secondary trial for LDN (Low Dose

Naltrexone) and Fibromyalgia patients conducted by Stanford University.

http://www.medpagetoday.com/MeetingCoverage/AAPM/31371

Judy H

To Health Through Knowledge

Started taking Low Dose Naltrexone on January 20, 2009 for

Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

http://health.groups.yahoo.com/group/LDNforFibro/

[Guest guest]

Just a quick note that my fibro pain virtually vanished once I stopped eating

gluten and dairy, no LDN or any other drug. If I eat dairy, my joints swell and

have pain & swelling within 12 hours; if I accidentally eat gluten, my entire

body aches with strange pings and pangs all over the place. Both last for about

3-5 days.

> The problem with LDN is that it works for most people but not always in the

same way for everyone. What I mean is that for some people they have the best

sleep of their lives while for others they have a harder time getting to sleep

or staying asleep. The majority of people take it at bedtime, but some people

have to take it upon arising if they have sleep issues. As for myself, I had no

change in sleep habits at first, but then I gradually noticed that I was

dreaming, which I hadn’t done in a long time. I now dream normally, but I always

wake up at least once around 3-4 hours after I take LDN. I usually go right back

to sleep, though.

>

> As for fatigue, I did notice a slight difference, but I agree, it doesn’t

really affect it. However, it really did affect my pain levels. It was a real

gradual process, but my pain levels were close to normal within 6 to 9 months.

If a person has thyroid problems, they will want to start at a very low dose and

gradually work their way up. This is especially important if it is the

autoimmune type called Hashimoto’s Thyroiditis. We are learning that people that

are on Synthroid may have to start lowering their dose once they start LDN. What

causes this isn’t understood yet.

>

> Judy H

> To Health Through Knowledge

> Started taking Low Dose Naltrexone on January 20, 2009 for

> Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

> http://health.groups.yahoo.com/group/LDNforFibro/

>

> From: Joanne Ford

> Sent: Tuesday, February 28, 2012 1:11 PM

> To: fibromyalgiacured

> Subject: Re: Judy LDN and Fibromyalgia

>

> Judy

>

> This is good news that the LDN is helping pain, but it is saying no

improvement in fatigue and sleep. how have you been with fatigue and sleep, has

it helped you? I ask because my dad is in the process of starting with this. I

am hoping he will be able to lower his l-dopa dose using LDN.

>

> Love Joanne

>

> From: Judy Harford <mailto:jlharford%40msn.com>

> To: mailto:fibromyalgiacured%40yahoogroups.com

> Sent: Tuesday, 28 February 2012, 16:38

> Subject: LDN and Fibromyalgia

>

> Here is the latest information on the secondary trial for LDN (Low Dose

Naltrexone) and Fibromyalgia patients conducted by Stanford University.

> http://www.medpagetoday.com/MeetingCoverage/AAPM/31371

>

> Judy H

> To Health Through Knowledge

> Started taking Low Dose Naltrexone on January 20, 2009 for

> Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

> http://health.groups.yahoo.com/group/LDNforFibro/

>

>

[Guest guest]

Hi, I first found Bee's group when I was investigating LDN groups. Someone said

the best results come when taking care of candida first. Bee's group worked so

well, I did not bother with LDN. Perhaps that is why some have better results.

Your diet can make a big difference in how you react to LDN. Bee's diet helps

thyroid function, etc.

c

>

> The problem with LDN is that it works for most people but not always in the

same way for everyone. What I mean is that for some people they have the best

sleep of their lives while for others they have a harder time getting to sleep

or staying asleep. The majority of people take it at bedtime, but some people

have to take it upon arising if they have sleep issues. As for myself, I had no

change in sleep habits at first, but then I gradually noticed that I was

dreaming, which I hadn’t done in a long time. I now dream normally, but I

always wake up at least once around 3-4 hours after I take LDN. I usually go

right back to sleep, though.

