Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 Welcome Amy! So glad you found us. There are so many really great ladies here. Leisa W. Mothermaybe@... wrote: Hi all, I have been reading for a few days and like have much you support one another. I have been TTC for 14 months now. TR was performed in Jan 2001, by a Dr. South Central, KY. I have had very little support, so I was thrilled when I found this site. It has been great to here of all the pregnancies that have occurred in you group, it renews my hope which has been fading fast. Amy- 30 DH - 38 Married in 1999 DD- Born 1991 DS- Born 1992 TL- April 1997 (Why listen to a single mother at 25) TR - Jan 2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 Welcome Amy, you will find a lot of wonderful women on the support group and a wealth of knowledge! G. Nashville, TN Re: I'm New here Welcome Amy! So glad you found us. There are so many really great ladies here. Leisa W. Mothermaybe@... wrote: Hi all, I have been reading for a few days and like have much you support one another. I have been TTC for 14 months now. TR was performed in Jan 2001, by a Dr. South Central, KY. I have had very little support, so I was thrilled when I found this site. It has been great to here of all the pregnancies that have occurred in you group, it renews my hope which has been fading fast. Amy- 30 DH - 38 Married in 1999 DD- Born 1991 DS- Born 1992 TL- April 1997 (Why listen to a single mother at 25) TR - Jan 2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2009 Report Share Posted August 10, 2009 Thank you. I appreciate all the information I find here. My problem will be getting dad to take any meds which may be prescribed to him. He believes all pills are " drugs " and fights them visiously. His hallucinations are constant. There are not off times anymore. The clonazepam has helped him sleep at night, other than that I haven't noticed him being worse, but am looking forward to seeing the new doctor (as soon as it's cleared with insurance, geeezzz!!) I'm hoping she can get us a good constant tract (as much as that can be). Thank you very much for your support. I look forward to knowing all of you. This is a wonderful group and the most comfort I've had since this all started. Tracey > > > > Hi, my name is Tracey. We found out in February that my dad has dementia. The scans that were done didn't show that it was lewy body dementia, but from what I've read, those symptoms most fit him and his doctor is treating him for lewy body dementia. Dad was a health nut beyond and by January/February of this year he had malnutritioned himself to the point of hospitalization. He was extremely low in B-12 and iron and was having hallucinations. After we got his blood levels back up (about 13 days later) we finally got him to begin eating more normally, however he refused to take any " drugs " . There getting him to make any medication was out of the question. We have finally gotten him to begin taking clonazepam to help him sleep more normally at night, but not regularly. For a period of time he would remain awake for days at a time to watch for what the " people " in his hallucinations were doing to him and mom. Since then the hallucinations have gotten worse and his cognitive abilities have also declined markedly. He and mom still live in the old homestead, but I go out there at least once a week to bring dad back down to reality and to take care of both of their finances. Last Saturday dad told me if he gets sick again to just let him die because living like this is a living hell and he prefers death. My dad used to have an IQ of 186 and was a geneous. Now he can add or subtract. Watching this decline is killing me. Apparently, according to my husband, I'm now taking this stress out on him. I didn't realize I was doing that, so......here I am. My hope is to find somewhere that I can vent and maybe find some suggestions too to make things better. I look forward to being in here and chatting with you all. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2009 Report Share Posted August 10, 2009 Tracey, what if you told your dad you want to try another med instead of the one he is taking as it might help reduce his hallucinations, agitation and help him sleep? 3 benefits in 1 pill! Also, many doctors still don't know how to treat someone with LBD. I hope the new doctor you mention is LBD familiar. So many aren't and prescribe the wrong meds which actually in many cases, have killed our los. We here, the caregivers, have had to do a lot of educating of doctors about LBD. The condition is bad enough. Doctors mistreatment makes it so much worse. The right meds make the journey so much more tolerable. Are his hallucinations worse since the Clonazepam? If you want to help him get rid of the hallucinations, please look at Seroquel, but not with the Clonazepam, instead of. Decline in cognitive abilities could also be attributed to the Clonazepam. He could do so much better with the right meds, without the ones that are not recommended. I hear what you say about his not wanting to take drugs. Many here have crushed them into applesauce, ice cream, whatever will work. We have to become creative in our caregiving roles. > > > > > > Hi, my name is Tracey. We found out in February that my dad has dementia. The scans that were done didn't show that it was lewy body dementia, but from