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Meeting fellow PLSers

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I would very much like to meet other folks with PLS. However, living in the

wilds of Hamilton, Montana I doubt if there is anyone anywhere in this part of

the country. My wife and I are planning a trip to Arizona the first two weeks

in February and was wondering if there is anyone along or near the route we will

be traveling that would like to meet with us. We will be pretty much following

US 93 through Twin Falls, ID, Las Vegas, and on to Phoenix and Tucson to visit

friends. Depending on the weather, we could also jog over to I-15 through Salt

Lake City either to or from Las Vegas if there is anyone in that vicinity. We

presently don't have a fixed itinerary and are quite flexible in our plans.

I have been corresponding and following activities on this site and PLSpals

since last May and have given a history of my condition and have commented on

many different subjects that have been brought up. However, if you are like me,

you delete most messages after reading them so I offer the following brief

summary.

I am 68 years old and have had PLS symptoms for over nine years, but was just

diagnosed four years ago. It started in my left foot and progressed to the

right. Then it affected my hands and arms. Last to be affected was my voice

and swallowing. I presently use a motorized wheelchair. I can still speak,

although my speech is slow and not in my normal voice.

If anyone is interested you may contact me at my E-mail address instead of this

site if you wish.

Your fellow PLSer,........

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