>

> As for fatigue, I did notice a slight difference, but I agree, it doesn’t

really affect it. However, it really did affect my pain levels. It was a real

gradual process, but my pain levels were close to normal within 6 to 9 months.

If a person has thyroid problems, they will want to start at a very low dose and

gradually work their way up. This is especially important if it is the

autoimmune type called Hashimoto’s Thyroiditis. We are learning that people

that are on Synthroid may have to start lowering their dose once they start LDN.

What causes this isn’t understood yet.

>

> Judy H

> To Health Through Knowledge

> Started taking Low Dose Naltrexone on January 20, 2009 for

> Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

> http://health.groups.yahoo.com/group/LDNforFibro/

>

> From: Joanne Ford

> Sent: Tuesday, February 28, 2012 1:11 PM

> To: fibromyalgiacured

> Subject: Re: Judy LDN and Fibromyalgia

>

>

> Judy

>

> This is good news that the LDN is helping pain, but it is saying no

improvement in fatigue and sleep. how have you been with fatigue and sleep, has

it helped you? I ask because my dad is in the process of starting with this. I

am hoping he will be able to lower his l-dopa dose using LDN.

>

> Love Joanne

[Guest guest]

I always try to tell people that LDN isn’t a stand alone treatment. A person

needs to change their diet first. Actually, LDN works best if Candida is under

control. Most of the problems that people have with it is caused by Candida as

it does seem to bring it to the surface. Many people have said that they had to

stop LDN and treat their Candida before they could start it again.

The main thing that I found with the thyroid is that it is really important to

be gluten free in order to treat it. So yes, diet first and maybe LDN won’t be

necessary.

Judy H

To Health Through Knowledge

Started taking Low Dose Naltrexone on January 20, 2009 for

Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

http://health.groups.yahoo.com/group/LDNforFibro/

From: cindy_martian

Sent: Wednesday, February 29, 2012 11:51 AM

To: fibromyalgiacured

Subject: Re: Judy LDN and Fibromyalgia

Hi, I first found Bee's group when I was investigating LDN groups. Someone said

the best results come when taking care of candida first. Bee's group worked so

well, I did not bother with LDN. Perhaps that is why some have better results.

Your diet can make a big difference in how you react to LDN. Bee's diet helps

thyroid function, etc.

c

>

> The problem with LDN is that it works for most people but not always in the

same way for everyone. What I mean is that for some people they have the best

sleep of their lives while for others they have a harder time getting to sleep

or staying asleep. The majority of people take it at bedtime, but some people

have to take it upon arising if they have sleep issues. As for myself, I had no

change in sleep habits at first, but then I gradually noticed that I was

dreaming, which I hadn’t done in a long time. I now dream normally, but I

always wake up at least once around 3-4 hours after I take LDN. I usually go

right back to sleep, though.

>

> As for fatigue, I did notice a slight difference, but I agree, it doesn’t

really affect it. However, it really did affect my pain levels. It was a real

gradual process, but my pain levels were close to normal within 6 to 9 months.

If a person has thyroid problems, they will want to start at a very low dose and

gradually work their way up. This is especially important if it is the

autoimmune type called Hashimoto’s Thyroiditis. We are learning that people

that are on Synthroid may have to start lowering their dose once they start LDN.

What causes this isn’t understood yet.

>

> Judy H

> To Health Through Knowledge

> Started taking Low Dose Naltrexone on January 20, 2009 for

> Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOS

> http://health.groups.yahoo.com/group/LDNforFibro/

>

> From: Joanne Ford

> Sent: Tuesday, February 28, 2012 1:11 PM

> To: mailto:fibromyalgiacured%40yahoogroups.com

> Subject: Re: Judy LDN and Fibromyalgia

>

>

> Judy

>

> This is good news that the LDN is helping pain, but it is saying no

improvement in fatigue and sleep. how have you been with fatigue and sleep, has

it helped you? I ask because my dad is in the process of starting with this. I

am hoping he will be able to lower his l-dopa dose using LDN.

>

> Love Joanne