what I've read, those symptoms most fit him and his doctor is treating him for lewy body dementia. Dad was a health nut beyond and by January/February of this year he had malnutritioned himself to the point of hospitalization. He was extremely low in B-12 and iron and was having hallucinations. After we got his blood levels back up (about 13 days later) we finally got him to begin eating more normally, however he refused to take any " drugs " . There getting him to make any medication was out of the question. We have finally gotten him to begin taking clonazepam to help him sleep more normally at night, but not regularly. For a period of time he would remain awake for days at a time to watch for what the " people " in his hallucinations were doing to him and mom. Since then the hallucinations have gotten worse and his cognitive abilities have also declined markedly. He and mom still live in the old homestead, but I go out there at least once a week to bring dad back down to reality and to take care of both of their finances. Last Saturday dad told me if he gets sick again to just let him die because living like this is a living hell and he prefers death. My dad used to have an IQ of 186 and was a geneous. Now he can add or subtract. Watching this decline is killing me. Apparently, according to my husband, I'm now taking this stress out on him. I didn't realize I was doing that, so......here I am. My hope is to find somewhere that I can vent and maybe find some suggestions too to make things better. I look forward to being in here and chatting with you all. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2009 Report Share Posted August 10, 2009 He's agreed to take the meds (for now), that changes daily. His hallucinations haven't gotten worse with the clonazepam. He's sleeping now and he actually looks better, but he doesn't sleep all night. This new doctor is a geriatric psychiatrist I would assume she knows about LBD, but I will ask. I wouldn't have even thought they wouldn't know before this website. I will make notes from the website before I go. Thanks for all your help and suggestions. > > > > > > > > Hi, my name is Tracey. We found out in February that my dad has dementia. The scans that were done didn't show that it was lewy body dementia, but from what I've read, those symptoms most fit him and his doctor is treating him for lewy body dementia. Dad was a health nut beyond and by January/February of this year he had malnutritioned himself to the point of hospitalization. He was extremely low in B-12 and iron and was having hallucinations. After we got his blood levels back up (about 13 days later) we finally got him to begin eating more normally, however he refused to take any " drugs " . There getting him to make any medication was out of the question. We have finally gotten him to begin taking clonazepam to help him sleep more normally at night, but not regularly. For a period of time he would remain awake for days at a time to watch for what the " people " in his hallucinations were doing to him and mom. Since then the hallucinations have gotten worse and his cognitive abilities have also declined markedly. He and mom still live in the old homestead, but I go out there at least once a week to bring dad back down to reality and to take care of both of their finances. Last Saturday dad told me if he gets sick again to just let him die because living like this is a living hell and he prefers death. My dad used to have an IQ of 186 and was a geneous. Now he can add or subtract. Watching this decline is killing me. Apparently, according to my husband, I'm now taking this stress out on him. I didn't realize I was doing that, so......here I am. My hope is to find somewhere that I can vent and maybe find some suggestions too to make things better. I look forward to being in here and chatting with you all. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2009 Report Share Posted August 10, 2009 Hi Tracey, This is a wonderful group of people. Welcome to the group that nobody should have to belong to..... We experience a lot of stress, and it often shows in many subtle ways. It's hard to balance family obligations, and the new obligation of a family member with LBD. My Mom was started on Aricept, and a few years ago, namenda was added. It improved her cognition, but we believe the namenda makes her sleep more. She's on Zoloft for depression - it's worked better than anything else she's been on. Sending hugs from NY, Helene > > Hi, my name is Tracey. We found out in February that my dad has dementia. The scans that were done didn't show that it was lewy body dementia, but from what I've read, those symptoms most fit him and his doctor is treating him for lewy body dementia. Dad was a health nut beyond and by January/February of this year he had malnutritioned himself to the point of hospitalization. He was extremely low in B-12 and iron and was having hallucinations. After we got his blood levels back up (about 13 days later) we finally got him to begin eating more normally, however he refused to take any " drugs " . There getting him to make any medication was out of the question. We have finally gotten him to begin taking clonazepam to help him sleep more normally at night, but not regularly. For a period of time he would remain awake for days at a time to watch for what the " people " in his hallucinations