Re: Re: Tabby What is going on with fibro

[Guest guest]

I am staying Joanne on the group I am thankful for everyone's advice. I

am so sick though, I am not at the place that I can get off my meds. I have

run out before, and not able to even turn my head from the pain and

paralysis in my body. I have a pretty severe case of Fibromyalgia.I have to

even self cath 4 times a day at time to empty my bladder.One dr. gave me 5

years to live.

For 9 years I have had

head aches,pleurisy,IBS ( since I was 15), pain all over, urinary

problems,My hands and legs going numb and hurt so bad I one night almost

just wanted to cut my hands off from the pain, back pain,vision

trouble,very bad forgetfullness( I homeschool and I struggle just

remembering how to spell, where I once was intelligent) Thankfully my

children are teenagers and we have a dictionary

It hurts to breathe,I can't open my mouth very wide from TMJ, exhausted all

the time, severe sleep apnea ( I use a c pap machine) I can't walk far

because my legs go numb, I could probably go on, but I think that describes

my Fibro good enough I guess. But even through all this, I have maintained

as best I can, to be a GODly wife and Momma and not let the Fibro ruin my

life, I try to keep doing all the things I did before I got sick, I just

now have to do them in different ways. I do have faith that GOD can and

will heal me.I struggle to keep my faith of that, often I feel like I will

continue to progress and die, but I try hard not to let those negative

thoughts in my mind, because I know I need to keep having positive thoughts.

I haven't talked about my illness to this extent before with anyone, I hope

this is a safe place to do so.

I keep our home a happy bustling home, and try to not let anyone know the

pain I feel, though sometimes it is not as easy to hide it . I know I have

much to be thankful for.I know there are people much worse than me, and I

am thankful i can still be a Momma and Keeper at Home

I rarely stay in bed no matter how bad I feel, because that just makes the

depression and pain worse.I make myself get up, do school, and whatever

else needs to be done

I am blessed with loving children who help me allot. I thank Yahweh for

that. Love,Tabby

On Thu, Mar 29, 2012 at 11:37 AM, Joanne Ford wrote:

> **

>

>

> Tabby

>

> This clip explains fibro well but we do not need any of the meds

>

>

>

> Notice the doctor said we are high in glutamate and substance p (the pain

> neuron)

>

> And he says we are low in dopamine seratonin noradrenalin etc

>

> This is correct

>

> but what he does not mention is that this is only the case when we are in

> thr glucose pathway

>

> When we change over to the ketogenic pathway the glutamate turns into GABA

> ( and as it does the substance p neuron goes down because its level is

> dictated by the amount of glutamate we have)

>

> GABA id a super neuron and it is a soothing neuron, and what happens in

> the brain and nervous system when GABA rises is dopamine seratonin

> noradrenalin and other neurons balance out

>

> And this about is one reason why I am no longer on any meds and have not

> been for a very long time

>

> Will share more later, just please stay here because at this site you do

> get the truth about fibro

>

> Love Joanne

>

>

[Guest guest]

I will hang on and you don't worry to type it all to me now.I am thankful

for one tip or teaching a day or week I don't know about your life, I

had just seen this Fibro yahoo group from the internet, can't remember

whose site. I am fine to wait, I am not expecting healing quickly. I know

that there is allot to cleanse and detox and much more to learn, and so I

just take everything in my life one day at a time. Love,Tabby

On Thu, Mar 29, 2012 at 2:19 PM, Joanne Ford wrote:

> **

>

>

> Tabby

>

> You will not be able to get off your meds until you are doing what we do,

> and even then it will take a while. I did not get fully off all my meds

> until around 2 years ago

>

> Let me explain this better, I often think newcomers know more about me

> than they actually do

>

> I have had fibro for well over 20 years, and probably through childhood

> too, or at least to some extent. By the time I got here to this site, had

> lost my home, was penniless, homeless, husband in intensive care bla bla

> bla, this story goes on and on, I will try to dig out an old post and post

> that so I do not have to type it all. Fibro was so severe, could not walk

> without crutches, could not hold bowel, bladder, brain fog, severe pain,

> totally abused and neglected by doctors, extended family and much more. You

> know what this illness does to us and our lives so you really do not need

> to hear it all

>

> But my life is totally nothing like that now NOTHING like that

>

> Tabby, please please please just bare with us all we simply cannot type

> fast enough. But I promise you hand on heart you are int he right place and

> you will get the truth, the absolute truth about this illness here, and one

> day and a glee with joy telling you this not only will you be amazingly

> well from fibro, getting off your meds will be far far far easier than you

> think

>

> I know you dare not believe this, none of us did, but we have figured it

> out, just hang on in there

>

> Love Joanne

>

> --

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*The Joy of Yahweh Is My Strength*