Re: NCC- links oops.....

[Guest guest]

>why does sending links mess things up, as long as they aren't >attachments?(according to lat info from ronnie).I am grateful to the oned who >have time to "surf" and send us who are "Overwhelmed"(6 kids,4w/chiari,3 had >surgery,ALL have other medicalissues, including Mom)Are you sure you >understood this, as I haven't seen anyone say don't send links,its just when >there are "multiple pages of one link, which could be put on one page, under >a line of subjects if it changes. I would see that being an improvement, but >I love getting links that are appropriate-I have recieved some needed info >that way.

I don't entirely follow that note, but I see a variation of my name is contained within it,

contributing comments to me that I never made :-). There's nothing wrong with sending

links through the list. Links and attachments are very different animals.

This message to which I'm replying, however, is NCC and should have been labeled as such

- that is, if it hadn't been a misdirected technical question in the first place. Questions of this

type need to be sent to chiari-owneregroups .

ronny

btw - please don't see this as something to take offense to. we mention these things for the sole purpose of helping the list run better, thereby allowing our most fragile members to easily access all the chiari info they came here to find. we really don't enjoy having to make these posts :-) thanks guys.

while i'm here - try to remember to use appropriate subject headings. if you have a "no subject" post, lots of people won't even bother to look at it. it just takes up space and adds to the list of stuff that needs to be deleted.

and - please state at the end of your message if you have chiari and/or a syrinx. there seems to be an influx lately of members with neither condition, discussing other health problems. that can cause confusion about the symptoms of chiari and sm and is counter-productive to our purpose here. if you don't have chiari - please say so. thanks.

r

chiari 1 :-)