were doing to him and mom. Since then the hallucinations have gotten worse and his cognitive abilities have also declined markedly. He and mom still live in the old homestead, but I go out there at least once a week to bring dad back down to reality and to take care of both of their finances. Last Saturday dad told me if he gets sick again to just let him die because living like this is a living hell and he prefers death. My dad used to have an IQ of 186 and was a geneous. Now he can add or subtract. Watching this decline is killing me. Apparently, according to my husband, I'm now taking this stress out on him. I didn't realize I was doing that, so......here I am. My hope is to find somewhere that I can vent and maybe find some suggestions too to make things better. I look forward to being in here and chatting with you all. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2009 Report Share Posted August 12, 2009 Tracey, Welcome. I'm glad you found our group, but, as with all of us, I'm sorry you have to be here. Just a thought to add to the others, regarding resistance to taking meds for this condition. My mother was also very resistant, because all her life her " volition " , her ability to choose for herself, was of tremendous importance to her. With LBD, of course, she hated that her " volition is being violated. " The best way we could explain it to her was this: " You have a disease called LBD. It's a disease of the brain. You cannot control the hallucinations by your volition any more than a diabetic can control his blood sugar by thinking about it. You need the medication. " It helped her to be more accepting of the help offered. Please spend all the time you need here and learn from these wonderful people. Also check the files, links, and database for the wealth of information there. You will learn and be comforted. Wishing peace for you and for your dad, Sheila in IN Daughter of Louise, age 86, dx LBD 7/2007 Seroquel 9AM- 25 mg, 3PM- 62.5 mg, 9PM -100 mg. > > Hi, my name is Tracey. We found out in February that my dad has dementia. The scans that were done didn't show that it was lewy body dementia, but from what I've read, those symptoms most fit him and his doctor is treating him for lewy body dementia. Dad was a health nut beyond and by January/February of this year he had malnutritioned himself to the point of hospitalization. He was extremely low in B-12 and iron and was having hallucinations. After we got his blood levels back up (about 13 days later) we finally got him to begin eating more normally, however he refused to take any " drugs " . There getting him to make any medication was out of the question. We have finally gotten him to begin taking clonazepam to help him sleep more normally at night, but not regularly. For a period of time he would remain awake for days at a time to watch for what the " people " in his hallucinations were doing to him and mom. Since then the hallucinations have gotten worse and his cognitive abilities have also declined markedly. He and mom still live in the old homestead, but I go out there at least once a week to bring dad back down to reality and to take care of both of their finances. Last Saturday dad told me if he gets sick again to just let him die because living like this is a living hell and he prefers death. My dad used to have an IQ of 186 and was a geneous. Now he can add or subtract. Watching this decline is killing me. Apparently, according to my husband, I'm now taking this stress out on him. I didn't realize I was doing that, so......here I am. My hope is to find somewhere that I can vent and maybe find some suggestions too to make things better. I look forward to being in here and chatting with you all. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2009 Report Share Posted August 12, 2009 Hi, Tracey! Welcome to the place where none of us would have chosen to be! This is indeed a very cruel illness and a long and ardous journey with ups and downs that made somebody call it the " roller coaster " . First, please take care of yourself, vent here all you want and not on your husband -you can get him to be your shoulder to cry on and your source of love and comfort. But we are here to support you, to answer your questions, to hear your complaints, to encourage you on your struggle to help your parents. I'm not to sure clonazepam is a good drug for LBD patients. Surely others will answer that question. Also will provide you with a list of the NO-NO medicines for people with LBD. I'll add your name to my list of special prayers. Hugs, Raquel Asay Husband diagnosed Dec. 2007, passed away Sept. 2008, but had symptoms 10 years back. > > Hi, my name is Tracey. We found out in February that my dad has dementia. The scans that were done didn't show that it was lewy body dementia, but from what I've read, those symptoms most fit him and his doctor is treating him for lewy body dementia. Dad was a health nut beyond and by January/February of this year he had malnutritioned himself to the point of hospitalization. He was extremely low in B-12 and iron and was having hallucinations. After we got his blood levels back up (about 13 days later) we finally got him to begin eating more normally, however he refused to take any " drugs " . There getting him to make any medication was out of the question. We have finally gotten him to begin taking