Guest guest Posted January 21, 2000 Report Share Posted January 21, 2000 Hi Barry, I can relate to the kids. I have a 9 year old daughter who has watched her mom go from being " normal " to basically needing a wheelchair. I think she has adjusted better than I have. She helps me a lot and some of the time I scream at her out of frustration. I really feel bad and try to explain the situation to her. She understands more than I give her credit for. She's very helpful and very protective. I taught her how to start my car (a standard) and she now starts it for me on cold mornings. It makes her feel like a " big girl " and it keeps me out of the cold. Let your kids help.. They love it. This disease is definitely a " Stop and Smell the Roses " type of disease. I have learned to love watching birds. I feed them, I now have a bath for them, I build birdhouses for them, and I've bought binoculars and a birdbook so I can identify them. NEVER in my life before PLS would I have slowed down enough to even notice them. This is also something my daughter and I can do together. In other words, just enjoy every minute and stop and smell each rose. Life can be wonderful. Your friend, Jeanne Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2000 Report Share Posted January 21, 2000 i don't have any children at home but i truly enjoy being around children. they as so interested in what has happened, how the scooter works and the wheelchair. i always try to 'step in' when parents try to shhh their children. i want kids to ask questions, touch the chair or scooter and yes, if they are small enough i ever give them a ride. i don't want them to be afraid of me or anyone else with a disability. kathleen JeanneAnnNeff@... wrote: > > From: JeanneAnnNeff@... > > Hi Barry, > I can relate to the kids. I have a 9 year old daughter who has watched her > mom go from being " normal " to basically needing a wheelchair. I think she > has adjusted better than I have. She helps me a lot and some of the time I > scream at her out of frustration. I really feel bad and try to explain the > situation to her. She understands more than I give her credit for. She's > very helpful and very protective. I taught her how to start my car (a > standard) and she now starts it for me on cold mornings. It makes her feel > like a " big girl " and it keeps me out of the cold. Let your kids help.. They > love it. This disease is definitely a " Stop and Smell the Roses " type of > disease. I have learned to love watching birds. I feed them, I now have a > bath for them, I build birdhouses for them, and I've bought binoculars and a > birdbook so I can identify them. NEVER in my life before PLS would I have > slowed down enough to even notice them. This is also something my daughter > and I can do together. In other words, just enjoy every minute and stop and > smell each rose. Life can be wonderful. Your friend, Jeanne Ann > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2000 Report Share Posted January 21, 2000 Your advice is very good. I have found this out in church the kids come up to me, I can not talk so smile and motion them to take a ride, some do and some do not. Usually some one is near by to explain my condition. After that they come give me a hug or just say " Hi " as they pass by. < ebann@adsnet,com> ---------- > > To: PLS-FRIENDSonelist > Subject: Re: Barry <.the rookie> > Date: Friday, January 21, 2000 3:20 PM > > > > i don't have any children at home but i truly enjoy being around > children. they as so interested in what has happened, how the scooter > works and the wheelchair. i always try to 'step in' when parents try to > shhh their children. i want kids to ask questions, touch the chair or > scooter and yes, if they are small enough i ever give them a ride. i > don't want them to be afraid of me or anyone else with a disability. > > kathleen > > JeanneAnnNeff@... wrote: > > > > From: JeanneAnnNeff@... > > > > Hi Barry, > > I can relate to the kids. I have a 9 year old daughter who has watched her > > mom go from being " normal " to basically needing a wheelchair. I think she > > has adjusted better than I have. She helps me a lot and some of the time I > > scream at her out of frustration. I really feel bad and try to explain the > > situation to her. She understands more than I give her credit for. She's > > very helpful and very protective. I taught her how to start my car (a > > standard) and she now starts it for me on cold mornings. It makes her feel > > like a " big girl " and it keeps me out of the cold. Let your kids help.. They > > love it. This disease is definitely a " Stop and Smell the Roses " type of > > disease. I have learned to love watching birds. I feed them, I now have a > > bath for them, I build birdhouses for them, and I've bought binoculars and a > > birdbook so I can identify them. NEVER in my life before PLS would I have > > slowed down enough to even notice them. This is also something my daughter > > and I can do together. In other words, just enjoy every minute and stop and > > smell each rose. Life can be wonderful. Your friend, Jeanne Ann > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.