clonazepam to help him sleep more normally at night, but not regularly. For a period of time he would remain awake for days at a time to watch for what the " people " in his hallucinations were doing to him and mom. Since then the hallucinations have gotten worse and his cognitive abilities have also declined markedly. He and mom still live in the old homestead, but I go out there at least once a week to bring dad back down to reality and to take care of both of their finances. Last Saturday dad told me if he gets sick again to just let him die because living like this is a living hell and he prefers death. My dad used to have an IQ of 186 and was a geneous. Now he can add or subtract. Watching this decline is killing me. Apparently, according to my husband, I'm now taking this stress out on him. I didn't realize I was doing that, so......here I am. My hope is to find somewhere that I can vent and maybe find some suggestions too to make things better. I look forward to being in here and chatting with you all. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2009 Report Share Posted August 12, 2009 Hi, again, Tracey! I noticed you mention taking your Dad to a pschyatrist. Is he under the care of a neurologist too? Make sure that whoever is the doctor and whatever is his/her specialty, he or her is KNOWLEDGEABLE on LBD. That's very important! Best wishes! Raquel > > > > Hi, my name is Tracey. We found out in February that my dad has dementia. The scans that were done didn't show that it was lewy body dementia, but from what I've read, those symptoms most fit him and his doctor is treating him for lewy body dementia. Dad was a health nut beyond and by January/February of this year he had malnutritioned himself to the point of hospitalization. He was extremely low in B-12 and iron and was having hallucinations. After we got his blood levels back up (about 13 days later) we finally got him to begin eating more normally, however he refused to take any " drugs " . There getting him to make any medication was out of the question. We have finally gotten him to begin taking clonazepam to help him sleep more normally at night, but not regularly. For a period of time he would remain awake for days at a time to watch for what the " people " in his hallucinations were doing to him and mom. Since then the hallucinations have gotten worse and his cognitive abilities have also declined markedly. He and mom still live in the old homestead, but I go out there at least once a week to bring dad back down to reality and to take care of both of their finances. Last Saturday dad told me if he gets sick again to just let him die because living like this is a living hell and he prefers death. My dad used to have an IQ of 186 and was a geneous. Now he can add or subtract. Watching this decline is killing me. Apparently, according to my husband, I'm now taking this stress out on him. I didn't realize I was doing that, so......here I am. My hope is to find somewhere that I can vent and maybe find some suggestions too to make things better. I look forward to being in here and chatting with you all. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 : The LBD roller coaster ride sucks, that's the only way to put it. Do you have siblings to help out at all? Fortunately, I do. Even though they are not close by, we are on the phone or emailing each other daily and I keep the apprised on everything that happens with Dad AND we make all care decisions together along with our Mother. (actually, she goes along with what we think is best). I have been taken my frustrations out on my significant other and he finally called me out on it. It's tough as they are there so it's easy to do. We have found seroquel works really well for my Dad and came highly recommended by other ones on here. While your Dad is still with it enough to make cognitive decisions, I would recommend you become his durable power of attorney for his benefit as well as yours. Does he have a living will? Tough stuff but in the last 8 monhts since we started this horrible ride I have learned about of all of this and we have taken care of it. Love an prayers Jayne in VT, daughter of Bob diagnosed in 1/09 continual decline since then. > > > > Hi, my name is Tracey. We found out in February that my dad has dementia. The scans that were done didn't show that it was lewy body dementia, but from what I've read, those symptoms most fit him and his doctor is treating him for lewy body dementia. Dad was a health nut beyond and by January/February of this year he had malnutritioned himself to the point of hospitalization. He was extremely low in B-12 and iron and was having hallucinations. After we got his blood levels back up (about 13 days later) we finally got him to begin eating more normally, however he refused to take any " drugs " . There getting him to make any medication was out of the question. We have finally gotten him to begin taking clonazepam to help him sleep more normally at night, but not regularly. For a period of time he would remain awake for days at a time to watch for what the " people " in his hallucinations were doing to him and mom. Since then the hallucinations have gotten worse and his cognitive abilities have also declined markedly. He and mom still live in the old homestead, but I go out there at least once a week to bring dad back down to reality and to take care of both of their finances. Last Saturday dad told me if he gets sick again to just let him die because living like this is a living hell and he prefers death. My dad used to have an IQ of 186 and was a geneous. Now he can add or subtract. Watching this decline is killing me. Apparently, according to my husband, I'm now taking this stress out on him. I didn't realize I was doing that, so......here I am. My hope is to find somewhere that I can vent and maybe find some suggestions too to make things better. I look forward to being in here and chatting with you all. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 A neuropsychologist might be good, too. He really helped us. Gurganus > > > > > > Hi, my name is Tracey. We found out in February that my dad has dementia. The scans that were done didn't show that it was lewy body dementia, but from what I've read, those symptoms most fit him and his doctor is treating him for lewy body dementia. Dad was a health nut beyond and by January/February of this year he had malnutritioned himself to the point of hospitalization. He was extremely low in B-12 and iron and was having hallucinations. After we got his blood levels back up (about 13 days later) we finally got him to begin eating more normally, however he refused to take any " drugs " . There getting him to make any medication was out of the question. We have finally gotten him to begin taking clonazepam to help him sleep more normally at night, but not regularly. For a period of time he would remain awake for days at a time to watch for what the " people " in his hallucinations were doing to him and mom. Since then the hallucinations have gotten worse and his cognitive abilities have also declined markedly. He and mom still live in the old homestead, but I go out there at least once a week to bring dad back down to reality and to take care of both of their finances. Last Saturday dad told me if he gets sick again to just let him die because living like this is a living hell and he prefers death. My dad used to have an IQ of 186 and was a geneous. Now he can add or subtract. Watching this decline is killing me. Apparently, according to my husband, I'm now taking this stress out on him. I didn't realize I was doing that, so......here I am. My hope is to find somewhere that I can vent and maybe find some suggestions too to make things better. I look forward to being in here and chatting with you all. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 Jayne: Thanks. Yeah I do have siblings, but one is in Texas, who is a great support, but too far away for help. One brother will go whenever called, but doesn't want to know anything and will constantly tell you he doesn't understand and the other only will help when it doesn't conflict with his schedule. So it's off and on help. Dad put all the necessary paperwork in place in April 2008. I guess he knew something was happening, but didn't tell anyone until he couldn't control it anymore. The hallucinations are what got to him the most. Those are constant. He fights me on going to doctors. At first I could only get him to go to his PCP which he has seen a total (prior to all this) of about 3 times in his life (he hates doctors, doesn't trust them.) Now he trusts him only, but he's a general practioner. However he has heard of LBD and that's what he's treating dad for(Exelon patches)as far as the hallucinations and the clonazepam to help him sleep cause dad was staying up all night to watch " the people " and make sure they didn't hurt mom or him. It hasn't seemed to make his hallucination any worse, but I will speak with the psychiatrist about the drugs I've heard of on here. I will attempt to talk him about seeing other doctors if we need to. One appointment at a time though. It took me 2 months to talk him into this. He's a very stubborn man, but I love him dearly. I continue to learn something everyday here, so it's a constant process. This group has made my home life much happier and I thank you all for it. Bless you.. Tracey in KS, daughter of Al Herron, Demential dx 2/09 > > > > > > Hi, my name is Tracey. We found out in February that my dad has dementia. The scans that were done didn't show that it was lewy body dementia, but from what I've read, those symptoms most fit him and his doctor is treating him for lewy body dementia. Dad was a health nut beyond and by January/February of this year he had malnutritioned himself to the point of hospitalization. He was extremely low in B-12 and iron and was having hallucinations. After we got his blood levels back up (about 13 days later) we finally got him to begin eating more normally, however he refused to take any " drugs " . There getting him to make any medication was out of the question. We have finally gotten him to begin taking clonazepam to help him sleep more normally at night, but not regularly. For a period of time he would remain awake for days at a time to watch for what the " people " in his hallucinations were doing to him and mom. Since then the hallucinations have gotten worse and his cognitive abilities have also declined markedly. He and mom still live in the old homestead, but I go out there at least once a week to bring dad back down to reality and to take care of both of their finances. Last Saturday dad told me if he gets sick again to just let him die because living like this is a living hell and he prefers death. My dad used to have an IQ of 186 and was a geneous. Now he can add or subtract. Watching this decline is killing me. Apparently, according to my husband, I'm now taking this stress out on him. I didn't realize I was doing that, so......here I am. My hope is to find somewhere that I can vent and maybe find some suggestions too to make things better. I look forward to being in here and chatting with you all. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 Raquel: Thanks for post and your support. I will be sure to ask each doctor of their knowledge in LBD. I was surprised to find out how many people didn't know about it. When dad was dx'd with dementia the first thing I did was some internet research and that was one of the causes and the sxs were so close to dad's. Everyone asked me about Alzheimer's but dad didn't have the same sxs as that so people assume it's not dementia. I have learned so much here and feel so much better that I'm not the only one that doesn't know what I'm doing and has to learn one day at a time. That " not knowing " scares me, I hate it and figured there should be a way for me to find out all there is to know about this disease. I'm glad to know I'm not slacking, but that it's just so broad there's no way to know everything. This group is a God Send. I will make sure to ask all questions and not worry about questioning a doctor in the future where my dad's concerned. Thank you all for my courage. Tracey, daughter to Al Herrron, Demential dx 2/09. > > > > > > Hi, my name is Tracey. We found out in February that my dad has dementia. The scans that were done didn't show that it was lewy body dementia, but from what I've read, those symptoms most fit him and his doctor is treating him for lewy body dementia. Dad was a health nut beyond and by January/February of this year he had malnutritioned himself to the point of hospitalization. He was extremely low in B-12 and iron and was having hallucinations. After we got his blood levels back up (about 13 days later) we finally got him to begin eating more normally, however he refused to take any " drugs " . There getting him to make any medication was out of the question. We have finally gotten him to begin taking clonazepam to help him sleep more normally at night, but not regularly. For a period of time he would remain awake for days at a time to watch for what the " people " in his hallucinations were doing to him and mom. Since then the hallucinations have gotten worse and his cognitive abilities have also declined markedly. He and mom still live in the old homestead, but I go out there at least once a week to bring dad back down to reality and to take care of both of their finances. Last Saturday dad told me if he gets sick again to just let him die because living like this is a living hell and he prefers death. My dad used to have an IQ of 186 and was a geneous. Now he can add or subtract. Watching this decline is killing me. Apparently, according to my husband, I'm now taking this stress out on him. I didn't realize I was doing that, so......here I am. My hope is to find somewhere that I can vent and maybe find some suggestions too to make things better. I look forward to being in here and chatting with you all. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 : Thanks. After this appointment we'll see what he'll let me do from there. He's pretty stubborn, but I'm getting that way too these days. Thanks tons for your input and ears, you have no idea how greatful I am for both. Tracey, daughter of Al Herron, Dementia dx 2/09 > > > > > > > > Hi, my name is Tracey. We found out in February that my dad has dementia. The scans that were done didn't show that it was lewy body dementia, but from what I've read, those symptoms most fit him and his doctor is treating him for lewy body dementia. Dad was a health nut beyond and by January/February of this year he had malnutritioned himself to the point of hospitalization. He was extremely low in B-12 and iron and was having hallucinations. After we got his blood levels back up (about 13 days later) we finally got him to begin eating more normally, however he refused to take any " drugs " . There getting him to make any medication was out of the question. We have finally gotten him to begin taking clonazepam to help him sleep more normally at night, but not regularly. For a period of time he would remain awake for days at a time to watch for what the " people " in his hallucinations were doing to him and mom. Since then the hallucinations have gotten worse and his cognitive abilities have also declined markedly. He and mom still live in the old homestead, but I go out there at least once a week to bring dad back down to reality and to take care of both of their finances. Last Saturday dad told me if he gets sick again to just let him die because living like this is a living hell and he prefers death. My dad used to have an IQ of 186 and was a geneous. Now he can add or subtract. Watching this decline is killing me. Apparently, according to my husband, I'm now taking this stress out on him. I didn't realize I was doing that, so......here I am. My hope is to find somewhere that I can vent and maybe find some suggestions too to make things better. I look forward to being in here and chatting with you all. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.